Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 4 November 2009

Baby has dropped and I feel let down:

*OH SO ALL SEVERE SPD SUFFERERS ARE PSYCHOSOMATIC AND PUTTING THEIR CHILDREN AT RISK ARE THEY?*

My baby has dropped now so I am really excited, in all this madness and mess he is so fantastic we were playing with Mr. lumpy as he is known now despite us already having given him a name, all night and he was so responsive, he is so beautiful already and I cannot wait to meet him.

In all this chaos he is the best thing that is happening right now.

Got a call from my G.P today, the call was so-so... I am disappointed as the NHS have failed to provide me with a medical professional experienced with SPD or even experienced in pelvic joints, so looks like I am going to have to go privately if I want to be taken seriously.

As fine as I am to see a psychiatrist I do not understand how they are so keen as to suggest it is psychosomatic when failing to even be prepared to allow me the assessment of an experienced individual who can confirm my condition or as they seem to want at the moment confirm there is no condition.

I personally do not see how a psychiatrist can magically fix my misaligned pelvis before childbirth and believe me I will be taking action if anything happens from what I define as this malpractice.

It is easy to suggest something when you yourself are inexperienced but surely you would want to have the opinion of someone experienced and capable of examining me (which I have not had yet) first prior to assuming that it is psychosomatic and even making allegations that I would put my baby at risk.

I am disappointed at the lack of faith in individuals and the lack of care, I feel they are unjustified as they have lack of medical evidence as they are continuously refusing to examine me so I am taking matters into my own hands and going to see a professional privately myself.

Then I can provide the results and fair enough if they do turn around and say well there is nothing whatsoever physically wrong with you, of course I will then see some one in regards to cognitive abnormalities/mental conditions to get better; but to just immediately place an individual in such a situation without providing medical evidence that the condition does or does not exist is just careless.

I will be taking legal action if there is permanent damage from such assumptions.

They have to remember that it is just logical surely common sense to have a pelvic joint specialist review me prior to just wasting money and putting me at risk with the condition to someone who 'I need to work with to be able to get through childbirth'.

They don't take the pelvic partnership or the ACPWH seriously and despite the study I posted on this site they seem to prefer to act careless.

I am of no risk to my baby, and they have one big fight on their hands as I am not someone they can walk all over and I am not vulnerable enough to just give up, believe what they say, become depressed and worst case scenario, as some women would, overdose or similar.

I need to make a stand not just for me but for every SPD sufferer who they are taking advantage of, and putting in a vulnerable position, assumptions and lack of evidence can lead to fatalities. They need to be prepared to offer what page 77, section 9 Problems, right hand column (first NHS baby book given free to first time mothers) states in black and white. REFERRAL to specialists!!! Not people who believe they are specialists because they have experience with some women who have crutches and are fixed in the closed minded state that SPD is hormonal and only starts in the third trimester.

Something needs to be done now, so I will get MY OWN medical assessment from a PROFESSIONAL in PELVIC JOINTS and then I will happily own up if they are right!! And if they are wrong as I know they are I will be taking action.

Simple as.

Enough is enough, I am sick of them putting me through pain just because they are inexperienced with SPD, I have suffered enough! I have lost enough! I have wasted enough time justifying myself to people who are ignorant!

I only allowed them to examine me on my back to make sure my baby was safe and YES IT WAS (without swearing) EXCRUCIATINGLY PAINFUL and no mother to be should have to deal with such problems in their pregnancy, let alone anyone in general be forced to put up with what I have.

Just because I had a sane reaction in my past to a traumatic event does not suddenly define me as mentally ill. It is sad that 'professionals' in modern day society are prepared to ruin peoples lives with such closed minded, unjustified, assumptions.

This is NOT over and they are NOT taking my child from me, my message to them is clear:

Our child is our LIFE, and I would not expect any of them to understand when they are clearly incapable of referring me to the CORRECT department prior to just wasting my and others time labelling me from opinion!

My child will be very much loved and in all fairness I hope to God my condition gets better on its own as I cannot cope being involved with such people for much longer.

Get over yourselves and get me the correct referral! You are only failing as a Dr. when you fail to provide appropriate care instead of caring about your pride and trying to justify that your unsupported allegations are correct! People are more important than your pride, and you will only dig a hole for yourself by protecting your pride and referring people with real issues to the wrong department, I will take action if and when you make this matter worse by your decisions.

I know I am being harsh, but enough is enough, and if I don't do this and care, who else will? As the pelvic partnership cannot converse with professionals and professionals are not prepared to listen to them or SCIENTIFIC STUDIES BY MIDWIVES IN 2007 either.

RE: Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton



Wish me luck guys as I have one hell of a fight on my hands, how are you supposed to justify your issues to people who already assume it is all in your head, and are not open minded enough to think otherwise, even for a second, I think I would have a better more intellectual conversation with a wall.