Welcome to my PGP/SPD blog: Links and Info:

SPD is Symphysis Pubis Dysfunction.

PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)

I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.

The main websites I have found for you to look at now are:

The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:




(This is a charity support group here to help you as a sufferer.)


(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)

More websites you may find helpful:

NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.

Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


Link about DSP and SPD/breastfeeding.


More info on SPD and a link to a support forum to talk to others about SPD.


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.

Another suggested link that my be helpful: (Scotland)


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)

http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:


It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.

Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)

We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.

Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!

Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk

(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)

Please enjoy my personal story in the form of a blog below.

Tuesday, 10 November 2009

I need all the luck in the world:

Lady Luck please shine down on me....

I see my new consultant tomorrow at a different hospital now (will be exactly 37 weeks).

Hope he takes me seriously and that I can get a professional examination for once.

This SPD is agony, the immobility is still agony too.

I had a dream the other night that I was walking in and when I woke up and found I couldn't even turn over again and was in absolute agony, it hit me all over again.

For the last three days I have had the baby burrowing deeper and deeper into my pelvis and I really am not coping, I feel sick all the time, drained, in so much pain and I think I will ask/beg the new consultant to just induce me.

SPD is bad enough on it's own but with the baby burrowed in there I am screaming more than usual.

I have not been good company for my friends who have taken me in whilst our house has mandatory major council works done due to being ill still. Their stairlift has been such a godsend, making me more independent and helping me up and downstairs so I can sleep upstairs at theirs with the help of my carer/husband, and with him helping me have a shower too (which is not all what people may think, it is so difficult to shower when you have to use a seat, need help with everything and feel useless) but he helps me and I feel better being a girly girl.

The house of commons wrote back and told me nothing I did not already know, and the Social Services O.T has failed to phone me back regarding the clash of their appointment to assess me for a stairlift with my urgent appointment with my consultant.

Think I will just buy a straight stairlift from ebay and just end up hurting myself with the first 3 steps, if I manage to conquer them at all. Not that they care anyway. Atleast I will be able to get upstairs despite what damage or pain it will cause to myself, which is all apparantly in my head anyway...grrr....

It will take forever if at all for them to bother themselves to get me one. After all like the hospital O.T said "Even people with Parkinson Disease are not being given stairlifts"... as if that makes it right...

So yes.. I don't know who I can trust right now and I am hoping for the best tomorrow, would make a nice change to be taken seriously, examined, believed and helped tomorrow.

Fingers crossed.

At the end of the day, I have options open that I have organised myself, such as the private physio etc... so if things continue to get worse I have options to prove my condition.

..trying to stay positive for now....heard good things about new consultant so let's see...