PGP / SPD My story:

..I havent wrote in this for a long time as I have been struggling to come to terms with the fact I am now disabled for life. I have hypermobility syndrome and I keep seazing up and cannot move, we now have carelink. (this caused my severe SPD) Something traumatising happened to me at a local hospital to the extent i have to vent about it, i need to talk about it and i need to get over it! (update urgently, i have just heard an answerphone message from the dr stating her name askign if my husband can come to a and e as i am being violent and aggressive to members and staff and the public and can he come urgently please, i hope they have cctv please God let them have cctv!!!) Phoned the police and they said i need to complain directly to the hospital...so I am going to do that, I notified icas and p.a.l.s. already and just waiting for some help... How can she do this to me??? I was immobile left on the floor screaming for help...... i am shaking, i just want to be left al...

It's been a while since I updated the blog, that is because we have now moved house as we had to and we have been waiting for our broadband to be reactivated. I have become depressed due to the disability I now have to 'put up with' and got myself a psychiatric assessment as I was also sick of health professionals not taking me seriously and acting like I could just walk when I really cannot. I have accidentally tried as I have been half asleep or in a world of my own, and my body immediately reminds me that I cannot and I will suffer for it :( The diagnosis? That I am quite optimistic despite the situation and my concerns are for my baby to make sure my baby has the best he can have, also that the problems I am facing are very real and not psychosomatic and that anyone who would have to adapt to such a severe disability despite the cause would feel the same. This has also been confirmed by social services and my health visitor was fantastic, a great shoulder to lean o...