Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 21 September 2011

Health Psychologists:

Well after having me in the system over 3 years and missing me out, i finally got an initial assessment with one pain management health psychologist (i will call A) when the referrel was made to psychologist B.

After listening to me and seeming to want to help A stated that A would be having a meeting with B in 3-4 weeks and will be in touch afterwards.

Having previously felt suicidal and still do when i have times i feel really low or have had major problems, i discussed options with A and A stated that they have no services to help anyone who are suicidal at any time and that the person should call 999 or visit A+E when feeling suicidal.

This really hurt me as i was sent to A+E recently with PCOS -potentially- cyst pain / gynae related pains in my right side, and had been dealing with a specific dr who said he would operate when i was no longer fat. If i am honest i am not Fat, i am a little overweight but my BMI states that i only slightly obese. Anyway i lost some 2 stones and he withdrew his promise to operate via lathoroscopy.

 (May not be spelt correctly, sorry)

Anyway i was in agony and on gas and air and had literally and very seriously, had enough. I told the Dr if he was unwilling to help me he needed to get a Dr who would as i need help (still do) and i still have not got the 'new' gynae Dr as i was too unwell with my joints when my appointment finally arrived 3 months later.

That same night though, having been in all day i confided in the Dr and stated i would end my life if sent home because i cannot cope with the pain anymore, it was too much and i had had that pain for a long time! The Dr did not care and said it was psychiatrists i need and because he was from the same hospital as my ex consultant i feel he has taken a leaf out of his book and got wrong information about me as he did not even know or care i had been diagnosed with Hypermobility Syndrome!!!

Psychiatrists number 1021 and 1022 arrived and said i was not their problem as they cant help as its a gynae i need as im only suicidal due to pain!

I was sent home and if not for my husband and family i would not be here today!

I have to help myself as no one else cares.

Back to Psychologists, they finally got back to me after i had left a message with B, and anyway, A phoned and stated she would like to discuss my case with C (a psychologist i had seen about something else back in 2008) and I agreed.

But i have heard nothing back and i hope they do not send me to C as it is in fact B i need to see and i have waited so long and they never stated they would need to speak to a C at all!


A stated that A and B's concerns were that they do not know how i would respond to short term help, and i said short term is better than none and you won't know unless we try it!!! Three years i have waited, i am desperate, as i am, and need your help.

So now im back in the waiting game, and i dont think they can offer long term help but i told A that short term has helped me and A will only find out the same as i have told her from C.

My son is coming up two and he is perfect for his age, speech, cognitive development, motor skills etc. Perfect, and all A kept asking about was my son! He does not need any help, i need the help and i am fed up as he is also safe and in a safe and warm, loving environment!

I still use the anti-smacking, conditioning, token economy, time outs, distraction and ignoring techniques for tantrums from my previous work experience and education and i still have the BTEC national diploma book in early years.

A made me define all my experience and everything as if she had done nothing but ignore everything i had told her in the initial meeting, and i am gutted!

It is not my son that needs anything, all i need is someone to give me SOME time, to help me ACCEPT this disability!!!

Frustrated and feeling more and more alone, exhausted and fed up.

I do not care i am going to be honest, even though i am embarrassed, i have not had a proper bath or shower for about a month (flannel washes) and i have not washed my hair in 2 weeks because i could not due to my joint flare ups, i was bed bound downstairs on a sofa bed for the whole of August 2011, and i am still very ill. (hate not having downstairs toilet, just want to feel 'normal' or average and independent)

i need help soon.

There is NO home start to help us in this area or anything, thinking about it we have an OT assessment we are waiting for, but it might just be easier to move, this is because we can move into a property that meets my needs by having a downstairs toilet, and it might also have ramps etc, but we are needing the ramps changing here anyway as the metal grid holes are sharp and my two year old likes to poke the holes and has cut his fingers before and its really upsetting me, and were being measured for a new stairlift anyway as this one is breaking all the time so if we need those here, may aswell get them in a property that CAN be permanent and meets my needs!

