PGP / SPD My story:

Seriously considering swallowing whatever pride and dignity I have left if I have any left now, and go to the media... to let the media know what the system are doing to people. I can see myself seriously ending up in hospital as no one can help us. Because I have this disability that is SPD I need: A stairlift = cannot get help for one cannot rent one due to financial situation and due to L shaped stairs. The internet: Costing us £60.00 to move to our council property to avoid homelessness. (we have to do online shopping/banking/the only communication i have with the outside world etc) The phone line for emergencies and the internet: £122.50 cost from BT as the council house doesn't have any wiring or a phone socket/access. The key meter is no good as we cannot top it up due to my care so Npower were willing to change it for free as we have been customers for nearly 2 years but take 28 days from the date we move in, and they said the gas and electric are with powergen. The lady I ...

Are people that work for benefits departments just trained to make you cry afterwards? This is not the first time I have experienced inappropriate comments and attitude when I have been on the phone even just enquiring about benefits, I just wish I had the guts and energy to stand up for myself to them... I find myself politely debating with them as opposed to actually saying, "well that is not for you to decide is it?" or even "I didn't phone you to take abuse or inappropriate comments, I phoned you for appropriate advice and help not your opinion." I phoned DLA to let them know my pain has gotten much worse to the extent going out in the wheelchair is now a problem and told them I am on Clexane, the lady I will only refer to as 'S' was extremely unhelpful. She said she can only put forward that I am on Clexane and not update my information in regards to my immobility and she was making comments like "I hope you are not relying on getting this bene...

With health professionals (midwives) scaring the sh*t out of me about how we will cope when the baby is born I took it upon myself to phone social services myself. I asked for help for now, told them our situation and everything. They have been more than helpful. My husband is now officially my registered carer, they have been out to visit us, opened up our world a bit by offering advice, support and cheaper transport options. This is the adult section but they have said since my husband is going to be there most days as he is now the baby would'nt be defined as 'at risk'; there is no psychological issues etc. Midwives are still commenting though. It has taken me years to conceive and now I have, I have got SPD and my life feels like it has turned upside down. They are looking into financial help as the govt. are not very favourable to couples under 25 who are married, and we live in a Private Rented house, don't get me wrong we have been trying for a council house for ...