PGP / SPD My story:

Well the meetings today.... I have lost a family friend she has died, i have the meeting today about our life and whether we can have the stairlift and adaptations that we need, and i had the police round yesterday about the hospital incident and they say I have to complain directly to the hospital. I have been let down and personally attacked unfairly by a seller of *product info removed* items who feels it is appropriate behaviour to slander and abuse people that state the truth (when something goes wrong) with what she sells.... what is the world coming to .... ...I am going through enough and she knows this, to personally slander and attack a 'compliment' i left on her shop is unprofessional especially when she is defined as 'customer support' for the whole shop community site and to have had the offensive remarks I have had since I first purchased from her I never knew it was her on the ebay site and she made me buy outside ebay on her personal shop site ...

..A noose that is unwanted and put there by so called professionals trying to help, who are just making things more complicated and causing more suffering if you ask me. (Don't worry was merely a metaphor.) I finally gained access to much needed services, i.e. Pain Management Clinic and Physio experienced in Manual Therapy, when we receive the initial assessment from Social Services, which *surprise, surprise* was based on some false information too! The ex consultant of mine and ex midwife accused me of 'exaggerating' my condition and stated that I sought access to Adult Services and additional help RE: my condition, without consulting them. Do these people NEVER write anything down? I asked, I begged, I screamed, I cried, I gave up and tried to help myself, as they refused me the help I need. So now I hope they are happy as Welfare have defined our young son as "a child whose vulnerability is such they are unlikely to reach or maintain a satisfactory level of health ...

Well right now I am on lot's of morphine. 2x 10mg of morphine slow release morphgesic tablets in AM and again in PM can be increased to 3 AM and 3 PM if needed and 4x 5ml of Oramorph allowed every 4 hours daily = 40mg Morphine. I have had to stop breastfeeding to do this when baby was 14 days old and it's really got to me, had plenty of tears and just gutted, miss it sooo much... BUT I am more use to baby like this as it allows me to be a little more mobile sometimes. Mainly I am completely immobile and my pelvis is constantly locking up but atleast morphine is helping. I cannot lie on flat surfaces and had to sleep on sofa for ages! I am only just in bed now by piling lots of pillows up and i mean 7 pillows in total and another one making it 8 cushions that goes under my knees. My pelvis still locks as I have not had my O.T visit yet and the pillows keep falling over etc... so i need something else to aid me with the bed height or I am stuck immobile completely and cannot even...

After the birth things were not so good, the nurses on this ward didn't understand SPD too much. ONE THING I WILL THANK THEM FOR: They let my husband stay all 8 days I was in hospital with having my baby. He slept on an airbed on the floor, BUT I DID NEED HIM as the staff were not equipped for my SPD and couldn't move me and didn't understand the SPD. When we first went in a lovely nurse said that my husband was there to support me and not insured or authorised to be my carer there and that the hospital were responsible and my care were in their hands. Things went downhill from here. 1st day after birth they made me get out of bed and try and have a shower during visiting times too 6:30-7:30pm when my parents were outside!!! I was screaming!!! Really screaming!!! This affected me really badly and I was in agony. Later on there was nights where I had to have gas and air and really struggled. I worked with my husband to try and get mobile, and all my efforts were not recorde...

I will add this here while I have just remembered. During the talk with what is now my ex consultant in regards to the psychosomatic, unjustified diagnosis, my endometriosis was mentioned. He said to me that he had operated on me in the past due to abdominal pains as a question, I said yes, my 2nd laparoscopy in which you lasered my left ovary due to endometriosis (as he had previously stated many times over the last year). He replied that he only lasered me (my husband as witness) as I was complaining of pain all the time! As if to imply I never had endometriosis.... so did I or didn't I Mr. Consultant? What is your game? ...and if I did not, what has been causing me agony abdominally since 14 in relation to my periods?? As you said yourself polycystic ovaries are not painful? Or was that psychosomatic as well? Surely it is illegal to choose to tamper/operate/treat someone for something they ''do not have''? I really suffered through both laparoscopies and pain wa...