It would mean we would never have to move again!

And life would be sooo much easier for us a family.

We're just worried and nervous with the stress of moving but people are right, theres no point keep patching this one up and getting stressed when we can move into one that can be adapted and suitable for my life, and my family's.


Definitely something we are considering....

Hope we can get help and things and im almost crying now at the thought of having a proper house, my needs met and our lives being so much easier!!!

We have no where to store the commode or wheelchairs or scooter here, and the cupboard under stairs, we had another look, may be too small for a toilet anyway! Maybe the OT is definitely right and moving would solve all our problems!

*fingers crossed*

Guess we had a very stressful move when we moved here and its put us off moving again as it was rushed, i was 35wks pregnant, we had no benefits as they were all pending, no fridge, no cooker, and a million and one additional problems, the house we havent decorated and have partly carpeted, downstairs is rugs etc, and this house has no rooms decorated at all, theyre all a state, and we may get a home with atleast one room done, but thats little things we could try and sort later. Its the fact we had so many problems moving and had to do so much all at once and had problems with BT charging us and SKY etc and on top bailiffs, many bailliffs from previous tenents that has gone on for 3 years as they are STILL illegally using this address to get loans! Don't know how they do it!!!

This time we move though, we have a choice, and we can do things step by step, and we dont have to accept the 1st thing offered, especially if it doesnt meet our needs, layout wise etc. So things CAN be easier but i know its still stressful.



*FINGERS REALLY CROSSED*

PLEASE wish us some good luck!!! <3

The council and social services have been great and so helpful so far and i hope that they can continue to support us throughout the move and adaptations etc.

Lets see :)

Feeling hopeful, and dreaming of a real life as a proper family in a home that can help us live our lives much easier....

Another Condition...

PoTs:

Well i have found out that i have another condition linked with Hypermobility Syndrome, via a Hypermobility Charity known as HMSA.

Its part of Hypermobility in a way and I have often wondered why i get blurred vision, problems swallowing dry chips and food and having really low blood pressure at times, mainly after eating and after standing.

Here is the condition and information posted on Wikipedia about it, its known as PoTs: (long information to come:)

"Postural orthostatic tachycardia syndrome (POTS, also postural tachycardia syndrome) is a condition of dysautonomia,[1] more specifically orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia. Several studies show a decrease in cerebral blood flow with systolic and diastolic cerebral blood flow (CBF) velocity decreased 44% and 60%, respectively.[2] Patients with POTS have problems maintaining homeostasis when changing position, i.e. moving from one chair to another or reaching above their heads. Many patients also experience symptoms when stationary or even while lying down.
Symptoms present in various degrees of severity depending on the patient. POTS can be severely debilitating. Some patients are unable to attend school or work, and especially severe cases can completely incapacitate the patient.

Symptoms

The hallmark symptom of POTS is an increase in heart rate from the supine to upright position of more than 30 beats per minute or to a heart rate greater than 120 beats per minute within 12 minutes of head-up tilt.
This tachycardic response is sometimes accompanied by a decrease in blood pressure and a wide variety of symptoms associated with hypotension. Low blood pressure of any kind may promote the following:[3]
Chronic or acute hypoperfusion of tissues and organs in the upper parts of the body are thought to cause the following symptoms:
Autonomic dysfunction is thought to cause additional gastrointestinal symptoms:
Cerebral hypoperfusion, when present, can cause cognitive and emotive difficulties. Symptoms that persist in the supine (recumbent) state are difficult to attribute to "cerebral hypoperfusion"
Inappropriate levels of epinephrine and norepinephrine lead to anxiety-like symptoms:
Symptoms of POTS overlap considerably with those of generalized anxiety disorder, and a misdiagnosis of an anxiety disorder is not uncommon.
Prolonged inactivity of any cause, especially when much time is being spent in the supine (recumbent) position, will lead to a diminution in the usual orthostatic reflex. In other words, chronic inactivity with frequent assumption of the supine position will lead to the hallmark signs of POTS. This raises the question as to whether, in some cases, POTS is actually an epiphenomenon, and has resulted from prolonged inactivity. Since many POTS sufferers feel compelled to remain supine, the potential for a vicious cycle is obvious.

