Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Monday, 12 October 2009

NHS...Why are we paying them (taxes) to murder our babies?

"Baby born two days
too soon is left to die


Wednesday, 9 September 2009

A young mother watched her baby son die in her arms after doctors refused to help because he was born two days too soon and therefore ‘just a foetus’.

Sarah Capewell gave birth to Jayden after 21 weeks and five days of pregnancy.

But doctors refused her desperate pleas to place him in intensive care because medical guidelines state that under 22 weeks a baby is a foetus and does not qualify for intensive care treatment.

Doctors refused to even see Jayden, who lived without support for almost two hours before passing away.

Miss Capewell had complications with Jayden’s pregnancy and did not understand why midwives told her “We just have to get you to 22 weeks”.

Because the pregnancy had not yet reached 22 weeks Miss Capewell was not given drugs to delay the labour or help mature her baby’s lungs.

In October 2008 she went into labour at 21 weeks and four days. Doctors at James Paget Hospital in Gorleston, Norfolk, told her she should consider the labour as a miscarriage rather than a birth.

When Miss Capewell pleaded with a paediatrician “You have got to help”, he replied “No we don’t”.

Begging doctors to consider her son’s human right to life, Miss Capewell says she was told: “He hasn’t got a human right, he is a foetus.”

Miss Capewell’s contractions were continuing when a hospital chaplain arrived to discuss funeral arrangements.

When Jayden was born his mother’s pleas for him to be admitted to the special care baby unit were rejected.

When she asked to speak to doctors the midwife said: “They won’t come and help, sweetie. Make the best of the time you have with him.”

Miss Capewell has now launched a campaign to change the national guidelines for NHS hospitals which state that babies born before 22 weeks have such a low chance of survival that no attempt should be made to save them.

Her Downing Street petition has so far attracted more than 12,000 signatures.

CLICK here to SIGN THE PETITION! or copy and paste:


http://petitions.number10.gov.uk/justice4jayden/


After Jayden’s death, Miss Capewell looked into other cases.

She said: “I could not believe that one little girl, Amillia Taylor, is perfectly healthy after being born in Florida in 2006 at 21 weeks and six days.

“Thousands of women have experienced this.

“The doctors say the babies won’t survive but how do they know if they are not giving them a chance?”

Her campaign is backed by local MP Tony Wright who said: “When a woman wants to give the best chance to her baby, they should surely be afforded that opportunity.”

The James Paget Hospital said it would not comment on individual cases and that it followed national guidance."


JOIN FACEBOOK CAMPAIGN:

http://www.facebook.com/group.php?gid=132686013179


I say: THE DUE DATE THEY STATE IS AN ESTIMATE GIVE OR TAKE 2 WEEKS SO WHO IS TO SAY THE BABY WAS OVER 22 WEEKS? THEY CANNOT SAY THAT OR REFUSE TREATMENT AS YOU DON'T KNOW!!!! MANY WOMEN ARE GIVEN DIFFERENT DUE DATE ESTIMATES THROUGHOUT PREGNANCY!!!! So guideline or not, it makes no sense as the estimate is not accurate!



"Premature births up as
survival rates increase

Thursday, 24 September 2009

Doctors are now more likely to induce a birth early because they are more confident that the baby will survive, according to a new study.

The latest research backs evidence that babies are increasingly surviving after early birth.

The study will add to the debate surrounding abortion and refresh calls to lower the UK’s upper time limit for terminating pregnancy which currently stands at 24 weeks.

Researchers found that the risk of neonatal death from premature birth more than halved between 1980 and 2004.

The rate of premature births also increased significantly between 1980 and 2004, the Edinburgh University research revealed.

The research, published in the journal Public Library of Science Medicine, also found that the number of premature babies rose from 54 per 1,000 births between 1980 and 1984 to 63 between 2000 and 2004.

Scientists analysed data relating to almost 90,000 births in Scotland between 1980 and 2004.

They hope a better understanding of premature babies will enhance treatments for expectant mothers.

Professor Jane Norman, director of the Tommy’s Centre for Maternal and Fetal Health Research at the University of Edinburgh, said: “The increase in survival rates for babies born prematurely backs up decisions by doctors to medically induce births to prevent potential complications.”

The study was carried out in collaboration with Information Services Division and NHS Scotland and funded by the Chief Scientist Office, Scottish Government and the charity Tommy’s.

Last week a new study was released suggesting that mothers who have had an abortion are much more likely to give birth to an underweight or premature baby in the future.

Earlier this month there was a public outcry after it was reported that a baby was left to die when doctors refused to treat him because he was born two days too soon and therefore ‘just a foetus’.

Sarah Capewell gave birth to Jayden after 21 weeks and five days of pregnancy.

But doctors refused her desperate pleas to place him in intensive care because medical guidelines state that under 22 weeks a baby is a foetus and does not qualify for intensive care treatment.

Miss Capewell has since launched a Downing Street petition, which has so far been signed by more than 15,000 people."