Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 4 November 2009

MORE info on SPD: AND LINKS:

BIG thanks go out to a lady on babycentre for finding the research below, but I hope this helps all other sufferers too!!!

She posted:

Here's a reference in a medical journal:

Owens K, Pearson A, Mason G. Symphysis pubis dysfunction: a cause of significant obstetric morbidity.

European Journal of Obstetrics Gynecology and Reproductive Biology2002;105:143–6.

Objectives: To investigate the prevalence and severity of symphysis pubis dysfunction (SPD) in pregnancy and the postnatal period. Design: A postnatal questionnaire was sent to 248 women who had been referred to the Obstetric Physiotherapy Department in 1997 and 1998 with symptoms of pubic pain either during pregnancy or soon after delivery. Setting: A north of England teaching hospital, The Clarendon Wing, Leeds General Infirmary. Participants: Questionnaires were sent to 248 women. One hundred and forty-one were returned (response rate 57%). Results: The condition is associated with much unrecognised obstetric morbidity. The prevalence in our unit over the 2-year study period was 1/36 women. Many medical and midwifery staff have little knowledge of SPD. Patients often felt ignored when they complained of pain. One out of four of the respondents were still symptomatic 6 months later.Conclusion: Further research is needed to identify the best practice in the antenatal care provided, including the provision of support belts, the most appropriate mode of delivery and postnatal treatment.

If you PM me your email address I can send you a pdf of the full article.

Secondly, clinical recommendations from the royal college of midwives:

Fry D, Hay-Smith J, Hough J, McIntosh J, Polden M, Shepherd J,

et al. National clinic guideline for the care of women with symphysis pubis dysfunction. Midwives 1997;110:172–3 - it's not possible for me to get a copy of this, but the fact it was published means there must be some guidelines for midwives.


She also posted:

http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf

Symphysis Pubis Dysfunction
Physiotherapy
Volume 83, Issue 1, January 1997, Pages 41-42

Deborah Fry MCSP, Jean Hay-Smith, Jennifer Hough MCSP, Jeanne McIntosh MCSP, Margaret Polden MCSP, Jancis Shepherd RGN RM MTD and Yvonne Watkins MSc MCSP MMACP


NICE antenatal care guidelines page 113:

"Symphysis pubis dysfunction has been described as a collection of signs and symptoms of discomfort and pain in the pelvic area, including pelvic pain radiating to the upper thighs and perineum.

Complaints vary from mild discomfort to severe and debilitating pain that can impede mobility. The reported incidence of symphysis pubis during pregnancy varies in the literature from 0.03% to 3%. In Leeds, a hospital survey of women (

n = 248) in whom a diagnosis of symphysis pubis dysfunction had been made, estimated that 1/36 deliveries were associated with symphysis pubis dysfunction either during pregnancy or soon after delivery.219Among the respondents (57% response rate), 9% reported that symptoms first occurred in the first trimester, 44% reported symptoms in the second trimester, 45% in the third trimester and 2% during labour or the postnatal period. [EL = 3]

There is little evidence in the literature on which to base clinical practice. No higher levels of evidence than case reports were located on effective therapies for symphysis pubis dysfunction, although the use of elbow crutches, pelvic support and prescribed pain relief have been suggested.

220 [EL = 4] It is important to remember that many medications for pain relief for bones and joints may not be appropriate for use in pregnancy.

More research on effective treatments for symphysis pubis dysfunction is needed."


UPDATE:

just spoken with a private physio today who was fantastic and he has said after childbirth i could be referred to him on nhs!!!! which is even better!


means i just need to get through the next few months and then atleast i will receive treatment to be able to walk again after baby is here!!! ♥

After describing my pains he doesnt think its in my head either!!!

....just goes to show...I may be able to walk sooner than they think and maybe i will have grounds to take action finally, and to protect other women from some nhs staff!!!!