Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Friday, 17 May 2013

Disabled women should be legally allowed to be mothers.

I don't know what the law on this is but I, as a disabled mother, clearly have no rights at the moment, when it comes to child social services preventing me to parent our child, in which I parent alongside my able-bodied husband, and have done for three years, including with his cancer, until FALSE accusations were made regarding my disability.

 Having proven untrue, and my disability is real and a needs assessment to prove my disability does not affect my parenting, child services wish to prevent me being a parent to our son, due to my disability, and it's affects.

My fellow SPD bearers and individual, inspirational, heroes.

Thanks to everyone who have been so cool when I and my husband have been amongst a storm. Things are still a little chaos, well in all honesty there is NO little when it comes to chaos. The dreaded meeting is tomorrow where we put forward our request for a new needs assessment and fight the fact that despite all little info and lack of factual info, child social services, still aim to issue court proceedings known as Public Law Outline, to issue a residence order to my parents, making them have parental responsibility legally for our son and for him, not to, return home into our care.

A legal advisor, says despite the meeting tomorrow they feel that child social services, will go ahead neverless, and issue court proceedings anyway, however we will not give up on our son who only today said he wants to come home and live with us 'forever'. *sobs* Is this not a human right?

This is not easy for me and I need to keep my calm and be up at seven a.m. because social KNOW I STRUGGLE (most days) to do mornings and I will be in pain by forcing myself in doing so especially after being recently hospitalised and up ALL night, last two nights in agony, not pain-agony!

When will they ever learn? ! ?

A traumatised mother wanting her now traumatised son home before child services do any more damage.

But Thank You to all of you who have supported us, said kind words, texted and phoned and e-mailed and messaged me, and for all the encouragement to stay strong. If I ever finish this book about this, I will dedicate it to all of you. Preferably all by name. We will see as there may be too many, that'd probably make a full book listing you all together!

Love always,

(My name). (Son's name)'s mammy. Mother for life, love my son for life and spend my life ensuring justice is sought and my son, my miracle, my (son's nickname), comes home, 'forever'.