Welcome to my PGP/SPD blog: Links and Info:

SPD is Symphysis Pubis Dysfunction.

PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)

I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.

The main websites I have found for you to look at now are:

The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:




(This is a charity support group here to help you as a sufferer.)


(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)

More websites you may find helpful:

NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.

Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


Link about DSP and SPD/breastfeeding.


More info on SPD and a link to a support forum to talk to others about SPD.


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.

Another suggested link that my be helpful: (Scotland)


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)

http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:


It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.

Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)

We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.

Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!

Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk

(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)

Please enjoy my personal story in the form of a blog below.

Saturday, 10 October 2009

Catch 22!

My husband has been offered a job position, we don't know when it would start as it may even start next year but just incase it was to start immediately we phoned social services who cannot provide 24/7 care and only do pop out visits (the problem is its during the week full time) so he cannot even do that as he needs to 'babysit' me.... Everything keeps making me feel like a problem.

My husband however has said that I come first and I cried into his arms for a bit, I love his cuddles, and that as it is a fact that I need the 24/7 care he is not going to jeopardise my or our unborn baby's health just because others cannot see nor accept this fact.

I am in agony now and we have not slept right for 5 nights in total now due to my pelvis pain. I am sick of the commode but I guess I have to get use to it anyway as the new house doesn't have a downstairs toilet and the social and others have said I don't need one as I have that. I wonder how they expect me to shower! In the garden with a friggin hosepipe? I feel so let down by the system and the society we have paid lot's of taxes too and have worked for since 15/16 years old.

I feel so dehumanised.

I don't think we will go to the media just yet, we will await the decision from the DLA as I have sent all the evidence and contacts I can and asked for a home visit they need to make a decision and I am eligible so don't see why they won't see that.

The media would probably be more stressful as it would just be look at this disabled loser and her poor 'slave' husband, who are having a baby in 7 weeks 3 days and cannot afford food and she cannot bath or shower.... who have lost their house and aren't getting any help, who's stuck in a wheelchair...etc