Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Saturday, 17 October 2009

My birthing plan : to help you create yours:


(HEADER:) BIRTHING PLAN (MY NAME IS HERE) PAGE 1 OF 2.

D.O.B: --/--/---- BABY DUE DATE: --/--/----

NHS NUMBER: ----------- UNIT/HOSPITAL NUMBER: -------

CONSULTANT: (NAME HERE) MIDWIFE: (NAME HERE)

(HOSPITAL NAME HERE) HOSPITAL BIRTHING POOL


PLEASE NOTE: I HAVE SYMPHYSIS PUBIS DYSFUNCTION (SPD):

This means that the joints in my pelvis are unstable and painful and I need 24/7 care as I am in a wheelchair and immobile. Clexane injections daily due to stop at week 39: 25th November 2009.


There are certain things that are recommended and certain things that I cannot do during labour and birth; this is to avoid anything that may cause damage to my pelvic joints.

These are outlined in this birthing plan:


BIRTH AND LABOUR:


  • I am in a wheelchair and immobile due to SPD.


  • Clexane 20mg injections have been daily self-administered and are/should be stopped at week 39 in preperation for birth: 25.11.2009. (If it is before this date please ask if they have been stopped.)

  • It is highly recommended I labour in the Birthing Pool and deliver in the water: This is important so my pelvis can be supported at all times and allow me to open my legs and be able to be as mobile as possible for the birth.

  • A hoist is to be used to allow me to access and exit the birthing pool.

  • My husband, (NAME HERE) is also my registered full time carer and is to be present at all times, whatever is happening to me, this includes if a caesarean becomes necessary. (Please bear in mind that I am high risk of DVT.)

  • I wish for my husband and I, to be fully informed at all times about any decisions or discussions about me or my care.

  • I do not wish to have continuous foetal monitoring on admission or at any other stage, unless there is a strong clinical indication to do so.

  • I do not wish for students or any unnecessary person(s) to be present at any time.

  • I would like to use Gas and Air and massage (in birthing pool) as pain relief. Pethidine only if necessary and at no epidural at any time.

  • I wish to breastfeed my baby.

  • I wish my baby to be placed straight onto my tummy and close to me at ALL TIMES including when being cleaned and dressed straight after birth.

  • I have no objections to the injection Syntocinon or Syntometrine being given to me to help the womb contract.




(HEADER:) BIRTHING PLAN (MY NAME IS HERE) PAGE 2 OF 2.



IF A BIRTHING POOL IS UNAVAILABLE:

REMEMBER: I wish to breastfeed and cannot lie/be placed in certain positions.


  • I am high risk of DVT but would prefer to have a caesarean as normal birth is not possible due to the following:


    • I cannot open my legs very far and I need to avoid doing so (sometimes referred to as abduction of the legs.)

    • When lying I need to keep my legs together and I need a pillow between my knees.

    • I cannot stand for very long and cannot get into any asymmetrical position (e.g. standing on one leg, half kneeling, lying with one knee bent up etc.) Not even for seconds.

    • I find it painful to lie flat on my back and cannot open legs for examinations, so will need to be examined whilst side lying or on all fours (with no pain relief so I can explain at all times if a position is too painful.)

    • It is recommended I avoid forceps delivery or any intervention which involves the lithotomy position. If intervention becomes necessary I would like to have a caesarean.

    • I am happy to have an episiotomy only if necessary and if stitching is required it needs to be done by someone who can work whilst I am laid on my side or in a position that is not causing pain to my pelvis.


AFTERBIRTH AND AFTERCARE:


  • Vitamin K is to be administered by injection to my baby.

  • My baby is to remain close to me at all times. (High risk post natal depression)

  • I am very concerned about care after the delivery and whilst in hospital. I will need help with mobility, meals, self-care, caring for my baby and toileting. My husband is happy to provide this as my full time carer, however in any instance this is not possible I will need assistance with these. (If any person(s) at any time are unable to assist me with regards to my mobility, I will need alternatives such as a hoist or whatever else that can be used for immobility.)

  • I wish to breastfeed my baby.

  • I wish for my husband and I to be left alone afterwards when everything has been sorted, to bond with our baby.

  • I would like a cotbed that is bolted or if not possible, placed to the side of my bed, so I can lift my baby out to feed as I will not be able to get out of my bed unaided. I may also need a normal mobile cot to transport the baby and change the baby.

  • I will need all meals delivered to me as I cannot collect meals due to my mobility.


Thank you for your patience and understanding of my condition and birthing needs.

If you are unsure about anything please ask myself or my husband and we will be more than happy

to help you, in regards to SPD and the pain I am in.


Thank you