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Showing posts with the label pain

The body I live in - 2022 writing:

The body I live in. Written by Sarah Wingfield / Kawaii Doll Decora   The rocky terrain keeps making my ankles twist as I find it hard to gain my footing. Why did my body become this clumsy, tight and painful suit I have to carry like a lead weight in this world? Whilst almost everyone around me floats so effortlessly and smoothly through life? I sigh. Every step I take creates pain, swelling, tenderness, I don't ever remember doing any sports where I never had earache or pulled muscles, tendons or soreness. It went unseen for so long, job failure after job failure with no answers to what was making my health as such. I had people looking at me like I'm the same as them and dismissing me for not being able to perform or operate as robotically as them. When in reality I worked much harder than most, liked to keep busy but needed days and days off where I lay in pain or swelling and my body had yet again let me down. I am disabled. Those words still hit me hard, like a knife jol...

Foot X-Ray:

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 Update on the foot… I’ve had it X-rayed and it’s not broken — which is a relief. But it is soft tissue damage, and honestly that doesn’t make it painless or minor. Soft tissue injuries can be brutal. The swelling, the bruising, the way it throbs when you lower it, the way it reminds you that your body has limits whether you like it or not. People often hear “not broken” and think “oh good, you’re fine then.” But healing is still healing. Pain is still pain. Mobility is still impacted. Especially when you already live in a body that works overtime just to function. So for now it’s rest, elevation, pacing, and listening to my body — even when I’d rather be doing a hundred other things. Disabled bodies don’t get the luxury of pushing through. We adapt. We adjust. We keep going — just differently. Be gentle with yourself if you’re healing from something that “isn’t that bad.” Your pain is still valid. Sarah 🫶🏻 #SoftTissueInjury #ChronicPainWarrior #DisabilityAwareness #HealingInProg...

AI, Access, and the Weight of Other People’s Judgement:

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AI, Access, and the Weight of Other People’s Judgement: It’s easy to criticise AI music when you’ve never had your access to creativity limited by disability. That sentence alone carries more truth than most of the debates I see online. For many disabled artists, AI isn’t a shortcut. It isn’t laziness. It isn’t a lack of skill or passion. It’s an access tool. Full stop. When people argue about “artistic purity” or “real musicianship,” they often forget — or choose to ignore — the very real, very physical barriers that disabled artists face before we even get near the creative part. Accessing looper packs. Affording beats. Navigating software designed without disabled bodies or neurodivergent minds in mind. Enduring pain, fatigue, brain fog, seizing up, limited mobility, or being bedbound — and still wanting to create something meaningful. These aren’t abstract concepts to me. They’re my life. I didn’t start making music for clout or controversy. I started because I was bedbound for ov...

Turn pain and lessons into power and action: Disability Rights:

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 Turn pain and lessons into power and action. ❤️✨ Disability Rights: Alt text: An illustrated group portrait of diverse individuals of different ages and abilities, including children, adults, and elderly people. Several are seated in wheelchairs, one uses a cane, and others are standing, showcasing visible diversity in disability. The group is facing forward with calm, determined expressions. The text above the group reads, “Turn pain and lessons into power and action.” Below, it says, “Disability Rights.” A heart in the top right corner contains the words “Kawaii Doll Decora,” and the same name appears vertically along the left edge as a watermark . I’m exhausted by the state of the world — but more determined than ever to change it. People need a reality check. The disabled community needs authentic voices, because those merely playing at supporting disability are revealing their true colours. Masks are slipping. And ableism persists — even from within our own community. When a ...

Pursue Yourself:

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 Pursue yourself. Self-reflect. Set little goals. Celebrate little wins. Be kind when you make mistakes or struggle — you’re flawed, and that’s okay. Just learn from it. Let people hate and misunderstand you. Try to spread kindness where you can — it’s needed. Always speak up. Action positive change. Challenge what needs to be challenged. Work with others. Find your spirit tribe, even if it’s only online. Let others be wrong about you. Be honest in the face of injustice. Even if others laugh or belittle you — stand stronger, speak louder, and never quit. Hit pause, but never quit. Rest is necessary for balance. Meditate on problems. Relax and think about what is within your control to change. Never ask, “Why me?” Instead ask, “What can I do?” “What is this teaching me?” Your path is always the right path. ❤️ — Sarah 🌹 #positivevibes #positiveenergy #mindset #progress #goals #Support #positive  Alt text: Black background image with white text that reads: "Uncommon advice: If y...