PGP / SPD My story:

I hate that I am on 200mg of morphine a day and I am still in agony and my SPD was supposed to start to get better and mines just getting worse *sobs* I am sick to death of malicious people on the internet that are closed minded and judgemental when you try and help with a situation and suggest something that may be of use in a reply to a wanted post. If the suggestion is not of use then merely ignore it or state so! There is no need to judge me or make false allegations as you do not know me nor what I have to go through everyday! I am sick of having to justify myself to people and hope that this person is very proud of themselves! Especially when i sent an apology and checked the rules with the moderator by messaging them, this person slandered me and made false allegations to the moderator to bully me and have me removed without knowing anything about me and failing to accept i was actually genuinely trying to help. Unlike them the internet is my main point of communication and con...

For the last few weeks my pain has got worse (it was always constant) but now it's much worse and it is keeping my husband and I awake. I am sick of all this torture , it's bad enough being in pain all the time but thinking about if that person sat behind that desk at DLA who needs to make an opinionated assumption as to whether they feel I need 24/7 care without sending me a medical assessor experienced in severe SPD, declines me again despite factually needing 24/7 care our lives will just get much worse as we are not eligible for anything. It's not like we can say, oh OK then, our bad.... my husband still cannot work, I still need 24/7 care and we have no choice but to appeal again to take it to a tribunal. I have sent them confirmation in letter form from my G.P stating I am likely to have it months after the childbirth due to the severity of my SPD, documents on minor (some areas severe) SPD and requested a home medical assessment in an essay of a letter about my ind...

My husband has been offered a job position, we don't know when it would start as it may even start next year but just incase it was to start immediately we phoned social services who cannot provide 24/7 care and only do pop out visits (the problem is its during the week full time) so he cannot even do that as he needs to 'babysit' me.... Everything keeps making me feel like a problem. My husband however has said that I come first and I cried into his arms for a bit, I love his cuddles, and that as it is a fact that I need the 24/7 care he is not going to jeopardise my or our unborn baby's health just because others cannot see nor accept this fact. I am in agony now and we have not slept right for 5 nights in total now due to my pelvis pain. I am sick of the commode but I guess I have to get use to it anyway as the new house doesn't have a downstairs toilet and the social and others have said I don't need one as I have that. I wonder how they expect me to shower!...

Seriously considering swallowing whatever pride and dignity I have left if I have any left now, and go to the media... to let the media know what the system are doing to people. I can see myself seriously ending up in hospital as no one can help us. Because I have this disability that is SPD I need: A stairlift = cannot get help for one cannot rent one due to financial situation and due to L shaped stairs. The internet: Costing us £60.00 to move to our council property to avoid homelessness. (we have to do online shopping/banking/the only communication i have with the outside world etc) The phone line for emergencies and the internet: £122.50 cost from BT as the council house doesn't have any wiring or a phone socket/access. The key meter is no good as we cannot top it up due to my care so Npower were willing to change it for free as we have been customers for nearly 2 years but take 28 days from the date we move in, and they said the gas and electric are with powergen. The lady I ...

We went to view the council property today and we have accepted it as we have to. We have no cooker and as it is a council house theres no carpets/wallpaper/decor at all, there isn't even lightbulbs lol but we can sort lightbulbs. The council told me that they don't have any bungalows for elderly let alone for disabled and that if I sent my information to them about my medical needs the only houses they can offer me are two bedroomed properties in which all two bedroomed don't have downstairs toilets. So we have taken this two bedroomed property. Only three bedroom properties have downstairs toilets and with the problems I have had I don't think I will ever be able to have a second child. I need to be able to look after my first and at the moment I need 24/7 care myself and life really sucks! I am just worried and sick of all this verbal promised help and support and there isn't any at all. I phoned my O.T who is not available and her colleague stated she wouldn...

I am still broken hearted that we had a death in the family recently, which hit the whole family hard so we cannot even try to imagine what the mam (our relative) feels like. It was unfortunately the death of a baby which we all loved. I am not going to go into details as I don't want to upset the lady I am talking about as she has been through enough. What I will say is at the funeral my heart was broken for everyone especially the mother, our relative whom I think the world of, she is the most amazing lady you would ever meet and a fantastic mother. Heart of gold! I felt awkward and in the way as I attended with my wheelchair and didn't want people to make such a fuss when I was offered the opportunity to throw petals which is bringing me to tears now, just thinking about it. We will never 'get over' this and we will carry her memory in our hearts forever. * * * I am now injecting myself daily with Clexane which is not exactly a nice experience. (This is because I c...