PGP / SPD My story:

I know that living with SPD is difficult enough, but mix that with a joint condition and it is a whole new ball game. But, that does not mean that you cannot get the help you deserve.  http://www.hypermobility.org/   are a HMS Charity that has guided me through some of the tough times with HMS. If you become a member like i have, you receive lots of important and relevant information, and if your blessed to be in an area where they meet up, in which i am not, then you can discuss things with others who are in the same situation. I cannot update anything else as the Health Psychologist Department have not been in touch despite the fact that i was informed ONLY the Pain Psychologist Dept, have dismissed me. I am losing faith and losing patience and i am very grateful to be able to receive counselling yet again via my GP. But this counselling is not the psychology i need to be able to accept this disability to the full. Many women struggle accepting SPD, HMS and ev...

For confidentiality purposes and for respect of identity protection, personal info about myself and the lady who replied have been removed. They are irrelevant... (my emails are black text, hers are purple.) Things in brackets are where I have removed content, think you'll see these clearly: My last e-mail reply: -------------- "FYI, I am not a sales person, i am not selling anything, especially my disability, i have suffered for a long time and i don't want any other women to go through what i am going through and i certainly was not 'pitching' i understand that you deal with many people looking to make lots of money to line their pockets but i am proud to state i am not one of them. I have worked for my money, helped charites, worked for the NHS as a L.D. Nurse cadet, with all the fantastic disabled children and adults the world decide to shut out. I was trying to contact magazines that state they care about women and their pregnancies but i see now that maybe yo...

Well right now I am on lot's of morphine. 2x 10mg of morphine slow release morphgesic tablets in AM and again in PM can be increased to 3 AM and 3 PM if needed and 4x 5ml of Oramorph allowed every 4 hours daily = 40mg Morphine. I have had to stop breastfeeding to do this when baby was 14 days old and it's really got to me, had plenty of tears and just gutted, miss it sooo much... BUT I am more use to baby like this as it allows me to be a little more mobile sometimes. Mainly I am completely immobile and my pelvis is constantly locking up but atleast morphine is helping. I cannot lie on flat surfaces and had to sleep on sofa for ages! I am only just in bed now by piling lots of pillows up and i mean 7 pillows in total and another one making it 8 cushions that goes under my knees. My pelvis still locks as I have not had my O.T visit yet and the pillows keep falling over etc... so i need something else to aid me with the bed height or I am stuck immobile completely and cannot even...

Well on the 20th November 2009 our baby boy was born :D I was 2-3cm's dilated anyway but I had to be induced early 38+2 due to SPD pain and had my waters broken and took in my birth plan etc... The contractions were fine but the pelvic pain was unbearable and as the baby moved further down etc. it got too much so needed an epidural. I had epidural top ups and gas and air too. My husband was by my side throughout and he was a godsend, I am really lucky! I was in labour 13 hours and tried to push the baby out for an hour - hour and a half and he was just stuck. Ended up having an emergency C-section after a second top up of epidural and he was just perfect. Apgar score of 9! I lost a lot of blood and had a drain placed in and was given a prolene stitch with bead ends. All in all: There will be no other moment in my husband or I's life that will come even close to the birth of our son. Apart from the SPD life is perfect! The nurses were perfect, midwife (M) she was fantastic!!! Th...

"Baby born two days too soon is left to die Sarah Capewell says her baby, Jayden, lived for two hours after being born at 21 weeks and five days' gestation. Premature baby 'left to die' by doctors after mother gives birth just two days before 22-week care limit (dailymail.co.uk, 08 September 2009) Bereaved mother's campaign against medical guidelines that allow premature babies to die (telegraph.co.uk, 05 September 2009) Premature ‘little fighter’ challenges abortion limit (30 June 2009) Sextuplets mum ignored doctors' abortion advice (15 June 2009) Healthy baby born after mum was told to abort (26 March 2009) Mum slams abortion law as 23-week baby lives (07 January 2009) Wednesday, 9 September 2009 A young mother watched her baby son die in her arms after doctors refused to help because he was born two days too soon and therefore ‘just a foetus’. Sarah Capewell gave birth to Jayden after 21 weeks and five days of pregnancy. But doctors refused her desperate pl...