PGP / SPD My story:

EDS, Hypermobility and hEDS/EDhS affect everyone differently—even when we share the same diagnosis. Many of us experience similar symptoms and familial patterns, but our day-to-day realities can vary hugely. This is just one version of how EDS can show up in someone’s life. For example, I don’t have flat feet—but I’m affected by nearly everything else on this list, and more. I'm proud to share this to raise awareness, because dynamic disabilities and invisible illnesses aren’t something you can see. You can't diagnose us with your eyes. So I ask you—look beyond the photo. Think outside the frame. See the whole picture. Thank you for taking the time to read. If you know someone with an invisible illness, why not share this with them? Let’s remind them: You are loved. You are seen. You are not alone. With love, Sarah Wingfield ❤️ Independent Disability Advocate #DisabilityInclusion #StrongerTogether #DisabilityAwareness #DisabilitySupport #DisabilityRights #ChronicIllnessWarrior ...

Reference from: http://ghr.nlm.nih.gov/condition=ehlersdanlossyndrome Please note: Some links may have been disabled as it is a quoted extract which copyrights all belong to the reference link above and at the bottom, all rights reserved to original copyright proprietor. "Reviewed May 2006 What is Ehlers-Danlos syndrome? Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. Defects in connective tissues cause the signs and symptoms of Ehlers-Danlos syndrome, which vary from mildly loose joints to life-threatening complications. In the past, there were more than 10 recognized types of Ehlers-Danlos syndrome. In 1997, researchers proposed a simpler classification that reduced the number of major types to six and gave them descriptive names: the arthrochalasia...