Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Friday, 16 October 2009

Thursday 15th October: What a day!

We had to set off at 8am for my husband to push me all the way to our new house in my wheelchair which took about 30 minutes so wasn't too bad, although was prettty bad for him as there were bumpy paths, curbs, steep paths upwards and downwards and I can only imagine how much pressure that would have put on his back.

We had to get our electricity key sorted, that took ages as the ladies at the shop were extremely helpful but had not coded a number (tag overwrite or programmed a code) onto a key before.

They did an RTI overwrite and it worked the balance on the receipt had lots of zeros so we didnt know at that point if the key had the balance of £41 to clear the debt that wasnt ours on the meter etc...

Got to the house and thankfully it worked.

The men sorted the gas and electricity (safety check) and my dad had got a fridge freezer from that lovely lady from SVP. (catholic church charity).

It was ages until we got home, and when we did get home I phoned my midwife as I have been worried since sunday as baby has reduced movements, only about 5 in 24 hours. She said we have to go to the hospital for a 20-30 minute monitoring and she would let the hospital know.

Luckily that day my dad was able to come back through and take us and the baby showed me up I think, he moved more in that 20 minutes than he has the rest of that day and the last few days, but I didn't care it was what we wanted to hear, that he is all fine :)

At home when we got back eventually, I phoned DLA and found nothing out so they are calling back today (Friday 16.10.09.) Anyway eventually I fell asleep after a painful and horrific time with my pelvis, all cracking and grinding sensations and agony, and around 23:00hrs the airbed which is supposed to take lot's of weight and which hadn't been blown up for a few days so was softer and a lil deflated as usual decided to pop and whack against my pelvis which i woke up screaming as it was agony and the other side popped as my husband was trying to get me off it.

He had to bring our double bed down and mattress and we settled late on.... still in agony and thinking what else now?!?!