Associated conditions

  • POTS is often accompanied by vasovagal syncope, also called "neurally mediated hypotension" (NMH) or "neurocardiogenic syncope" (NCS). Vasovagal syncope is a fainting reflex due to a profound drop in blood pressure. Autonomic dysfunction that occurs with these disorders causes blood to inappropriately pool in the limbs away from the heart, lungs, and brain. The combination of misdirected bloodflow and hypotension will invoke syncope. Tachycardia associated with POTS may be a cardiac response to restore cerebral perfusion.
  • POTS may be a cause of chronic fatigue syndrome in patients that exhibit signs of orthostatic intolerance. Treating POTS will greatly improve or even eliminate disabling fatigue for these patients.
  • Some patients with fibromyalgia complain of dysautonomia-related symptoms. Treating these patients for POTS will often improve myofascial and neuropathic pain.
  • Autonomic dysfunction is most likely responsible for irritable bowel syndrome in many patients as well.
  • Patients with Ehlers-Danlos syndrome may also have POTS. Joint hypermobility is a feature of the most common subtype of Ehlers-Danlos.
  • Some POTS patients experience symptoms associated with restless leg syndrome. Treating POTS should also relieve these symptoms.
  • Some findings link this with hypermobility
  • A small percentage of pediatric cases of POTS have been associated with moderate to severe memory loss.[6]

Causes

The causes of POTS are not fully known. Most patients develop symptoms in their teenage years during a period of rapid growth and see gradual improvement into their mid-twenties. Others develop POTS after a viral or bacterial infection such as mononucleosis or pneumonia. Some patients develop symptoms after experiencing some sort of trauma such as a car accident or injury. Women can also develop POTS during or after pregnancy. These patients generally have a poorer prognosis.
In one large test, 12.5% of 152 patients with POTS reported a family history of orthostatic intolerance, suggesting that there is a genetic inheritance associated with POTS.[7]
So far no one has provided an explanation for POTS which is applicable to all sufferers, however there are many theories;
Alpha-receptor dysfunction may be occurring in some POTS patients.[8] Alpha-1 receptors cause peripheral vasoconstriction when stimulated. Alpha-1 receptor supersensitivity may be causing dysautonomia in some patients.[9]
Beta-receptor supersensitivity may occur with hyperadrenergic states in some people with POTS.[10]
Hyperdopaminergic states may be the underlying problem for some people with orthostatic intolerance. Some patients have been found to have a significant increase in upright dopamine levels.[11] Free plasma norepinephrine also tends to be higher in these patients.
Reduced venous return is one of the main mechanisms that causes POTS symptoms. Venous return can be reduced due to conditions such as low plasma volume (hypovolemia), venous pooling and denervation. A hyperadrenergic state may result as the body attempts to compensate for these abnormalities.
Sympathetic Overactivity is observed in many POTS patients. The sympathetic overactivity can be secondary to a number of factors, some of which may be peripheral denervation, venous pooling, or end-organ dysfunction. Sympathetic underactivity can also occur in some forms of orthostatic intolerance,[12] such as pure autonomic failure.
Recent studies have described a subset of POTS patients that appear to have elevated angiotensin II levels coupled with paradoxically reduced absolute blood volume, signs of increased sympathetic activity and reduced peripheral blood flow. This subset of POTS patients appear to have abnormal catabolism of Angiotensin II that may contribute to reduced blood volume and orthostatic intolerance.[13][14][15]

Diagnosis

POTS can be difficult to diagnose. A routine physical examination and standard blood tests will not indicate POTS. A tilt table test is vital to diagnosing POTS, although all symptoms must be considered before a final diagnosis is made. Tests to rule out Addison's Disease, pheochromocytoma, electrolyte imbalance, Lyme Disease, Celiac Disease, and various food allergies are usually performed.[citation needed] A blood test may be performed to verify abnormally high levels of norepinephrine present in some POTS patients.
Between 75 and 80 percent of POTS patients are female and of the menstruating age. Most male patients develop POTS in their early to mid-teens during a growth spurt or following a viral or bacterial infection. Some women also develop POTS symptoms during or after pregnancy.

