Hi (my name here),
Many thanks for getting in touch and congratulations on the birth of your son. I'm so sorry to hear about your SPD and all the problems you've encountered. We are very aware of SPD/ PGP and cover it on an annual basis, although it tends to be more of a Q&A piece than a first-person story. I don't think your story would be quite right for our publication unfortunately, but best of luck pitching elsewhere.
Incidentally we don't pay for stories and I'm not sure the other parenting titles do either (although you may want to check), so you may want to consider getting in touch with the women's weeklies who do tend to pay.
All best wishes for the future,
(lady's name here)
(lady's name here)
(magazine name here)
E-mail: (lady's email and name here)
Direct tel: lady's phone number."
Don't think i wrote clearly enough to get my message accross as i got the above message:
14/12/09 01:25 Subject of email sent: URGENT: I have a story that may shock and be of interest to you?
"My name is (my name here) and I have a story that may shock you and be of interest to you.
I am 22 years old and my pregnancy caused me to be disabled.
Blog site is http://pgpandspd.blogspot.com
I had endometriosis and polycystic ovaries and was told i cannot have children. I conceived on clomid and became disabled. Attached is an article about when i first found out i was pregnant and started my business (my business need not be mentioned in the article...
There are lots of things you can miss out of the article which will be fine by me (thats at your discretion) i just need this help for stairlift and need to help others about SPD.
Before I go any further my reasons for contacting you about this story are serious:
I wish for no other individual to go through what I have gone through, to prevent more individuals from becoming disabled, to raise awareness about the pregnancy related condition and I am desperate to raise a minimum of £4,000 for a L-shaped stairlift or have one donated.
My story may make you cry but know that I am coping as best I can and remaining optimitstic for our miracle child, our son.
The story summarised below, in which I will enclose a link to my blog, where there is everything that has ever happened to me about SPD and associated with SPD.
First of all SPD:
1 in 4 pregnant women get SPD : page 77, section 9, problems, NHS book given free to all 1st time mothers in the UK.
SPD is symphysis pubis dysfunction, it is where the pelvis misaligns when you move by millimetres or centimetres, it can develop into DSP, Diastasis Symphysis Pubis which unlike SPD can be identified by X-rays and scans.
5% of women according to acpwh get SPD severely and need a wheelchair (All statistics and facts are on my blog with links to accredited info) I am one of the 5%.
NHS, NICE guidelines state 9% of women suffer from SPD from conception,
This is my story.
I woke up around 14/16 wks and could not turn in bed at all, i was diagnosed with SPD at 16 wks, was in a wheelchair at 20 weeks.
Was made homeless and had no access to food during my pregnancy, had to close my business on the 18th july and my husband became my 24/7 registered carer.
I am completely disabled due to SPD and immobile.
I have had no access to a toilet, shower or bath since JULY 09. I cannot get upstairs, we are in council house now.
I use a commode and i am lucky if i get to a relatives once a wk for a shower (have to use shower seat aid) but it hurts everytime as there is not enough room for my legs to swing into the tub as sink basin and radiator is in the way.
my ex consultant made the allegations that my SPD is psychosomatic and my midwife has been horrid to me, stated early on that i am putting me and child at risk (during pregnancy) on a debt collecting visit from hospital for £10 for a tens machine that the hospital agreed i can have use of for free, she never did any antenatal checks and wrote down the debt collection as antenatal check.
i ended up on the bathroom floor at one point in hospital as nurses failed to use a hoist and wouldnt help me incase they hurt their backs.
i changed hospitals and the delivery was great, needed an emergency c-section but care was great. given new consultant met once and would help me.
after care was abismol and offensive opinionated remarks were put in my postnatal notes, the consulant discharged me without notification and because of ex consultant i need to see a psychiatrist and social services children in need are involved.
an ex O.T from the hospital suggested i showered at the leisure centre if i struggle bed bathing.
The prolene stitch from the stitch and beads have been left in me and was told would be removed, now i have been refused surgery and its non dissolvable and wont migrate. The nurse said its not like they have left a glove inside me.
i have been passed from pillar to post, treat horribly, isolated, insulted and now all i have is a physio and O.T whom are lovely but cannot help me until they try to get me an MRI scan...
The social O.T assessed me for a stairlift but needs confirmation that my condition is likely to be long term (which it is) but no one is sticking with me long enough for them to gather the evidence.
My stairs are L shaped and thats the problem.
Much more shocking incidents have happened and comments have been made and me and my husband have been made to suffer and still are suffering. I am desperate to raise much needed awareness as many health professionals do NOT understand or are aware of SPD and this needs to be changed as 1 in 4 women get SPD.
I have had to do much research and all can be found on the blog, theres about 48 blog posts and although it sounds many it shouldnt take too long to read.
I am prepared to be photographed for this article and you are the first magazine i have approached, i bought (magazine name here) all the time and still do and hope that you will help me to raise the much needed awareness, to help women now and help us get the stairlift we are so desperate for.
our son was born 20th november and SPD has ruined lots of motherly privilidges other women will have and i am deprived of.
I am on 200mg of morphine daily and have paracetamol on top.
some posts may be irrelevant to the article but please let me know what your feelings and/or thoughts are about this as i am not contacting other magazines unless/until you decline the article.
I am happy to discuss what content you wish to post too.
Blog site is http://pgpandspd.blogspot.com
Thank you for your time.
(My name here) x
(My name here)
Sole trader business name here
(website address here)
T: (tel number here) "
Right, I don't know if this lady will respond again so you may not hear anything more of this, but I have tried to raise awareness of severe SPD to magazines and certain TV news departments.
All I can do is apologise, and I hope that someone from the media will decide to use their voice to help women like me and you and the 1 in 4 that get SPD.
Mentioning severe SPD also helps minor SPD sufferers cope, we need a voice, we need to help, and we need it now.