Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Thursday, 1 October 2009

Because DVT is high risk for those with PGP/SPD:

"Deep vein thrombosis

Deep vein thrombosis (DVT) is a serious condition where blood clots develop, often in the deep veins of the legs (occasionally it can develop in the pelvis). It can be fatal if the clot travels from the legs to the lungs. Pregnant women are 10 times more likely to develop thrombosis than non-pregnant women of the same age. A clot can form at any stage of pregnancy and up to six weeks after the birth.

Other factors that put you at risk of thrombosis include:

  • having had thrombosis before,
  • being over 35,
  • having thrombophilia (a condition that makes clots more likely),
  • being overweight (with a BMI of more than 30),
  • carrying twins or more,
  • having just had a caesarean delivery,
  • sitting still for long periods of time, including on flights of more than five hours, or
  • being a smoker.

What are the symptoms of DVT?

The symptoms of DVT usually, but not always, occur in one leg only. Seek advice from your midwife or doctor immediately if you notice one or more of the following symptoms in your leg:

  • swelling,
  • pain,
  • warm skin,
  • tenderness, and
  • redness, particularly at the back of the leg below the knee.

During pregnancy it's common to experience swelling or discomfort in your legs, so this doesn't mean there's a serious problem. If you're worried, talk to your midwife or GP.

A pulmonary embolism (PE) is when a blood clot travels to the lungs. It can be fatal. Symptoms of PE include:

  • sudden difficulty in breathing,
  • chest pain or tightness, and in some cases
  • collapse.

Once a DVT is diagnosed and treatment is started, the risk of developing a PE is very small.

Managing DVT in pregnancy

Injections with low molecular weight heparin are usually used to treat pregnant women with DVT. Low molecular weight heparin is an anticoagulant (i.e. it prevents the blood clot from getting bigger). It does not affect your developing baby.

Heparin prevents the clot getting bigger so that your body can dissolve it. The injections also reduce the risk of a pulmonary embolism, and the risk of developing another clot in your leg.

Treatment usually lasts for the rest of your pregnancy and at least six weeks after the birth. If necessary, it may continue for longer in order to complete a minimum of three months total treatment time.

Although medical treatment for DVT is essential, there are things you can do to help yourself, including:

  • Stay as active as you can. Your midwife or doctor can advise you on this.
  • Wear a prescribed compression stocking to help the circulation in your leg.

Travel

To reduce the risk of DVT while you're travelling:

  • drink plenty of water,
  • don't drink alcohol, as it can lead to dehydration,
  • perform simple leg exercises, such as regularly flexing your ankles. Most airlines provide information on suitable exercises to do during your flight,
  • take occasional short walks when in-flight advice says that it's safe to do so, and
  • get off the plane during refuelling stopovers if possible, and walk about.

"