Prognosis

Most POTS patients will see symptom improvement over the course of several years. Those who develop POTS in their early to mid teens during a period of rapid growth will most likely see complete symptom resolution by their mid twenties[citation needed]. Patients with post-viral POTS will also usually improve greatly or see a full symptom resolution. Adults who develop POTS, especially women during or after pregnancy, usually see milder improvement and can be plagued with their condition for life[citation needed]. Rarely, a teenager who develops POTS will gradually worsen over time and have lifelong symptoms. Patients with secondary POTS as a consequence of Ehlers-Danlos Syndrome will also usually struggle with symptoms for life. In some patients the only cure for POTS is time.[16]
Recovered individuals do complain of occasional, non-debilitating recurrence of symptoms associated with autonomic dysfunction including dizzy spells, lightheadedness, flushing, transient syncope, and symptoms of irritable bowel syndrome[citation needed].

Treatment

Most patients will respond to some form of treatment. Lifestyle changes, particularly drinking extra water and avoiding trigger situations such as standing still or getting hot, are necessary for all patients. Some patients also benefit from the addition of other treatments, such as certain medications.

Dietary changes

  • Drinking more water improves symptoms for nearly all patients. Most patients are encouraged to drink at least 64 ounces (two liters) of water or other fluids each day.
  • Alcohol has been shown to drastically exacerbate all types of orthostatic intolerancevasodilation and dehydration properties. In addition to its adverse effects, it interacts unfavorably with many of the medications prescribed to POTS patients. due to its
  • Eating frequent, small meals can reduce gastrointestinal symptoms associated with POTS by requiring the diversion of less blood to the abdomen.
  • Increasing salt intake, by adding salt to food, taking salt tablets, or drinking sports drinks and other electrolyte solutions, is a treatment used for many people with POTS; however, salt is not recommended for all patients. Increasing salt is an effective way to raise blood pressure in many patients with orthostatic hypotension by helping the body retain water and thereby expand blood volume. Different physicians recommend different amounts of sodium to their patients.[10][17]
  • Diets high in carbohydrates have been connected to impaired vasoconstrictive action. Eating foods with lower carbohydrate levels can mildly improve POTS symptoms.
  • Caffeine helps some POTS patients due to its stimulative effects; however, other patients report a worsening of symptoms with caffeine intake.
  • Tilting of bed to an angle of roughly 30 degrees can also help reduce symptoms. (Feet up, head down.)

Physical therapy and exercise

Exercise is very important for maintaining muscle strength and avoiding deconditioning. Though many POTS patients report difficulty exercising, some form of exercise is essential to controlling symptoms and eventually, improving the condition. Exercises that improve leg and abdominal strength may aid in improving the muscle pump and therefore preventing pooling of blood in the abdomen and lower extremities.
Aerobic exercise performed for 20 minutes a day, three times a week, is sometimes recommended for patients who can tolerate it.[17] Certain modalities of exercise may be more tolerable initially, such as riding a recumbent bicycle or swimming. However, as tolerable, upright exercise may benefit the participant through orthostatic training. All exercise programs for POTS patients should begin with low intensity exercises for a short duration and progress slowly.

Medications

Several classes of drugs often provide symptom control and relief for POTS patients. Treatments must be carefully tested due to medication sensitivity often associated with POTS patients, and each patient will respond to different therapies in different ways.
The first line of treatment for POTS is usually fludrocortisone, or Florinef, a mineralcorticoid used to increase sodium retention and thus increase blood volume and blood pressure. An increase in sodium and water intake must coincide with fludrocortisone therapy for effective treatment.
Dietary increases in sodium and sodium supplements are often used.

