PGP / SPD My story:

Foodvisor: One month. One stone. 🎉💚 I'm so proud of myself! Living with AuDHD, EDhS, POTS and chronic pain means consistency can be incredibly difficult. Executive dysfunction, pain, fatigue and fluctuating energy levels can all make healthy habits much harder to maintain. That's why losing 1 stone in a month feels like such a huge achievement for me. 🥹👑 I've been using the Foodvisor app to help me track my food, stay accountable and make more mindful choices. It's really helped me build healthier routines without feeling overwhelmed. This isn't about perfection—it's about improving my health one step at a time and celebrating progress, however big or small. If you're on your own health journey, keep going. Every positive choice counts. 💚✨ Sarah Wingfield ❤️  Actor • Author • Advocate  KawaiiDollDecora.uk #WeightLossJourney #Foodvisor #HealthJourney #AuDHD #Autism #ADHD #ChronicIllness #ChronicPain #hEDS #POTS #DisabilityAwareness #Neurodivergent #SelfC...

The body I live in. Written by Sarah Wingfield / Kawaii Doll Decora   The rocky terrain keeps making my ankles twist as I find it hard to gain my footing. Why did my body become this clumsy, tight and painful suit I have to carry like a lead weight in this world? Whilst almost everyone around me floats so effortlessly and smoothly through life? I sigh. Every step I take creates pain, swelling, tenderness, I don't ever remember doing any sports where I never had earache or pulled muscles, tendons or soreness. It went unseen for so long, job failure after job failure with no answers to what was making my health as such. I had people looking at me like I'm the same as them and dismissing me for not being able to perform or operate as robotically as them. When in reality I worked much harder than most, liked to keep busy but needed days and days off where I lay in pain or swelling and my body had yet again let me down. I am disabled. Those words still hit me hard, like a knife jol...

Becoming Who I Dreamed Of: I just wanted to take a moment to be present and truly appreciate how far I’ve come. There was a time I was bedbound and housebound, fighting every single day just to get through life — and if you had told me five years ago that I’d be stepping onto a movie set next month, she would have laughed in disbelief. Yet here we are. I work epically hard across everything I do, and because I’m always focused on future goals and building the next project, I don’t always stop to appreciate what I’ve already achieved. But today, I am. I’ve built incredible connections across the music industry, film industry, Juggalo fam communities, charities, advocacy groups, and community organisations. Behind the scenes, we’re still pushing forward with mental health awareness, supporting Let’s Talk North East CIC, setting up community spaces and continuing to create meaningful change. Creativity has honestly kept me alive. I love creating, building, connecting and helping people. A...

 Update on the foot… I’ve had it X-rayed and it’s not broken — which is a relief. But it is soft tissue damage, and honestly that doesn’t make it painless or minor. Soft tissue injuries can be brutal. The swelling, the bruising, the way it throbs when you lower it, the way it reminds you that your body has limits whether you like it or not. People often hear “not broken” and think “oh good, you’re fine then.” But healing is still healing. Pain is still pain. Mobility is still impacted. Especially when you already live in a body that works overtime just to function. So for now it’s rest, elevation, pacing, and listening to my body — even when I’d rather be doing a hundred other things. Disabled bodies don’t get the luxury of pushing through. We adapt. We adjust. We keep going — just differently. Be gentle with yourself if you’re healing from something that “isn’t that bad.” Your pain is still valid. Sarah 🫶🏻 #SoftTissueInjury #ChronicPainWarrior #DisabilityAwareness #HealingInProg...

It's rare disease day every single day for me. 🦓 Today is no different but what IS awesome about today and this week?! #Awareness!! Awareness means people understand my struggles better, it means the difference between being judged and shouted at and someone understanding and showing compassion. It helps. Keep helping. Sarah Wingfield ❤️  Independent Disability Advocate  #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights #rarediseaseawareness  Alt text: A pastel rainbow kawaii quote image about Rare Disease awareness. At the top, colourful text reads: “It’s rare disease day every single day for me. 🦓 Today is no different but what IS awesome about today and this week?! #Awareness!!” In the centre, a cute chibi girl with pink and purple hair wears a zebra-striped hoodie and holds a heart. Beside her is a smiling cartoon zebra with a green bow. Awareness ribbons in different colours float around them, along with he...

EDS, Hypermobility and hEDS/EDhS affect everyone differently—even when we share the same diagnosis. Many of us experience similar symptoms and familial patterns, but our day-to-day realities can vary hugely. This is just one version of how EDS can show up in someone’s life. For example, I don’t have flat feet—but I’m affected by nearly everything else on this list, and more. I'm proud to share this to raise awareness, because dynamic disabilities and invisible illnesses aren’t something you can see. You can't diagnose us with your eyes. So I ask you—look beyond the photo. Think outside the frame. See the whole picture. Thank you for taking the time to read. If you know someone with an invisible illness, why not share this with them? Let’s remind them: You are loved. You are seen. You are not alone. With love, Sarah Wingfield ❤️ Independent Disability Advocate #DisabilityInclusion #StrongerTogether #DisabilityAwareness #DisabilitySupport #DisabilityRights #ChronicIllnessWarrior ...