PGP / SPD My story:

(HEADER:) BIRTHING PLAN (MY NAME IS HERE) PAGE 1 OF 2. D.O.B: --/--/---- BABY DUE DATE: --/--/---- NHS NUMBER: ----------- UNIT/HOSPITAL NUMBER: ------- CONSULTANT: (NAME HERE) MIDWIFE: (NAME HERE) (HOSPITAL NAME HERE) HOSPITAL BIRTHING POOL PLEASE NOTE : I HAVE SYMPHYSIS PUBIS DYSFUNCTION (SPD): This means that the joints in my pelvis are unstable and painful and I need 24/7 care as I am in a wheelchair and immobile. Clexane injections daily due to stop at week 39: 25 th November 2009. There are certain things that are recommended and certain things that I cannot do during labour and birth; this is to avoid anything that may cause damage to my pelvic joints . These are outlined in this birthing plan: BIRTH AND LABOUR: I am in a wheelchair and immobile due to SPD. Clexane 20mg injections have been daily self-administered and are/should be stopped at week 39 in preperation for birth: 25.1...

Following my last post in regards to the study conducted in the North West of England, this is what has happened this week in regards to my SPD case. The DLA manager I have been speaking with has had my file back from medical services and the decision maker has decided more information is needed form medical services from the start of monday 19th Oct 09. They will be in touch. So fingers crossed still. The Dr's have been in touch and I am now speaking with someone in regards to my mental health due to SPD. We have also been lucky enough to now have a cooker as well as a fridge freezer thanks to the kind lady from the SVP!!! We don't know how to thank her enough!

" Background. Symphysis pubis dysfunction (SPD) is an abnormal stretching of the pubic joint in pregnancy, which causes distress and pain during and after pregnancy. Measures of its incidence varies widely, and most research has focused on identifying causes. Among healthcare professionals, there is evidence of low levels of awareness of SPD and a lack of sympathy toward women with it. Aim. To explore women's experiences of SPD during pregnancy and up to six weeks postpartum, with particular reference to pain. Method. A qualitative, phenomenological approach was used in conducting semi-structured interviews in a large maternity hospital in the north-west of England. A total of 28 women were interviewed during pregnancy and six weeks postpartum (51 interviews). Findings. The dominant theme to emerge was the women's experiences of pain. Pain was described in compelling language, and some women overdosed themselves on analgesics. Pain was sometimes accompanied by sounds that ...

We had to set off at 8am for my husband to push me all the way to our new house in my wheelchair which took about 30 minutes so wasn't too bad, although was prettty bad for him as there were bumpy paths, curbs, steep paths upwards and downwards and I can only imagine how much pressure that would have put on his back. We had to get our electricity key sorted, that took ages as the ladies at the shop were extremely helpful but had not coded a number (tag overwrite or programmed a code) onto a key before. They did an RTI overwrite and it worked the balance on the receipt had lots of zeros so we didnt know at that point if the key had the balance of £41 to clear the debt that wasnt ours on the meter etc... Got to the house and thankfully it worked. The men sorted the gas and electricity (safety check) and my dad had got a fridge freezer from that lovely lady from SVP. (catholic church charity). It was ages until we got home, and when we did get home I phoned my midwife as I have been w...

Social services and my OT have said that I won't be able to get a stairlift at all. So I am going to definately be left without a stairlift: access to bath and shower and toilet till 2010, minimum february and maximum 2012. They expect me to have a quick wipe down downstairs in regards to hygiene and use the commode. Bearing in mind I am having a baby too, due dec 2009!!! The charity/church I phoned cannot even help with a stairlift. We really don't know what to do as I cannot even wash my hair as I cannot do it in the sink downstairs and don't have a table to rest a dish on or anything. I have a shower seat to get into the shower but that is no use to me if I cannot get to the shower. I am going to miss out on being a proper mother till 2012 when my childs 2, and thats if i fully recover. :'( They are taking everything away from me! :just want to be left alone:

"Baby born two days too soon is left to die Sarah Capewell says her baby, Jayden, lived for two hours after being born at 21 weeks and five days' gestation. Premature baby 'left to die' by doctors after mother gives birth just two days before 22-week care limit (dailymail.co.uk, 08 September 2009) Bereaved mother's campaign against medical guidelines that allow premature babies to die (telegraph.co.uk, 05 September 2009) Premature ‘little fighter’ challenges abortion limit (30 June 2009) Sextuplets mum ignored doctors' abortion advice (15 June 2009) Healthy baby born after mum was told to abort (26 March 2009) Mum slams abortion law as 23-week baby lives (07 January 2009) Wednesday, 9 September 2009 A young mother watched her baby son die in her arms after doctors refused to help because he was born two days too soon and therefore ‘just a foetus’. Sarah Capewell gave birth to Jayden after 21 weeks and five days of pregnancy. But doctors refused her desperate pl...

I phoned my social worker , immediately she seemed to want to hang up on me and kept demanding who advised me to contact her. So I told her. She was still then more in the attitude of I cannot help with stairlifts, which was repeated throughout the call. I understand there are notes on her system but it would be nice to have the opportunity to explain our circumstance so she can make a decision as to what to do next if anything. She kept asking me what I want from her (in different words not that it matters anyway as its plain english) and I kept saying what can you do? Till the point I said well what is your job role?? I have left the conversation with her, more angry and upset than I was prior to it, feels like I was talking to a wall, and that as far as she is concerned she cannot help etc, although at one point she did say over and over again she feels the need to contact my midwife to state about my nutritional needs etc, and that she will be passing a referral to Family Welfa...