An 80 mg capsule of Propranolol.
Beta blockers such as atenolol and propanolol are often prescribed to treat POTS. These medications work by blocking the effects of epinephrine and norepinephrine released by the autonomic nervous system. Beta blockers also reduce sympathetic activity by blocking sympathetic impulses. For some patients, beta blockers increase POTS symptoms. Beta blockers may be dangerous to individuals with asthma or allergies.
Midodrine (Proamatine), is approved by the U.S. Food and Drug Administration (FDA) to treat orthostatic hypotension, a condition related to POTS. It is a stimulant that causes vasoconstriction and thereby increases blood pressure and allows more blood to return to the upper parts of the body. Use of midodrine is often discontinued due to intolerable side-effects, and it is known to cause supine hypertension (high blood pressure when lying down).
Antidepressants, especially selective serotonin reuptake inhibitors (SSRIs) such as ProzacZoloft (Sertraline), Celexa (Citalopram), Lexapro (Escitalopram), and Paxilserotonin-norepinephrine reuptake inhibitors (SNRIs) such as Effexor (Venlafaxine) and Cymbalta (Duloxetine) are even more effective. Tricyclic antidepressants, tetracyclic antidepressants, and monoamine oxidase inhibitors are also occasionally, but rarely, prescribed. A combination of two antidepressants, usually an SSRI or SNRI with Wellbutrin (Bupropion) or Remeron (Fluoxetine), (Paroxetine), can be extremely effective in re-regulating the autonomic nervous system and raising blood pressure. Some studies indicate that (Mirtazapine), is also shown to be very effective.
Medications used to treat attention deficit disorder and attention deficit hyperactivity disorder such as Ritalin (Methylphenidate) and Adderall effectively increase norepinehprine and dopamine levels, thereby increasing vasoconstriction and blood pressure.
In the UK Ivabradine has been used to treat patients with POTS symptoms with good effect. Ivabradine acts by reducing the heart rate in a mechanism different from beta blockers and calcium channel blockers, two commonly prescribed antianginal drugs. It is classified as a cardiotonic agent.
Anti-anxiety medications, such as Xanax (Alprazolam), Ativan (Lorazepam), and Klonopinadrenaline usually seen with POTS patients. (Clonazepam), can be used to combat imbalances of
  • Angiotensin converting enzyme inhibitors, or ACE inhibitors, are used to increase vascular capacity, cardiac output, and sodium and water excretion.
  • Clonidine can work in patients with reduced sympathetic activity. Clonidine lowers catecholamine(epinephrine and norepinephrine) production.
  • Disopyramide, or Norpace, is an antiarrhythmic medication that inhibits the release of epinephrine and norepinephrine.
  • Erythropoietin, used to treat anemia via intravenous infusion, is very effective at increasing blood volume. It is seldom used, however, due to the dangers of increasing the hematocrit, the inconvenience of intravenous infusion, and its prohibitively expensive cost.
  • Pregabalin or Lyrica, an anticonvulsant drug, has been shown to be especially effective in treating neuropathic pain associated with POTS. In fact, Lyrica was the first and, for its first year on the market the only, prescription drug approved by the FDA to treat fibromyalgia. Some POTS patients also report improvement in concentration and energy while on Lyrica.
  • Pseudoephedrine and phenylephrine, over the counter decongestants, increase vasoconstriction by promoting the release of norepinephrine.
  • Pyridostigmine, or Mestinon, inhibits the breakdown of acetylcholine, promoting autonomic nervous system activity. It is especially effective in patients who exhibit symptoms of excessive sympathetic activity.
  • Theophylline, a drug used to treat respiratory diseases such as COPD and asthma, is occasionally prescribed at low doses for POTS patients. Theophylline increases cardiac output, increases blood pressure, and stimulates epinephrine and norepinephrinetherapeutic index, Theophylline is known to cause a wide variety of side-effects and even toxicity. production. Due to its very narrow
  • Women who report a worsening of symptoms during menstruation will often use combined (containing both estrogen and progestin) forms of hormonal contraception to prevent hormonal changes and an aggravation of their condition.

