Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Wednesday, 30 September 2009

Clexane, Clots and Birthing plans:

It was last saturday, I had a problem when I gave myself my Clexane injection into my left thigh, it was extremely painful and abmormal. I had administered it more than 14 times and never had any problems, I phoned urgent care centre as there was a lump present too and my mam was concerned. (My midwife's phone was switched off).

Having told them I was under the care of my parents and at their home and having phoned from a different landline number to mine, I was waiting for her to call me back to state whether or not I could have a home visit. I had told her I was pregnant and had SPD.

She sent two standard nurses to my home address whom woke up my husband who had been on a nightshift. He was scared hoping I was ok. I assured him I was just getting a check up and some advice as to where to inject 'tomorrow' etc. He gave them my parents address.

2 hours later I had heard nothing so phoned urgent care who said abrubtly and impatiently that they had passed it over to the nurses in my area and they are very busy, and there was not really any allowances for questioning so I just said thanks as the call was terminated.

A staff nurse turned up about an hour after that and said she couldn't help me at all and thought I needed a dressing, she didn't understand why a midwife had not been sent out.

She said that I needed to go to urgent care to be seen, my parents luckily were able to take me.

The receptionists were fantastic and sent me to the day assessment maternity unit. The lady midwife there not only helped me with the Clexane but advised me on many other things.

She spent ages going through things and reassuring me about things and confirmed that the tender lump was normal (a lady Dr was present too that was describing clexane side effects too) and that it is nothing to worry about.

They advised me to go organise a visit not on a sunday as is usual, but on a less busy day mid week or something to see if i can get in and out of the birthing pool, ( hoist may be needed ) and she discussed the risks of normal births (out of question) and caeserians which can cause DVT and I would be a high risk patient.

So I need to speak with my midwife and consultant now.

A pleasant experience in the end and I cannot fault the hospital this time, it was fantastic and has restored my faith in giving birth there.