Welcome to my PGP/SPD blog: Links and Info:

SPD is Symphysis Pubis Dysfunction.

PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)

I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.

The main websites I have found for you to look at now are:

The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:




(This is a charity support group here to help you as a sufferer.)


(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)

More websites you may find helpful:

NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.

Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


Link about DSP and SPD/breastfeeding.


More info on SPD and a link to a support forum to talk to others about SPD.


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.

Another suggested link that my be helpful: (Scotland)


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)

http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:


It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.

Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)

We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.

Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!

Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk

(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)

Please enjoy my personal story in the form of a blog below.

Wednesday, 7 October 2009

Life a Yo-Yo? You couldn't write this stuff!

Had problems this morning with transport to acupuncture as the receptionist at physio hadn't acknowledged that I was in my own wheelchair and even though she confirmed (last time we were there) we needed a drop down back for wheelchair access, booked an ambulance that was not suitable for wheelchairs, had a ramp-drop down access but no wheelchair clamping facilities to transport me.

I was in tears this morning. She did rectify it as I begged her to so I could get there and we did manage to get there so I am grateful however her apologies and attitude was very half-hearted, rude and negative and really upset my husband.

Had acupuncture and got home, council called thankfully and is trying to sort out our council tax mysteries, so we were relieved.

Then my husband was called to say he has lost his job so we got upset... again.

My husband has had to apply for Income Support as carers allowance is no go as my DLA is pending and cannot go on JSA as he would have to bring me every fortnight to attend for signing on and can only search for 3x 12 hour nightshift or the equivalent positions over the weekend.

Then... we got a call to say we have been offered a two bedroom council property which is fantastic but they are uncertain whether I could get a stairlift in or not. SOooooo we need to wait and see and I will ask my O.T to view it with us. It has radiators!!! yay!!! no more ducted air heating :)

Soooo we are indeed plodding along and in this mish mash of juggled circumstance we are hoping to get back on top and in control...soon.

Let's see if this SPD pain eases with the acupuncture, Physio said I may have better night sleep tomorrow night if not tonight and that I will have one more session before they review whether it is suitable or not.

*fingers crossed things work out*