PGP / SPD My story:

Why do they make it such a stressful experience when you call G.P's? They don't take me seriously, do they really think I am crying for nothing and lazy as opposed to actually being housebound and in a serious amount of pain? I'm fed up of this treatment and I will no longer be putting up with it, I am struggling to cope with my pain without meds and I am sick of not being treat with respect or taken seriously by them, enough is enough! Even if it means I now have to write formal complaint after formal complaint and document everything , something seriously needs to be done; I am not prepared to be disabled for the rest of my life and I have the right to help and to not be made to suffer like this. I am crying as I need their help, so they should be helpful, instead of saying inappropriate opinionated remarks that there is no need for, are unjustifiable and unprovoked. Today I am proud to say that I finally cut myself off and stated that I do not have to justify my conditi...

*OH SO ALL SEVERE SPD SUFFERERS ARE PSYCHOSOMATIC AND PUTTING THEIR CHILDREN AT RISK ARE THEY?* My baby has dropped now so I am really excited, in all this madness and mess he is so fantastic we were playing with Mr. lumpy as he is known now despite us already having given him a name, all night and he was so responsive, he is so beautiful already and I cannot wait to meet him. In all this chaos he is the best thing that is happening right now. Got a call from my G.P today, the call was so-so... I am disappointed as the NHS have failed to provide me with a medical professional experienced with SPD or even experienced in pelvic joints, so looks like I am going to have to go privately if I want to be taken seriously. As fine as I am to see a psychiatrist I do not understand how they are so keen as to suggest it is psychosomatic when failing to even be prepared to allow me the assessment of an experienced individual who can confirm my condition or as they seem to want at the moment confirm...

It's been a while since I updated the blog, that is because we have now moved house as we had to and we have been waiting for our broadband to be reactivated. I have become depressed due to the disability I now have to 'put up with' and got myself a psychiatric assessment as I was also sick of health professionals not taking me seriously and acting like I could just walk when I really cannot. I have accidentally tried as I have been half asleep or in a world of my own, and my body immediately reminds me that I cannot and I will suffer for it :( The diagnosis? That I am quite optimistic despite the situation and my concerns are for my baby to make sure my baby has the best he can have, also that the problems I am facing are very real and not psychosomatic and that anyone who would have to adapt to such a severe disability despite the cause would feel the same. This has also been confirmed by social services and my health visitor was fantastic, a great shoulder to lean o...