PGP / SPD My story:

Help us someone... Some one please help me, as i am suffocating from the system we have in place, a system in which is breaking me as a person as i am already broken as a mother as my son has cancer, this is such an emotional suffocation of hurt for my son and the wish i could change places with him, the hope, our miracle that is our son, can survive and the maliciousness of humankind that has shown its ugly head at a time our family should be supported, not attacked, could be somehow hidden from our son, so we can protect him from it, but it is him that suffers with us. We should not be investigated or have a child protection conference for a child that is already protected by my husband and i, and his grandparents. I would DIE for my son, i would take a knife, a bullet, anything for my son to be able to live, even if for only a second longer than god has planned, because my son IS my life. He IS our life, and they are all asking us to forget it is happening, put it in the back...

..I havent wrote in this for a long time as I have been struggling to come to terms with the fact I am now disabled for life. I have hypermobility syndrome and I keep seazing up and cannot move, we now have carelink. (this caused my severe SPD) Something traumatising happened to me at a local hospital to the extent i have to vent about it, i need to talk about it and i need to get over it! (update urgently, i have just heard an answerphone message from the dr stating her name askign if my husband can come to a and e as i am being violent and aggressive to members and staff and the public and can he come urgently please, i hope they have cctv please God let them have cctv!!!) Phoned the police and they said i need to complain directly to the hospital...so I am going to do that, I notified icas and p.a.l.s. already and just waiting for some help... How can she do this to me??? I was immobile left on the floor screaming for help...... i am shaking, i just want to be left al...

I have been hiding away and avoidant again for a while but now i need to speak up again... Xmas is over now and we had a nice xmas as we stayed at my parents and they had bought a sofa and a matching sofa bed for their living room just for us!! Can you believe it, changed their furniture just so i would be able to sleep over at xmas. I love them so much! We are still fighting for a stairlift, our son is 6 weeks old 1st january and I am still trying to get my 6 weeks check up. Whats happened about the stairlift? Well, my new consultant originally refused to send social a letter about me as he refuses all his patients since a check from the county council previously bounced therefore its been seriously held up. My SPD's getting much worse and a while ago now i was in hospital with the stomach pains, different to SPD pains and the consultant who saw me on the 10th the one who discharged me without telling me who i was reassigned to on the 10th Dec said that it would subsid...

For confidentiality purposes and for respect of identity protection, personal info about myself and the lady who replied have been removed. They are irrelevant... (my emails are black text, hers are purple.) Things in brackets are where I have removed content, think you'll see these clearly: My last e-mail reply: -------------- "FYI, I am not a sales person, i am not selling anything, especially my disability, i have suffered for a long time and i don't want any other women to go through what i am going through and i certainly was not 'pitching' i understand that you deal with many people looking to make lots of money to line their pockets but i am proud to state i am not one of them. I have worked for my money, helped charites, worked for the NHS as a L.D. Nurse cadet, with all the fantastic disabled children and adults the world decide to shut out. I was trying to contact magazines that state they care about women and their pregnancies but i see now that maybe yo...

I am still broken hearted that we had a death in the family recently, which hit the whole family hard so we cannot even try to imagine what the mam (our relative) feels like. It was unfortunately the death of a baby which we all loved. I am not going to go into details as I don't want to upset the lady I am talking about as she has been through enough. What I will say is at the funeral my heart was broken for everyone especially the mother, our relative whom I think the world of, she is the most amazing lady you would ever meet and a fantastic mother. Heart of gold! I felt awkward and in the way as I attended with my wheelchair and didn't want people to make such a fuss when I was offered the opportunity to throw petals which is bringing me to tears now, just thinking about it. We will never 'get over' this and we will carry her memory in our hearts forever. * * * I am now injecting myself daily with Clexane which is not exactly a nice experience. (This is because I c...

I have been stearing away from updating my blog as lot's more things have happened and I basically have not been able to deal with them right now. I have become more introverted and have never felt more alone. I keep venting on facebook and all I can imagine is that people will have gotten sick of me whinging by now, that lass who always feels sorry for herself etc..... well I don't feel sorry for myself I just don't have anyone to talk to and feel so alone right now. Never in my life have I been in a position where I cannot walk. I have been in positions before where I have been in constant pain for long periods of time but from those I had gaps in. i.e. endometriosis etc. This time I have had no gaps and it hurts everytime I move, even the slightest. What mam can I be now? My husband will have to help again so much and it really is not fair on him. I spend most of my life trying to cheer people up and help people and right now I feel like everyone is my enemy, but I have ...