Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Thursday, 1 October 2009

OH! So help on the NHS is available is it???

"

Backache and pelvic joint pain

During pregnancy, ligaments become softer and stretch to prepare you for labour. This can put a strain on the joints of your lower back and pelvis, which can cause backache. As the baby grows, the hollow in your lower back may increase and this may also cause backache.
To avoid backache:

  • Avoid heavy lifting.
  • Bend your knees and keep your back straight when lifting or picking up something from the floor.
  • If you do have to carry something heavy, hold it close to your body.
  • Move your feet when turning round to avoid twisting your spine.
  • Wear flat shoes as these allow your weight to be evenly distributed.
  • Work at a surface high enough to prevent you stooping.
  • If you are carrying shopping baskets, try to balance the weight between two.
  • Sit with your back straight and well supported.

A firm mattress can help to prevent and relieve backache. If it's is too soft, a piece of hardboard underneath the mattress will make it firmer.

Massage can also help, or you might like to try a support corset, which can be prescribed by your doctor. Make sure you get enough rest, particularly later in pregnancy.

If your backache is very painful, ask your doctor to refer you to a physiotherapist. He will be able to give you some advice and suggest some helpful exercises.

Pain in pelvic joints
If during or after your pregnancy you have pain in your pelvic joints when walking, climbing stairs, turning in bed etc, you should ask a member of the maternity team for a referral to a manual physiotherapist, osteopath or chiropractor experienced in treating pelvic joint problems.

You may have a slight misalignment of your pelvic joints (at either the back or front) that is known as pelvic girdle pain (PGP) or symphysis pubis dysfunction (SPD). This affects a large number of pregnant women (up to one in four) and is usually treatable by gentle mobilisation techniques that are safe in pregnancy.

Early diagnosis and appropriate treatment will help minimise the pain and avoid long-term discomfort. If you are diagnosed with PGP/SPD, you can contact The Pelvic Partnership for support and information (see External Links).

Last reviewed: 06/04/2009

Next review due: 06/04/2011"


http://www.nhs.uk/planners/pregnancycareplanner/pages/backache.aspx