Welcome to my PGP/SPD blog: Links and Info:



SPD is Symphysis Pubis Dysfunction.


PGP is it's appropriate name: Pelvic Girdle Pain. (although I disagree as many do and feel this name is too general.)


I have created this blog about my story to raise more awareness in regards to PGP and SPD with links to the appropriate support sites to make your recovery as easy as possible.


The main websites I have found for you to look at now are:


The ACPWH have changed their website and here are the new links to access the 2 SPD documents you need to read which will offer you help when you have been diagnosed with SPD:

http://acpwh.csp.org.uk/publications

http://acpwh.csp.org.uk/publications/pregnancy-related-pelvic-girdle-pain


http://www.pelvicpartnership.org.uk/

(This is a charity support group here to help you as a sufferer.)


http://www.facebook.com/group.php?gid=137142035812&ref=mf

(Our own official support Group on Facebook JOIN US, RECEIVE HELP, INSPIRE OTHERS)



More websites you may find helpful:


NEW CHARITY: SUPPORT PELVIC DYSFUNCTION: http://www.supportpelvicdysfunction.co.uk Donate online, receive help and support one on one and read helpful the helpful guides provided to help you cope with SPD and other pregnancy related complications.


Study by Royal College of Midwives-Evidence-Based Midwifery, Sept, 2007 by Vanda K. Wellock, Margaret A. Crichton


http://findarticles.com/p/articles/mi_6862/is_2_5/ai_n28445225/


Link about DSP and SPD/breastfeeding.


http://www.plus-size-pregnancy.org/pubicpain.htm#Should%20I%20stop%20breastfeeding%20if%20I%20am%20still%20experiencing%20pubic%20pain%20postpartum


More info on SPD and a link to a support forum to talk to others about SPD.


http://www.madmums.com/GH_ShowArticle~HID~147.htm


Community Legal Aid: (If you need legal advice in any situation)

0845 345 4 345.



Another suggested link that my be helpful: (Scotland)

http://www.pelvicinstability.org.uk/index.asp


Additional links which are useful (Thanks to a lady from babycentre and all the other contributors! You know who you are and you have been fantastic!)


http://www.nice.org.uk/nicemedia/pdf/CG62FullGuidelineCorrectedJune2008.pdf and http://onlinetog.org/cgi/reprint/8/3/153.pdf


SPOON THEORY:


But You don't look sick?

Copyright: 2003 by Christine Miserandino butyoudontlooksick.com

A story that helps the disabled not just SPD sufferers:

http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf



It is important to NOTE that PGP formerly SPD is not just caused during pregnancy (1 in 4 women) and that many sportsmen and women also suffer from PGP / SPD.


Hope you find this information helpful and pass it on and invite others, as severe cases are defined as a disability and can be made permanent condition(s) if not treated correctly.


Awareness:


Due to lack of awareness that this site exists, MANY women are sat at home now, MANY pregnant and suffering unknowingly with SPD and/or joint conditions. As a founder of a start up charity I cannot advertise. I am merely asking you as a reader of this blog and supporter of the new SPD charity, Support Pelvic Dysfunction, to share this site with others, maybe friends on your facebook? twitter? Anywhere, by doing so YOU WILL be HELPING many more SPD sufferers like YOU and those that are suffering in silence right now not knowing we are here to help. We need YOU to help us, to help them. :)


We would like to put out a huge THANK YOU to all those women on our support groups and pages, on facebook, who are all discussing SPD and helping one another, and to thank ALL those who are sharing this blog and the charity website Support Pelvic Dysfunction.


Because of you, Support Pelvic Dysfunction receives many emails from helpless women desperate to know if they will re-cover and emails from those that have unknown underlying joint conditions, to which we can assist to get them a REAL diagnosis and help!


Dont suffer in silence!

Email: help@supportpelvicdysfunction.co.uk


(This blog is not affiliated with the charity, however as the founder of the charity, this is my personal REAL, TRUE TO LIFE story, that i have put in place to help others!)



Please enjoy my personal story in the form of a blog below.

Monday, 15 November 2010

I am Disgusted at the hospital lying again...

I have just heard on the news that a little child has died from being dismissed and going back to the hospital I have been dealing with, from lack of diagnosis of a majorly recognisable condition without pain relief!

I have put a complaint into the same hospital about the lack of care and clinical negligence I received from / in the same department, thankfully I was not at a point in my life where I could have died, however as a disabled mother being left to fall off a high bed, having the pain relief of gas and air taken away and then being left on the floor, hit with the door and prodded (and much much worse all in a previous log/blog) and they did not care then, and they are pretending to care now by labelling themselves as having a high level of care 'usually'.

Instead of an apology they have made false and offensive allegations towards myself and my husband that will consistently affect the level of care every time I would need to go into hospital by writing abusive and offensive, false statements in their notes, claiming I have challenging behaviour, am deluded, am not disabled despite all evidence and diagnosis to justify otherwise, and that I apparantly should have my stairlift taken away and I have OCD. All lies.

I am actually quite concerned at the distress the family have now got to face due to this hospitals staff's constant negligence.

My sympathies lie with that family in particular and all other people who have been affected by this hospital which I am not going to name.

Instead I am putting a case together myself, to claim compensation and to prove my innocence in court so when i need to go into hospital again I will be safe and treat with care and respect, not deliberately abused nor physically hurt as I have experienced over and over the last 2 years starting February 2009.

This is disgusting and I urge all other people to step forward to put complaints in, and to take things further when the complaints system laughs at them and makes their situations worse and life threatening.

If I became seriously ill I could not trust the hospital, or any hospital who has my notes at this time, to treat me with the respect I deserve because they have falsely tainted my reputation and defamed me in my medical notes ; and with the way they act in regards to refusing treatment for smokers, how are they going to act when they read that I am allegedly (falsly I may add) abusive to staff and have  no disability and a history of challenging behaviour, all lies. LIES!

Well i can answer that one easily, how they have been treating me after the allegations were made, ignoring me, refusing to use pat slides, and even getting a security guard in all the time leaving me to suffer all the more as opposed to getting the treatment anyone should deserve, afterall I am innocent and have only been a victim of their abuse.

Please help in my campaign to stamp out hospital negligence and abuse to vulnerable and all innocent patients!!!