PGP / SPD My story:

PLEASE SUPPORT ALL SPD SUFFERERS PARTNERS THAT BECOME 24/7 CARERS! PLEASE TAKE 2 SECONDS TO SIGN THIS PETITION AND VERIFY YOUR SIGN UP BY CLICKING THE LINK THATS SENT TO YOUR EMAIL! PLEASE REPOST THIS ON YOUR YOUR SOCIAL NETWORKING SITES AND RAISE AWARENESS! AND DON'T FORGET TO SIGN THIS IMPORTANT PETITION , THIS WILL HELP FAMILIES LIKE MINE GET WHAT WE DESERVE!!! http:// epetitions.direct.gov.uk/ petitions/20542 The Government should increase Carers Allowance to reflect the amount that carers save the nation by not relying on the NHS CARERS ALLOWANCE IS CURRENTLY AROUND ONLY £55 A FORTNIGHT FOR A CARER WHO WORKS 24/7 WITHOUT ANY BREAKS BECAUSE THEY CARE F OR A RELATIVE LIKE MY HUSBAND DOES. CARERS THAT WORK 9-5 AND NIGHTSHIFTS FOR NON-RELATIVES GET £800-£1000 A MONTH!!! (ANNUAL SALARIES FROM £12K-£15K AND UP!) HUGE DIFFERENCE FROM £110 THE CARERS ALLOWANCE GIVES!!! P LEASE TAKE 2 SECONDS TO SIGN THIS WITH YOUR NAME, EMAIL AND ADDRESS!!!! AND REMEMBER TO LOGIN TO YO

Applicants for volunteer and trustee positions: Please send the following questions filled out to: help@supportpelvicdysfunction.co.uk Please note: We have additional meetings with cavos but at this time they are not mandatory for trustees. (trustees may be welcome to come along to some of them, or all at a later date). Required information via email or post. POST: Please request corresponding postal address by calling 07721656764 on Mondays OR Fridays, 11am-4pm. Suggestive advice line open from 10am-5pm on same days. (The following information is mandatory whether the applicant is known by us or not.) *If question is starred, it is mandatory. (If you do not have a landline, please state in answer so question has been answered, however you must have atleast one mobile or telephone number you can put down so we can contact you.) *Full name: *Marital Status: *Date of birth: *Address and postcode incl town and county:  Phone numbers: *Landline:  Mobile

WE ARE NOT EQUAL TO ABLE BODIED PEOPLE, WE ARE NOT WORTH IT: I AM MORE THAN UPSET. How many more rights do we have to lose as disabled individuals? COURSES AVAILABLE IN MY AREA: are FREE for people on JSA, and ESA (those worthy as they are capable to work) but NOT disabled individuals or disabled charity workers or volunteers. WE DISABLED HAVE TO PAY, FOR A COURSE THATS JUST MIXED CRAFTS! £3/hr, but when we are not receiving much in the form of benefits and are not able to work, how do we cope? This seems a small fee but it shortly adds up for those who cannot work, cannot improve their lives or financially progress. How do we meet other disabled people or MAKE NEW FRIENDS? In our area there are no DISABLED coach trips or meeting groups! (And especially not wheelchair accessible for any of the groups that do exist) I am working to set up the first SPD support group, if i ever get my own transport since there is no DISABLED TAXIS, and the only transport available

I know that living with SPD is difficult enough, but mix that with a joint condition and it is a whole new ball game. But, that does not mean that you cannot get the help you deserve.  http://www.hypermobility.org/   are a HMS Charity that has guided me through some of the tough times with HMS. If you become a member like i have, you receive lots of important and relevant information, and if your blessed to be in an area where they meet up, in which i am not, then you can discuss things with others who are in the same situation. I cannot update anything else as the Health Psychologist Department have not been in touch despite the fact that i was informed ONLY the Pain Psychologist Dept, have dismissed me. I am losing faith and losing patience and i am very grateful to be able to receive counselling yet again via my GP. But this counselling is not the psychology i need to be able to accept this disability to the full. Many women struggle accepting SPD, HMS and even if for

Well after having me in the system over 3 years and missing me out, i finally got an initial assessment with one pain management health psychologist (i will call A) when the referrel was made to psychologist B. After listening to me and seeming to want to help A stated that A would be having a meeting with B in 3-4 weeks and will be in touch afterwards. Having previously felt suicidal and still do when i have times i feel really low or have had major problems, i discussed options with A and A stated that they have no services to help anyone who are suicidal at any time and that the person should call 999 or visit A+E when feeling suicidal. This really hurt me as i was sent to A+E recently with PCOS -potentially- cyst pain / gynae related pains in my right side, and had been dealing with a specific dr who said he would operate when i was no longer fat. If i am honest i am not Fat, i am a little overweight but my BMI states that i only slightly obese. Anyway i lost some 2 stones an

PoTs: Well i have found out that i have another condition linked with Hypermobility Syndrome, via a Hypermobility Charity known as HMSA. Its part of Hypermobility in a way and I have often wondered why i get blurred vision, problems swallowing dry chips and food and having really low blood pressure at times, mainly after eating and after standing. Here is the condition and information posted on Wikipedia about it, its known as PoTs: (long information to come:) "Postural orthostatic tachycardia syndrome ( POTS , also postural tachycardia syndrome ) is a condition of dysautonomia , [ 1 ] more specifically orthostatic intolerance , in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia . Several studies show a decrease in cerebral blood flow with systolic and diastolic cerebral blood flow (CBF) velocity decreased 44% and 60%, respectively. [ 2 ] Patients with POTS have problems maintaining hom