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Showing posts with the label disability advocacy

I Emailed the Prime Minister to Demand Action on Systemic Ableism:

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I Emailed the Prime Minister to Demand Action on Systemic Ableism I emailed our Prime Minister because I can already see disabled people being targeted. Our community deserves to be supported—not blamed, punished or harmed further. Disabled people face entrenched barriers in employment, higher living costs and persistent discrimination, yet public debate too often treats us as the problem. This is what I sent: " Dear Prime Minister, I am writing to urge your government to take meaningful action against systemic ableism and create stronger incentives for employers to recruit, retain and promote disabled people. Disabled people continue to encounter significant barriers to employment, including inaccessible recruitment processes, discrimination, inadequate workplace adjustments and assumptions about our abilities. Even when disabled people secure paid employment, many experience lower pay and fewer opportunities for progression. Disability also brings substantial additional living c...

Sunflower Lanyard Matters:

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"Should people really have to verify they're disabled by wearing a sunflower lanyard?" Me: No, but considering some people seem to think my walking stick is a fashion accessory, it doesn't hurt to remind people that they can't diagnose invisible conditions, fractures, dislocations, internal swelling, or any other medical condition with their eyes. People can be incredibly ignorant. If wearing a Sunflower Lanyard helps remind others that not every disability is visible and encourages a little more patience and respect, then that's no bad thing. Respect shouldn't have to be earned by proving you're disabled, but until society stops judging people by appearances, anything that helps challenge those assumptions has value. Sarah Wingfield ❤️  #sunflowerlanyard #dynamicdisabilities Alt text: Selfie of a woman with long pastel pink hair wearing pink-tinted glasses and making a peace sign toward the camera. She is wearing a green Sunflower Lanyard around her n...

Growth starts with Accountability:

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Remember: Growth starts with accountability. I have never been diagnosed with, or experienced, paranoia. I also experience no side effects from my prescribed medical cannabis, none, which I use exactly as directed to manage chronic pain. My treatment is well documented and monitored by the medical professionals involved in my care. Ignorant assumptions are part of the problem. When someone leads with assumptions instead of curiosity, facts rarely change their mind because they weren't interested in the facts to begin with. Yes, I'm still annoyed about yesterday. I'm human, and I'm doing my best. That's all any of us can do. Sometimes it's okay to admit you got something wrong. I know I do. I'm proud I fix myself when I'm the issue and when others don't want resolution, like I do - I step away. Accountability means caring enough to reflect, apologise when necessary, and do better.  An apology isn't just words; it includes changed behaviour.  Real...

High Force Waterfall: When Accessibility Is About More Than Ramps

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High Force Waterfall: When Accessibility Is About More Than Ramps After the email I received today, I have made the difficult decision that I will no longer be visiting High Force Waterfall while I remain disabled. That is not a decision I wanted to make. I love nature. I love our countryside. I believe disabled people should be able to enjoy these beautiful places just as much as anyone else. But I also deserve to be treated with dignity when I do. The outcome of my complaint has left me feeling that I am simply not welcome there as a disabled visitor. What upset me most wasn't just the original interaction itself, but that, after a formal investigation, I was left feeling that my experience had not been properly understood. This experience was never about wanting special treatment. It was about wanting to be treated with basic human respect. Before anyone had asked why my partner was carrying a foldable chair, it was refused. Before anyone knew it was a disability aid, assumption...

Foodvisor:

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Foodvisor: One month. One stone. 🎉💚 I'm so proud of myself! Living with AuDHD, EDhS, POTS and chronic pain means consistency can be incredibly difficult. Executive dysfunction, pain, fatigue and fluctuating energy levels can all make healthy habits much harder to maintain. That's why losing 1 stone in a month feels like such a huge achievement for me. 🥹👑 I've been using the Foodvisor app to help me track my food, stay accountable and make more mindful choices. It's really helped me build healthier routines without feeling overwhelmed. This isn't about perfection—it's about improving my health one step at a time and celebrating progress, however big or small. If you're on your own health journey, keep going. Every positive choice counts. 💚✨ Sarah Wingfield ❤️  Actor • Author • Advocate  KawaiiDollDecora.uk #WeightLossJourney #Foodvisor #HealthJourney #AuDHD #Autism #ADHD #ChronicIllness #ChronicPain #hEDS #POTS #DisabilityAwareness #Neurodivergent #SelfC...

