PGP / SPD My story:

Had problems this morning with transport to acupuncture as the receptionist at physio hadn't acknowledged that I was in my own wheelchair and even though she confirmed (last time we were there) we needed a drop down back for wheelchair access, booked an ambulance that was not suitable for wheelchairs, had a ramp-drop down access but no wheelchair clamping facilities to transport me. I was in tears this morning. She did rectify it as I begged her to so I could get there and we did manage to get there so I am grateful however her apologies and attitude was very half-hearted, rude and negative and really upset my husband. Had acupuncture and got home, council called thankfully and is trying to sort out our council tax mysteries, so we were relieved. Then my husband was called to say he has lost his job so we got upset... again. My husband has had to apply for Income Support as carers allowance is no go as my DLA is pending and cannot go on JSA as he would have to bring me every fortn...

I am having to look into rehousing and have contacted my local council in regards to my housing needs, I have sought advice also from social services and my Occupational Therapist who has been more than wonderful. She allowed me to cry my eyes out and confide in her about my problems even though she can only help in regards to my housing needs. A much needed ear and her workplace are very lucky to have someone like her on their team. Why was I crying? I am extremely upset. I have not been able to tackle stairs for 3 weeks now in which means my hygiene has suffered. A quick wash at the sink is all I have been able to have and living off facewipes, I am depressed. At my parents (I am in their care at times) since they have a bath downstairs I attempted to have a bath, it hurt immensely when I opened my legs to step sideways in the bath and cannot stand on one leg therefore fell over into the bath and hurt my pelvis and left leg. (Having been to hospital on Friday the 2nd October with ext...

Are people that work for benefits departments just trained to make you cry afterwards? This is not the first time I have experienced inappropriate comments and attitude when I have been on the phone even just enquiring about benefits, I just wish I had the guts and energy to stand up for myself to them... I find myself politely debating with them as opposed to actually saying, "well that is not for you to decide is it?" or even "I didn't phone you to take abuse or inappropriate comments, I phoned you for appropriate advice and help not your opinion." I phoned DLA to let them know my pain has gotten much worse to the extent going out in the wheelchair is now a problem and told them I am on Clexane, the lady I will only refer to as 'S' was extremely unhelpful. She said she can only put forward that I am on Clexane and not update my information in regards to my immobility and she was making comments like "I hope you are not relying on getting this bene...

We had our first parentcraft class last night, my husband walked me there pushing my wheelchair a 30 minute walk at best, we went early as we had to spend some time in town to post my DLA appeal and a complaint in regards to having being mistreat by a DR from Urgent Care in regards to my disability and my husband. Having got there in the end I was determined to stay and was in a lot of pain, I cannot comment on what people thought of me being pregnant and in a wheelchair but I was determined for them to know the truth, that it was because of the pregnancy / the SPD that I was in a wheelchair, there was a lot of shocked faces. The pain got much worse and unfortunately we couldn't stay, and due to my pain etc we won't be attempting to go again as it is also a 30 minute walk home too and my husband pushing me is just no good, for him or for me as pavements are complex and bumpy and extremely painful when I am jolted. We didn't have transport money this week anyway, so had no c...