Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 16 February 2011

SPD Awareness Campaign - WE NEED YOU!

To raise awareness of the new charity www.supportpelvicdysfunction.co.uk we need YOU to help!

Image:  



Facebook & OTHER social network Users: Please REPOST the business card image to your profile, either tag friends or post on peoples profiles, it takes a few minutes but helps many SPD sufferers that are suffering in silence! Please include this message "www.supportpelvicdysfunction.co.uk help in the SPD awareness campaign by new England Charity Support Pelvic Dysfunction by REPOSTING this or TAGGING friend!"

Please help our awareness campaign!

www.supportpelvicdysfunction.co.uk

Email: Please email this image to your friends with this paragraph (copy and paste) :

"1 in 4 pregnant women develop SPD, many are undiagnosed and many don't know they have SPD. Stop the suffering in silence by spreading the word as part of a raise awareness charity campaign started by Support Pelvic Dysfunction, a new England charity! Yet another thing to be proud of! It takes a few minutes to pass this email on to friends, but it helps hundreds of women that are suffering in silence, your mothers, sisters, daughters, nieces, and more will have probably had, has or will probably develop SPD at somepoint in their life. HELP prevent SPD becoming a permanent disability for women by spreading the word!"

 E-mailing takes a few minutes but helps many SPD sufferers that are suffering in silence!

Please help our awareness campaign!

www.supportpelvicdysfunction.co.uk



Thank you to all the emails I have received to spdcharity@hotmail.co.uk within hours of setting up the site i have received thank you emails and emails from sufferers who i am proud to have been able to help and support, thanks to ALL of YOU who are spreading the word!

We may not have charity status as we are NEW but we are helping MANY people who are your Wives and Girlfriends! Your Mothers, Daughters & Friends! Women from all over England have contacted us for help, and even international sufferers NEED US!

Please keep on spreading the word and helping more and more sufferers!

The support group I have ran for the last 2 years opened my eyes to how much we NEED this charity! I cannot sit back and let people suffer like we have! Let's do something about it, and NOW is the chance!

THANK YOU!

Saturday, 12 February 2011

SPD Charity ONLINE!!

As many know i have been trying to start a charity for SPD for almost 2 years now! It's been a long time and a lot of research later here we are.

I need to state that the charity will be and is in no way affiliated with this blog page i set up and the facebook group. I will be running it as a seperate support site. Meanwhile while we wait for things people are welcome to use this site and the faceook group still.

The charity website and name is http://www.supportpelvicdysfunction.co.uk and is online and working :)

I have less than 12 months to raise the required 5k so i can register for charity status, meanwhile gather some trustess and get everything else organised.

I have high requirements for the trustees, CRB checks, they need training or experience in confidentiality, customer support and/or customer services, data protection act awareness, no secrets workbook for vulnerable adults, counselling and related liabilities, and much more.

Importantly i need people i can trust and who will help guide the charity and funding in the right directions, supporting all my aims and ideas for the charity.

You are more than welcome to share this charity address as we will be enabling online donation facilities soon and we need as much awareness as we can get!

We appreciate all the help we have received up until this point and i hope that we can be helped now through this most important stage!

Thank you to all who have supported us, read this, raised awareness and more and thank you to all who are and still do. x

Tuesday, 1 February 2011

HAPPY SPD AWARENESS DAY!

♥ HAPPY SPD AWARENESS DAY ♥ TO SPD SUFFERERS EVERYWHERE! -GO TO http://pgpandspd.blogspot.com/

THIS is currently happening on Facebook.

1st FEBRUARY is now officially SPD AWARENESS DAY for all associated with this blog and the support group i run and will also be affiliated and used on my charity officially as an important way to help other SPD sufferers that may not know about this site or the support group and will need help!


1 in 4 women get SPD do not forget that! 20% get it so severe and are likely to need wheelchairs! And there are people with underlying conditions like me who develop SPD during pregnancy and it disables them more for life, due to being caused by the underlying condition!


Once you develop SPD you are so likely to get it again, not just in 2nd pregnancies! BUT also when you need smear tests, yup things like that, even during sex!


Thats why i am here! And i would love to declare my charity up and running but someone is coming to discuss that with me on thursday!


In the meantime I am here to help with this site and on facebook's support group where sufferers can PM me to get further help! I have helped so many SPD sufferers and I am here to help further!


So lets start raising awareness, anyone who sees this who has a facebook account, please make your status :


♥ HAPPY SPD AWARENESS DAY ♥ TO SPD SUFFERERS EVERYWHERE! -GO TO http://pgpandspd.blogspot.com/


 NOTE:
THANK YOU TO ALL WHO ARE DOING THIS, AND INVITING PEOPLE TO THE SUPPORT GROUP AND MORE! WITHOUT YOU PEOPLE WOULD NOT BE HELPED! <3

THIS DAY IS DEDICATED TO ALL SPD SUFFERERS WORLDWIDE WHO DESERVE RESPECT, TO BE BELIEVED, TO BE HELPED, TO HAVE PEOPLE TO SUPPORT THEM, TO HAVE GENUINE FRIENDS WHO GENUINELY CARE AND WILL STICK BY THEM EVEN IF THEY DEVELOP IT SEVERELY AND END UP IN A WHEELCHAIR, WHEELCHAIRS DO NOT DEFINE WHO PEOPLE ARE AND WE SPD SUFFERERS ARE GENUINE PEOPLE, WE ROCK DONT WE!

WE ROCK BECAUSE EVERYDAY IS A CHALLENGE - IT DOESNT MATTER IF YOU HAVE MINOR OR MAJOR SPD, IT STILL EFFECTS OUR SELF ESTEEM, OUR MOBILITY, AND OUR ATTEMPTS AT DOING EVERYTHING WE WANT TO AS A MAM AS SOME OF US CANNOT FULFILL OUR DUTIES BUT WE WILL NEVER FAIL OUR CHILD(REN).

JUST BECAUSE WE CANNOT DO CERTAIN THINGS FOR OUR CHILD(REN) DOES NOT MEAN WE HAVE FAILED THEM BECAUSE WE TRY TWICE AS HARD AS OTHER PEOPLE TO DO THE THINGS WE DO AND WE LOVE OUR CHILD(REN) VERY MUCH!

SO THINK OF US ALL TODAY, THINK ABOUT THE ONES WHO CANNOT USE STAIRS, WHO CANNOT PICK UP THEIR CHILD(REN) !

THE ONES YOU DO NOT BELIEVE ARE ILL WITH SPD BECAUSE IT IS NOT A VISUAL CONDITION!


TO WOMEN & MOTHERS EVERYWHERE, THIS DAY IS FOR YOU!