Mr Flagman:

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Mr Flagman 🏴󠁧󠁢󠁥󠁮󠁧󠁿 (Poem by Sarah Wingfield) Mr Flagman, wrapped in red, white and blue, Shouting, "Freedom!"—but only for you. Proud to be British, you cry, uncensored and loud, Yet silence the voices that won't join your crowd. You claim to protect women, children, the weak, Until they disagree, until they dare speak. Then come the assumptions, the rumours, the lies, A story invented before truth even tries. You fill in the blanks with narratives made, Where facts disappear and fiction gets paid. A joke about flags, a wink and a grin, While threats hide beneath the humour within. "Let's find where they live." "It's only a laugh." Yet somehow it's always The vulnerable who feel the aftermath. "Come join the campaign." "Stand with the crew." But all that's required Is agreeing with you. The flags aren't for unity, They're banners of fear, A warning to anyone Who doesn't belong here. Inclusion is we...

SAINT TROPEZ CELEBRITY MAGAZINE:

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SAINT TROPEZ CELEBRITY MAGAZINE: https://www.sainttropezvip.com/post/sarah-wingfield-championing-inclusion-creativity-and-community-through-advocacy-and-art I am incredibly proud and grateful to be featured in Saint Tropez VIP Celebrity & Fashion Magazine! 💖✨ To have my work recognised on an international platform is something I never imagined during the years I was bedbound.  Today, I'm honoured to be recognised not just as a music artist, but also as a disability advocate, community leader, actress, filmmaker and creator. This feature highlights my journey, my advocacy for disabled communities, my creative work as K•Doll, and my belief that kindness, inclusion and creativity really can change lives. A huge thank you to Saint Tropez VIP Magazine for sharing my story. I'm excited to see where this journey continues to lead. If you'd like to read the full feature, you can do so via the link at the top! Thank you to everyone who has supported me over the years. Every opp...

Nature and Slowing Down:

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Nature and Slowing Down: Since my main account has been down, I've found myself spending far more time in the real world instead of constantly being online sharing posts and supporting everyone else. Ironically, it's reminded me how important it is to support myself too. I've been slowing down, taking time to rest, getting outdoors, spending quality time with Peter, and appreciating the simple things again. ❤️ We recently had a picnic at a beautiful nature reserve before heading to the cinema to watch Scary Movie 6, and honestly... it was brilliant. 😂🍿 It's made me realise that no matter how many people you help, there will always be a small number who choose negativity. You can't control that, but you can control where you invest your time and energy. I'm genuinely thinking about deactivating my main account and slowing everything down for a while. Life is happening outside of social media too, and I don't want to miss it. For the first time in a long tim...

I used to believe this...

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I used to believe this . Up until recently. I used to think that if people lied, harassed, stalked, threatened, smeared, or targeted me, the answer was to correct them, defend myself, explain, provide evidence, and make them see reason. What I've learned is that some people don't want resolution. They want attention. They want a reaction. They want to know they're taking up space in your head and stealing your time. Not anymore. These days, I block, ignore, log, and report. I have a community to support, advocacy work to do, a magazine to publish, a young person to mentor, family to love, and a life to live. I'm not wasting my energy arguing with people who have already decided who they want me to be. The truth doesn't need me to repeat it every five minutes. People with logic, common sense, and critical thinking skills will look at the evidence and come to their own conclusions. Those are the people I want around me anyway. In a strange way, abuse often reveals who...

The body I live in - 2022 writing:

The body I live in. Written by Sarah Wingfield / Kawaii Doll Decora   The rocky terrain keeps making my ankles twist as I find it hard to gain my footing. Why did my body become this clumsy, tight and painful suit I have to carry like a lead weight in this world? Whilst almost everyone around me floats so effortlessly and smoothly through life? I sigh. Every step I take creates pain, swelling, tenderness, I don't ever remember doing any sports where I never had earache or pulled muscles, tendons or soreness. It went unseen for so long, job failure after job failure with no answers to what was making my health as such. I had people looking at me like I'm the same as them and dismissing me for not being able to perform or operate as robotically as them. When in reality I worked much harder than most, liked to keep busy but needed days and days off where I lay in pain or swelling and my body had yet again let me down. I am disabled. Those words still hit me hard, like a knife jol...

