Posts

Writing:

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All ready to go get my son - with Peter - and take him out for the day. ❤️ Got some writing done yesterday - ended up working on a different book - but all writing is important and as long as I keep chipping away at my books and getting more written - the closer I am to releasing them on my author account on Amazon. I started on a weird fictional piece based on my disabilities and experiences and it's reminiscent of Alice in Wonderland - but a woman with a walking stick that ends up in a fantasy world of self discovery. Let's see where it goes from here. Sarah. ❤️

Meta Horizons:

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 Just signed up today to see Meta Horizon Worlds and what it was all about to get avatar stickers - haven't done anything in the app or game but downloaded and installed it - and I'm not even allowed on it lmao. I don't have a VR headset to even break any rules.   The online world continues to make ZERO sense - unless you have money - then you can access what you want and break any rules.  But if you're me? You get banned before you even get started. Total waste of time creating an account and downloading - if they make things unusable. Sarah ❤️ #meta #metahorizonworlds #metahorizon #unusable #unplayable #glitch #ban #AccessDenied

In the thick of it:

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I've got a lot going on behind the scenes right now. I always say it’s okay to not be okay—but I tend to hide away when I’m struggling, and that’s not being the advocate I want to be. So here I am, being honest: I’m heartbroken. My beloved fur baby is being put to sleep next Wednesday. Life’s been throwing some brutal punches lately, and on top of that, I’m dealing with my usual battles—chronic pain, fatigue, and other personal struggles I’ve been quietly chipping away at. Lately, it’s felt unbearable. I’ve been crying all day, feeling useless, and running on empty. I’m doing my best to stay strong, but right now, I’m struggling to cope. I’ll be staying at my partner’s for another week after today—to escape a bit and take a break from everything. I know I’ll get through this, but it’s going to take time. I need people to understand that I might be online less while I work through it all. Sometimes sharing memes and being around my social friends really helps—but it also leaves me v...

Asking for education is no insult:

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 I just got asked not to ask someone to educate themselves better on disability because they KNOW two disabled people... I absolutely will ask people to educate themselves because people need to educate themselves on how harmful these narratives are on disabled people as a whole. You can't assume they're faking - 0.1% fraud rates and 4.2 billion pounds annually in unclaimed benefits. Your personal struggles doesn't justify misguided hate built on false narratives that use an assumed few to fuel hate for the masses. I'm an independent disability advocate - I advocate FOR your disabled friends and relatives and with good reason - if you knew your words and assumptions harmed them would you change? Disability varies from person to person and hate solves nothing. Focusing on people who fake disabilities—or amplifying the fear that many are faking—creates a culture of suspicion that disproportionately harms genuinely disabled people. This scrutiny forces disabled people to c...

Media is harmful:

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 I've seen people being easily brainwashed to hate disabled people today because of the way the media spins the help and accessibility that's put in place to even the playing field. People creating fake scenarios to justify hate for the disabled and others wishing they could 'sit at home all day'. Imagine you have cancer, but it's not terminal, it's just going to destroy every aspect of your life and instead of being able to die you have to adjust and adapt and learn to live in excruciating agony, low energy, low movements... That's Disability. Stop thinking you can SEE disability when you could never see cancer with your eyes. You're not someone who has X-ray super powers and people you accuse of not struggling aren't around you at their worst. You know nothing of the reality and the media helps fuel your misguided hate. Wish for a permanent illness and you may get one - but considering the people hating are the ones that only care about an issue or...

Daisy Chain:

 I'm seeking help from a company/ organisation for my neurodivergence: they just asked me if their site was accessible for me and I explained my disability and mobility issues and transportation difficulties. They just told me that their support is only available directly on site. Why ask me then? I may lose support now if I can't attend. They're called Daisy Chain and were actually recommended to me on a thread of my hometowns page. They're supposed to support autistic people. Some autistic people have social anxiety - struggles to get to new places too. I don't like inaccessible support because it doesn't support - it rejects. *Worried* I've been abandoned many times before because my disability and mobility issues have not been taken seriously and organisations choose to be inaccessible instead of offering home visits or telephone consultations. An even more anxious Sarah having seen there's no bus stops near there either... Sarah 💔 #AccessibilityMat...

Abuse and abusers:

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I just read an article about a man that abused several elderly people in a care home and only got three years. When abusers are caught - they face silly and very little consequences - that's if it even goes to court at all and they don't get away scot-free! I left a job for the NHS as I was bullied out of it as a teenager for defending disabled people under our care from staff and our boss who could have triggered an epileptic fit by screaming in the face of a lady with epilepsy in our care. I have no ulterior agendas. When I speak out about things it's because I've seen how bad life actually is - I've even lived in the seething abusive underbelly of society - and survived. I turn my pain into power and I action positive change and I won't apologise for expecting that from others. No abuse is ever okay. Period. But our system is a joke and society is even more harmful towards victims of abuse - no wonder many don't feel there's any other way out of this ...