Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Thursday, 22 March 2012

Focus on the Positives no matter what life throws at you!

We have moved home to a new property that meets my medical needs and we couldn't be happier here. Our son is blossoming into a little boy and he will be starting nursery next year! *shocked face here*

Where! Oh Where! Did the years go?

Feeling the same? I know how you feel!

We are making new friends, old friends are moving on, and we are just following the path that life is leading us right now, it is not all sunshine and rainbows, we do have obstacles surpassed and more obstacles to conquer, but we prefer to focus on the positives and we find the negatives usually get sorted out when we're face to face with them. So it is nice to focus on the positives and be cheery and chirpy and looking forward to many years to come, growing old together as man and wife, watching our son grow up to be a man and filling our parents shoes when we reach their age and our son has a life of his own. 

We all grow, we all move forward, and life is quite short despite it being the longest thing we do, so it's better to focus on the positives, focus on family, focus on the things we enjoy that include photography and art, sharing our life with our friends, new friends, old friends, past and future friends and it's better to forget the negatives that we have conquered and not think about the negatives we have yet to conquer but think about each other, our aspirations, dreams and inspirations. 

Creating new art and new work. 

And celebrating times of celebration whenever and as much as we can, even if you cannot find much to celebrate, celebrate family, being alive, being here, having had the chance to experience parenthood. Health not wealth, as you cannot buy happiness and you cannot buy love and you cannot buy good health or any of things my husband and I value. 

We want to live a humble, comfortable, happy life. Nothing more.

And right now, we are grateful to be here, at this stage in life, with a son to cherish.

What more could we ever want? 

Happiness is something we never take for granted and we appreciate, and it is not always easy but we work hard at things and that's taking pride in what we do, passion for what we do, and loving what we do, listening to people and understanding one another.
" It's not the conflicts or problems in life people should dwell nor focus on, but in fact HOW they are resolved that is most important. With Respect and Understanding and sometimes Compromise. " -This is one of MY own quotes I have shared for you to enjoy.

 Quoted since 2007. A quote I swear by. I think it puts things into perspective for a lot of people.

:)