Realising...

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Realising You're Disabled Isn't a One-Time Event One of the things many non-disabled people don't realise is that coming to terms with disability isn't something that happens once. It happens over and over again. Sometimes it's because a condition worsens. Sometimes it's because you discover a new limitation or barrier you hadn't encountered before. Sometimes it's remembering something you used to do without thinking that is no longer accessible to you. Other times, it's simply being reminded that the world wasn't designed with your needs in mind. Disability can involve a constant process of adjustment, adaptation, and grief. Not necessarily grief for who you are, but grief for opportunities lost, independence changed, plans altered, or a life that looks different from the one you imagined. Many disabled people continue to push forward because we have no choice but to. We learn, adapt, advocate, and find new ways to navigate a world that often cr...

Living With Dynamic Disabilities: The Reality Behind the Good Days:

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Living With Dynamic Disabilities: The Reality Behind the Good Days: One of the most frustrating things about living with a dynamic disability is that people often judge your entire life based on a single moment they happen to witness. If they see you smiling, attending an event, advocating, creating content, going shopping, walking a short distance, or enjoying yourself, they assume you're fine. What they don't see is what happened before that moment, or what happens afterwards. They don't see the chronic pain that keeps you awake at night. They don't see the fatigue that can leave you needing days to recover from a few hours of activity. They don't see the dizziness, brain fog, sensory overwhelm, anxiety, mobility struggles, joint instability, or the countless calculations disabled people make every day just to participate in society. As someone living with multiple disabilities and chronic health conditions, my abilities are not the same every day. Sometimes they...

Accountability:

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Accountability: Sarah Wingfield speaks on accountability, apologies, misunderstandings, and moving forward. 🎙️ Stitch with @New Mentalities | Motivation Accountability isn't about perfection. It's about recognising when harm has been caused, taking responsibility for our actions, and being willing to learn and grow. Misunderstandings happen, but honest communication and genuine apologies can make all the difference. Sarah Wingfield  Actor • Author • Advocate  KawaiiDollDecora.uk #Accountability #CommunityWork #Apologies #Misunderstandings #Growth #PersonalDevelopment #Motivation #Community #Kindness #Learning #SarahWingfield #MentalHealth #Advocacy #MovingForward #Respect Alt text: A video of Sarah Wingfield discussing accountability, misunderstandings, apologies, and personal growth while responding to content from New Mentalities. The video focuses on taking responsibility for actions, resolving conflict constructively, and encouraging respectful communication within commun...

Organise and PIP:

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Organise and PIP: I've just voted for Organise to continue its fight to protect PIP and challenge politicians who continue to misunderstand what it actually does. PIP is not an out-of-work benefit. It helps disabled people stay independent, access support, remain in employment, volunteer within their communities, attend appointments, manage daily living, and make choices about what works for them. For many of us, PIP is the difference between isolation and participation. It provides the flexibility to meet individual needs because disability is not one-size-fits-all. Putting pressure on politicians at a national level is no small task, but collective action works. Last year, disabled people, carers, allies and campaigners helped force the Government to rethink immediate plans to cut PIP and ensured a consultation was launched. More than 100,000 people in the Organise community are continuing to mobilise to protect PIP and other vital lifelines. Every voice matters. Disabled people ...

The positive side of Smear Campaigns:

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The Positive Side of Smear Campaigns: As I continue to deal with unwanted attention, rumours and people forming opinions without knowing the full story, I've realised there is one positive outcome. Smear campaigns reveal people. Not me. Them. I've watched some people rush to judgement, repeat gossip and ignore evidence. I've seen individuals excuse threats, harassment and harmful behaviour because it suited their narrative. But I've also seen the opposite . I've seen kindness. I've seen loyalty. I've seen people check in on me, ask questions, offer support and refuse to join the mob mentality. The people who stayed, listened and showed compassion are the people worth keeping. A smear campaign doesn't cost you your people. It reveals who your people are. And for that, I'm grateful. ❤️✨ Sarah Wingfield ❤️  Actor • Author • Advocate  KawaiiDollDecora.uk #SarahWingfield #Advocacy #AutisticAdult #AuDHD #DisabilityAdvocate #TruthMatters #ChooseKindness #...

