PGP / SPD My story:

Help us someone... Some one please help me, as i am suffocating from the system we have in place, a system in which is breaking me as a person as i am already broken as a mother as my son has cancer, this is such an emotional suffocation of hurt for my son and the wish i could change places with him, the hope, our miracle that is our son, can survive and the maliciousness of humankind that has shown its ugly head at a time our family should be supported, not attacked, could be somehow hidden from our son, so we can protect him from it, but it is him that suffers with us. We should not be investigated or have a child protection conference for a child that is already protected by my husband and i, and his grandparents. I would DIE for my son, i would take a knife, a bullet, anything for my son to be able to live, even if for only a second longer than god has planned, because my son IS my life. He IS our life, and they are all asking us to forget it is happening, put it in the back...

After the birth things were not so good, the nurses on this ward didn't understand SPD too much. ONE THING I WILL THANK THEM FOR: They let my husband stay all 8 days I was in hospital with having my baby. He slept on an airbed on the floor, BUT I DID NEED HIM as the staff were not equipped for my SPD and couldn't move me and didn't understand the SPD. When we first went in a lovely nurse said that my husband was there to support me and not insured or authorised to be my carer there and that the hospital were responsible and my care were in their hands. Things went downhill from here. 1st day after birth they made me get out of bed and try and have a shower during visiting times too 6:30-7:30pm when my parents were outside!!! I was screaming!!! Really screaming!!! This affected me really badly and I was in agony. Later on there was nights where I had to have gas and air and really struggled. I worked with my husband to try and get mobile, and all my efforts were not recorde...