External body pressure

Pressure garments can reduce symptoms associated with orthostatic intolerance by constricting blood pressures with external body pressure.
Compression devices, such as abdominal binders and compression stockings, help to reduce the amount of pooling blood. Compression stockings should be at least 30–40 mm Hg and will work best if they are waist high.[18] Compression stockings should be fitted to achieve the greatest benefit.
Compressions suits (G-Suits) have also been used with some good results.[19][20]

Changes in environment

Some patients report that symptoms worsen with changes in barometric pressure (for instance, before a thunderstorm) and changes from outdoors to indoors (presumably barometric pressure is higher inside) and depending on weight of clothes and coverage. These patients may find relief by moving to a new History
POTS was first named and identified by Schondorf and Low in 1993;[24] however, the syndrome has been described in medical studies dating back to at least 1940. Hypertension associated with POTS has been previously described as the "hyperadrenergic syndrome" by Streeten[citation needed] and as "idiopathic hypovolemia" by Fouad.[25] Hypotension associated with POTS has been previously described as the "neurally mediated hypotension" form of POTS."


References and links can be found on the wikipedia site also.

I really hope this helps people out there that have been diagnosed with SPD and/or Hypermobility Syndrome, Fibromyalgia or other joint conditions, to understand some symptoms they have that were not really outlined in the joint conditions, and that may be outlined under 'symptoms' of POTS.

We do not have to suffer in silence and i know this has not been an 'official' diagnosis by a doctor but i will be showing my Dr this if and when i ever see him again. Or maybe the next one i see. If i see one.

Monday, 19 September 2011

SPD CHARITY: looking for Volunteers:

Official Link for facebook users: 


http://www.facebook.com/note.php?created&&note_id=221810881208099




FULL info provided below also:



Applicants for volunteer and trustee positions:

Please send the following questions filled out to:

Please note: We have additional meetings with cavos but at this time they are not mandatory for trustees. (trustees may be welcome to come along to some of them, or all at a later date).

Required information via email or post. 
POST: Please request corresponding postal address by calling 07721656764 on Mondays OR Fridays, 11am-4pm.
Suggestive advice line open from 10am-5pm on same days.

(The following information is mandatory whether the applicant is known by us or not.)



*If question is starred, it is mandatory. 
(If you do not have a landline, please state in answer so question has been answered, however you must have atleast one mobile or telephone number you can put down so we can contact you.)



*Full name:

*Marital Status:

*Date of birth:

*Address and postcode incl town and county:

 Phone numbers:

*Landline:

 Mobile:

*Do you have SPD?

*(only if answered yes to previous question) 
When did it occur, date occured mm/yy and if pregnant please state in weeks.

*Other conditions:

*All aids you use: e.g crutches...

*How many children do you have?

*Which child (if during pregnancy) did you develop SPD?

*What interest do you have in the charity your applying for?

*What, in your own words, does this charity do?

*Why do you want to be a volunteer or trustee for support pelvic dysfunction?

 Email address:

*Do you work?

*If you work how many hours a week?

*What qualifications do you have?

*What work experience do you have?

*Have you completed any 1st aid courses, if so when, where and what was issued?

*Have you completed the workbook for Vulnerable adults, if so when and where?

*(This question only for trustee applicants) 
 Can you attend 3 mandatory meetings a year?

*What other time (excluding meetings) can you offer the charity?



Volunteers will be welcome to join in meetings if they wish at a later date.

3 meetings a year is mandatory for all trustees, however there may be additional meetings called to discuss important matters as they arise.

This is a start up charity, but will at all times be professionally run.



Thank you for your application and interest.


This is information needed from all people interested in volunteering or becoming a trustee.







Kind Regards,


(On behalf of)
Support Pelvic Dysfunction