Kindness...

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Kindness... My ex-abuser was handed court papers yesterday. At the same time, I find myself suffocating under the weight of other people's judgement, assumptions, lack of fact-checking, and lack of compassion. And honestly? I'm tired. Can we have some kindness back, please? Because behind every profile, page, blog, business, group, and public post is a human being. A real person. 🙏🏻✨ A person carrying things you may know nothing about. You don't know what someone is facing behind closed doors. You don't know what battles they're fighting, what trauma they're processing, what legal proceedings they're navigating, what health issues they're enduring, or how much strength it took for them to simply get out of bed that morning. Yet so many people seem comfortable judging, criticising, gossiping, and piling on without ever stopping to ask whether they're being fair. As someone with ADHD and autism, I feel things deeply. Disrespect, dishonesty...

The court of social media has adjourned:

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The #CourtOfSocialMedia has spoken. #Judge #Jury and #Executioner ...and I'm still proud of me. ❤️✨ This isn't new to me. 🙏🏻✨ I'm neurodivergent. I've spent much of my life watching people rush to conclusions, make assumptions, and form opinions before all the facts are known. I've seen victims blamed. I've seen rumours spread faster than evidence. I've seen narratives become accepted as truth simply because they were repeated often enough. Abuse is often loud. Self-defence can get lost in the noise and judged as harshly as the behaviour it is responding to. The world isn't always fair. I blog about both my highs and my lows because I believe in transparency and authenticity. I want people facing similar hardships to know they are not alone. I've been accused of having an "agenda" more times than I can count. If supporting local people, advocating for disability rights, amplifying community voices, and speaking against abuse is an agenda,...

What To Do When You're the Target of a Hate Campaign:

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What To Do When You're the Target of a Hate Campaign By Sarah Wingfield. Most people imagine hate campaigns as something that happens to celebrities, politicians, or people in the public eye. The reality is that they can happen to anyone. A volunteer. An advocate. A business owner. A community organiser. A disabled person speaking up. Someone who simply challenged harmful behaviour and refused to back down. Over the years, I've experienced organised hostility, online pile-ons, false allegations, misinformation, character attacks, stalking behaviours, harassment, and attempts to isolate me from communities I cared about. What I've learned is that hate campaigns often follow recognisable patterns. Understanding those patterns can help people protect themselves and avoid becoming part of the problem. What Is a Hate Campaign? A hate campaign is a sustained effort to damage someone's reputation, credibility, relationships, opportunities, or wellbeing. Sometimes it is highly ...

Things Disabled People Would Love to Hear:

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Things Disabled People Would Love to Hear For many disabled people, inclusion is not measured by grand gestures, expensive policies, or awareness campaigns. It is measured by the small moments. The everyday interactions. The conversations that either remind us we belong, or remind us that the world was never designed with us in mind. As a disabled advocate, ambulatory wheelchair user, and someone who has spent years navigating inaccessible systems, I can tell you that the words people remember most are often the simplest. Not because they are extraordinary. Because they are rare. "What are your accommodation needs?" This question immediately shifts the focus from assumptions to understanding. Too often, disabled people are expected to fit into environments that were never designed for them. We are expected to adapt, struggle quietly, or repeatedly explain ourselves. When someone asks what adjustments would help, they are sending a powerful message: "Your participation ma...

Polite Notice: Administration of Community Spaces:

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Polite Notice: As someone who moderates community spaces, I wanted to take a moment to clarify the standards I try to uphold and the values that guide my decisions. Communities work best when people feel safe to participate, share their views, ask questions, and engage in discussion without fear of being attacked, ridiculed, or harassed. I welcome: ✅ Respectful disagreement ✅ Healthy debate ✅ Different political viewpoints ✅ Constructive criticism ✅ Accountability ✅ Safeguarding ✅ Community safety ✅ Open discussion ✅ Treating people with dignity, even when we disagree What I do not support is: ❌ Personal insults and name-calling ❌ Attacks on someone's character, intelligence, appearance, disability, or mental health ❌ False allegations presented as fact without evidence ❌ Bullying, harassment, intimidation, or targeted hostility ❌ Encouraging or justifying abusive behaviour towards others ❌ Attempts to divide communities by creating "us versus them" mentalities ❌ Mocking ...