PGP / SPD My story:

A daisy I picked today unexpectedly took me straight back to a moment in the past. My son was about 2½ years old, wearing his little Kermit backpack. He stopped playing football with his dad to very "secretly" (and very obviously!) bring a daisy over to his mam. At the time, I had pink hair and was using my wheelchair. What I didn't know then was that this would be our last ordinary day before the hospital appointments started and before his cancer diagnosis changed our lives. Today, holding this daisy, I could feel the sunshine again. The wind. I could see him in his little blue top with his short hair, proudly handing me a flower and telling me he loved me. He's in remission now, healthy, happy, and somehow taller than me. But for a moment today, I got to step back into that memory and hold it again. Some flowers are just flowers. Others are time machines. 🌼💛 Sarah Wingfield  KawaiiDollDecora.uk #ChildhoodMemories #CancerSurvivor #Remission #MotherAndSon #DaisyMe...

♿  International Wheelchair Day – 1st March. Today is International Wheelchair Day. And I need to say this properly — in my voice. Wheelchairs are not weakness. They are not surrender. They are not attention seeking. They are access. They are survival. They are freedom. I’m an ambulatory wheelchair user. Some days I can stand. Some days I can walk a little. Some days my hips dislocate, my nervous system crashes, my POTS flares and the ground might as well be lava. Energy is not a constant in a disabled body. Pain is not linear. Function is not fixed. And yet the judgement is constant. The looks when you stand up. The whispering when you park in a disabled bay. The muttering when you don’t “look” disabled enough. The hands that grab your chair without asking. Let me be clear — do not move someone’s wheelchair without consent. Ever. It is not a shopping trolley. It is not public property. It is an extension of our body. Ambulatory users get policed relentlessly because people are unc...

 Introduction to Sociability app: The Sociability app is a free mobile app that provides detailed accessibility information for businesses like restaurants and gyms, helping disabled people and others with accessibility needs find welcoming places to socialize and exercise. It uses crowd-sourced data, user reviews, and photos to give users detailed information on features such as entrances, interior spaces, toilets, and sensory accommodations. Founded by a wheelchair user, Sociability aims to make the world more inclusive by removing barriers and empowering people to make informed decisions about accessible venues.  I myself have downloaded this app, and encourage others in Newton Aycliffe and surrounding areas to install it too. We can upload pictures and information regarding accessibility issues and help inform our disabled and SEND communities as to what places are like and if they're autism-friendly, have steps or ramps and more! I've personally spoken to the creators of ...

Well right now I am on lot's of morphine. 2x 10mg of morphine slow release morphgesic tablets in AM and again in PM can be increased to 3 AM and 3 PM if needed and 4x 5ml of Oramorph allowed every 4 hours daily = 40mg Morphine. I have had to stop breastfeeding to do this when baby was 14 days old and it's really got to me, had plenty of tears and just gutted, miss it sooo much... BUT I am more use to baby like this as it allows me to be a little more mobile sometimes. Mainly I am completely immobile and my pelvis is constantly locking up but atleast morphine is helping. I cannot lie on flat surfaces and had to sleep on sofa for ages! I am only just in bed now by piling lots of pillows up and i mean 7 pillows in total and another one making it 8 cushions that goes under my knees. My pelvis still locks as I have not had my O.T visit yet and the pillows keep falling over etc... so i need something else to aid me with the bed height or I am stuck immobile completely and cannot even...

Had problems this morning with transport to acupuncture as the receptionist at physio hadn't acknowledged that I was in my own wheelchair and even though she confirmed (last time we were there) we needed a drop down back for wheelchair access, booked an ambulance that was not suitable for wheelchairs, had a ramp-drop down access but no wheelchair clamping facilities to transport me. I was in tears this morning. She did rectify it as I begged her to so I could get there and we did manage to get there so I am grateful however her apologies and attitude was very half-hearted, rude and negative and really upset my husband. Had acupuncture and got home, council called thankfully and is trying to sort out our council tax mysteries, so we were relieved. Then my husband was called to say he has lost his job so we got upset... again. My husband has had to apply for Income Support as carers allowance is no go as my DLA is pending and cannot go on JSA as he would have to bring me every fortn...

On the 06th August 2009, I was told my wheelchair may not be ready for up to 2 weeks, so I was lucky enough for a relative to go to the Red Cross and pay £20.00 to hire one for 6 weeks. (You get this back but they ask you to make a donation.) The relative brought it to my house and dropped me and the husband off in town. This is the first time I have been out of the house properly for ages and.. well.. it was nice :) We got fish and chips and sorted a few things that needed to be sorted out, out, and I am/was so happy to be able to see outside without being in extreme pain when moving. My husband pushed me everywhere despite me trying to attempt to steer the thing... that was funny as I couldn't quite manage to steer straight, so I am lucky enough to have someone there who is so wonderful and helpful and made today the PERFECT day. Its all the little things that happened today that made me feel so much better. Just the ability to go out for fish and chips, I felt on top of the worl...