Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 16 February 2011

SPD Awareness Campaign - WE NEED YOU!

To raise awareness of the new charity www.supportpelvicdysfunction.co.uk we need YOU to help!

Image:  



Facebook & OTHER social network Users: Please REPOST the business card image to your profile, either tag friends or post on peoples profiles, it takes a few minutes but helps many SPD sufferers that are suffering in silence! Please include this message "www.supportpelvicdysfunction.co.uk help in the SPD awareness campaign by new England Charity Support Pelvic Dysfunction by REPOSTING this or TAGGING friend!"

Please help our awareness campaign!

www.supportpelvicdysfunction.co.uk

Email: Please email this image to your friends with this paragraph (copy and paste) :

"1 in 4 pregnant women develop SPD, many are undiagnosed and many don't know they have SPD. Stop the suffering in silence by spreading the word as part of a raise awareness charity campaign started by Support Pelvic Dysfunction, a new England charity! Yet another thing to be proud of! It takes a few minutes to pass this email on to friends, but it helps hundreds of women that are suffering in silence, your mothers, sisters, daughters, nieces, and more will have probably had, has or will probably develop SPD at somepoint in their life. HELP prevent SPD becoming a permanent disability for women by spreading the word!"

 E-mailing takes a few minutes but helps many SPD sufferers that are suffering in silence!

Please help our awareness campaign!

www.supportpelvicdysfunction.co.uk



Thank you to all the emails I have received to spdcharity@hotmail.co.uk within hours of setting up the site i have received thank you emails and emails from sufferers who i am proud to have been able to help and support, thanks to ALL of YOU who are spreading the word!

We may not have charity status as we are NEW but we are helping MANY people who are your Wives and Girlfriends! Your Mothers, Daughters & Friends! Women from all over England have contacted us for help, and even international sufferers NEED US!

Please keep on spreading the word and helping more and more sufferers!

The support group I have ran for the last 2 years opened my eyes to how much we NEED this charity! I cannot sit back and let people suffer like we have! Let's do something about it, and NOW is the chance!

THANK YOU!