PGP / SPD My story:

EDS, Hypermobility and hEDS/EDhS affect everyone differently—even when we share the same diagnosis. Many of us experience similar symptoms and familial patterns, but our day-to-day realities can vary hugely. This is just one version of how EDS can show up in someone’s life. For example, I don’t have flat feet—but I’m affected by nearly everything else on this list, and more. I'm proud to share this to raise awareness, because dynamic disabilities and invisible illnesses aren’t something you can see. You can't diagnose us with your eyes. So I ask you—look beyond the photo. Think outside the frame. See the whole picture. Thank you for taking the time to read. If you know someone with an invisible illness, why not share this with them? Let’s remind them: You are loved. You are seen. You are not alone. With love, Sarah Wingfield ❤️ Independent Disability Advocate #DisabilityInclusion #StrongerTogether #DisabilityAwareness #DisabilitySupport #DisabilityRights #ChronicIllnessWarrior ...

Seeking Compassion - Humour helps: One of my strongest memories from Ayclive is also one of the hardest. I was shaking, in pain, and sat on the floor at the entrance — overwhelmed, ignored, and treated with hostility. In the middle of all that, someone asked me for my ticket QR code. I said, “I’ll see if I can find that for you… and while I’m at it, maybe I’ll try and find some compassion too — it seems to be in short supply.” One of the few kind staff nearby chuckled, and so did I. I was having a PTSD flashback, completely caught up in a wave of panic and helplessness — but that moment of humour, my own defiance in the face of it all, snapped me out of it. Even as I relived the trauma, the memory of that small spark made me giggle again. And reminded me: humour is a valid coping strategy. Whoever said it isn’t clearly hasn’t needed it like we have. — Sarah Independent Disability Advocate #Disability #DisabilityInclusion #PTSDRecovery #DisabledAndProud #StrongerTogether #ChronicIllness...