Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Monday, 21 September 2009

Consultant Appointment and Update: Monday 21st Sept.

Got collected from home today with my husband, my registered carer, via GP transport/ambulance to see my consultant.

My appointment was at 10:30am. They were running extremely late and my spd pain was getting worse. Had to go to a seperate room to inject myself with clexane.

I had weird bump sensations last night, pressure, very uncomfortable, bruising and tightening that would come and go.

Whilst I was at the hospital waiting I broke down and wanted to come home as it was horrible sitting in the waiting room in absolute agony and crying my eyes out. There was no spare room at this point.

When we finally got to see the consultant it was about 11:30am quarter to 12 but every second prior seemed like an hour with the pain I was in.

The consultant said I had Braxton Hicks last night and checked me over, the TENS machine which had helped me the last few months has stopped helping now so I handed it back over.

The consultant checked me and was extremely sensitive today, in fact he was fantastic, he listened to everything I had to say and I think realised that we are having a really bad time with the pregnancy and that is is affecting my husband too.

He was great and did an examination which fortunately showed that the cervix was closed and I was in agony during the examination and moving for the examination, much worse during to the extent I was in fact screaming and I was quite loud so people will have heard me too. I just wanted the pain to stop. The consultant said it seems anatomical and hopefully will subside after birth, fingers crossed, and discussed treatments that are available after birth.

He has referred me for acupuncture and awaiting a physiotherapist who has seen me 3 times before to get back in touch.

Better end to the day as despite the pain I was sent for a scan to check the growth of the baby, the baby is definately a boy and is healthy and happy. We got to see him properly on the screen this time and got a gorgeous picture to take home of him sucking his thumb. Truly Beautiful.

10 weeks to go, it will be so worth it...


Having come home the spd pain has unfortunately continued and I was bowled over in tears for quite some time before managing to drift off to sleep, upon awakening I am having Braxton Hicks again and spd pain is bad again. The babys head keeps going low down into my pelvis which is just adding to the pain.

So right now I am desperately hoping for a good night.... fingers crossed as I am absolutely exhausted. Well and truly kaput.

Hoping for some light at the end of the tunnel... Relieved the pains nothing sinister and the babys healthy but looking for some time to enjoy this pregnancy.

This pregnancy has confirmed that it would most definately not be wise to conceive again.