PGP / SPD My story:

 💔 After spending a full year supporting this event, I promoted it, interacted with their posts, planned extensively, invested money, and made sure I had a safe space (a tent) to manage my autism. I even left them their only positive review — which I’ve now deleted. I was hopeful. But in the end, none of it mattered. My disability ID, walking stick, visible lanyard… completely ignored. Accessibility was denied. I was mistreated, triggered into a POTS episode, and offered only blame instead of care. And I’m now waiting for a refund. If you're disabled, excitement about events comes with risk. We put in triple the effort just to be included — and too often, we’re met with ignorance, exclusion, or outright harm. I hope no one else ever has to endure what I did. Lessons can be blessings, I suppose — but right now, the only lesson I see is this: some people will choose bullying over empathy every time… and they’ll do it proudly. Sarah Wingfield ❤️ Independent Disability Advocate | Acce...

Well after having me in the system over 3 years and missing me out, i finally got an initial assessment with one pain management health psychologist (i will call A) when the referrel was made to psychologist B. After listening to me and seeming to want to help A stated that A would be having a meeting with B in 3-4 weeks and will be in touch afterwards. Having previously felt suicidal and still do when i have times i feel really low or have had major problems, i discussed options with A and A stated that they have no services to help anyone who are suicidal at any time and that the person should call 999 or visit A+E when feeling suicidal. This really hurt me as i was sent to A+E recently with PCOS -potentially- cyst pain / gynae related pains in my right side, and had been dealing with a specific dr who said he would operate when i was no longer fat. If i am honest i am not Fat, i am a little overweight but my BMI states that i only slightly obese. Anyway i lost some 2 stones an...

PoTs: Well i have found out that i have another condition linked with Hypermobility Syndrome, via a Hypermobility Charity known as HMSA. Its part of Hypermobility in a way and I have often wondered why i get blurred vision, problems swallowing dry chips and food and having really low blood pressure at times, mainly after eating and after standing. Here is the condition and information posted on Wikipedia about it, its known as PoTs: (long information to come:) "Postural orthostatic tachycardia syndrome ( POTS , also postural tachycardia syndrome ) is a condition of dysautonomia , [ 1 ] more specifically orthostatic intolerance , in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia . Several studies show a decrease in cerebral blood flow with systolic and diastolic cerebral blood flow (CBF) velocity decreased 44% and 60%, respectively. [ 2 ] Patients with POTS have problems maintaining hom...