Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Monday, 5 October 2009

Completely dehumanised and helpless!

I am having to look into rehousing and have contacted my local council in regards to my housing needs, I have sought advice also from social services and my Occupational Therapist who has been more than wonderful. She allowed me to cry my eyes out and confide in her about my problems even though she can only help in regards to my housing needs. A much needed ear and her workplace are very lucky to have someone like her on their team.

Why was I crying? I am extremely upset. I have not been able to tackle stairs for 3 weeks now in which means my hygiene has suffered. A quick wash at the sink is all I have been able to have and living off facewipes, I am depressed. At my parents (I am in their care at times) since they have a bath downstairs I attempted to have a bath, it hurt immensely when I opened my legs to step sideways in the bath and cannot stand on one leg therefore fell over into the bath and hurt my pelvis and left leg. (Having been to hospital on Friday the 2nd October with extreme cramps in my left leg) this was a nightmare for me. I was relieved I didn't land on my bump as that could have been extremely dangerous.

Having falling into the bath I was now unable to get out, so tried to use the water as therapy as well to ease my pelvis, the water supported my pelvis fantastically however I was screaming for quite some time due to the pain the fall and my desperation had caused. After 2 hours stuck in the bath I finally tried to get out and with the help of my mam I got out, but hurt myself much more in the process and screamed all night. I am exhausted.

I don't know what to do as we really need to move to somewhere more suitable or I am going to continue suffering, and this is disgraceful.

My council has done a bidding system but I need to renew my details in regards to my needs so I can try and get a bungalow or house with stairlift.

We have however bidded on some available properties which would leave some money spare a month as financially it would be a big help as our private rents high and I could possibly look at hiring or getting help to hire a stairlift for a 2 bedroomed council property.

At the moment we are also fighting with our council tax as they keep making mistakes and have done since 2008 so I sought legal advice via community legal aid today: 0845 345 4 345.
They are currently asking for close to £300 a month council tax and have sent us 2 bills within days of each other with 2 different figures, previously we have received random figures to pay on final demands which were (first demands) in all fairness and when told we have no overpayments randomly billed for overpayments which we keep paying... thats another story however.

I didn't realise how much SPD can affect your life and your circumstances and feel like everythings just crumbled and theres nothing I can do about it, the more I reach out and try to solve things the more things are crumbling. So I am extremely depressed now. As any sane individual would be.

Just trying to get through some tough times.

My pains got much worse, My pelvis feels much heavier, clexane is starting to hurt as i am running out of body space to inject myself and with 8 weeks to go before childbirth I have to solve all complications in regards to the birth too.

I know I was good at problem solving and life/task balancing but jeez I am no superwoman.

Need a day off, need sleep, need some time thats pain free and need a hug I think!

Just waiting for Lady Luck to shine her light on me and some pity would be nice...

*sorryful*