PGP / SPD My story:

From My Bed, I Built a Lifeline: When I ran a helpline during the years I was bedbound, I came across far too many women from all over the world calling me for help, support, and simply someone to listen. Some were pregnant with their first child. Others their sixth or seventh. Many had been abandoned. I listened, comforted, reassured, and helped them navigate systems that often seemed impossible to access. One woman's story has stayed with me all these years. She was pregnant with her sixth or seventh child. Her husband had left her. She was alone, disabled, in pain, caring for multiple children, and had no support network around her. I helped her explore what support might be available, including carers, adult social services, advocacy referrals, and local assistance. I wrote supporting letters and helped signpost her to services that could make a difference. All whilst I was bedbound and housebound myself, living with permanent Symphysis Pubis Dysfunction (SPD) and Ehlers-Danlos...

AI, Access, and the Weight of Other People’s Judgement: It’s easy to criticise AI music when you’ve never had your access to creativity limited by disability. That sentence alone carries more truth than most of the debates I see online. For many disabled artists, AI isn’t a shortcut. It isn’t laziness. It isn’t a lack of skill or passion. It’s an access tool. Full stop. When people argue about “artistic purity” or “real musicianship,” they often forget — or choose to ignore — the very real, very physical barriers that disabled artists face before we even get near the creative part. Accessing looper packs. Affording beats. Navigating software designed without disabled bodies or neurodivergent minds in mind. Enduring pain, fatigue, brain fog, seizing up, limited mobility, or being bedbound — and still wanting to create something meaningful. These aren’t abstract concepts to me. They’re my life. I didn’t start making music for clout or controversy. I started because I was bedbound for ov...