PGP / SPD My story:

http://www.youtube.com/watch?v=3LhNHSVSJDA The above is a link to a video about my EDS, Ehlers Danos Syndrome, this is part of Hypermobility Syndrome. Please watch.

Well, I was OK, I have just fallen, and really hurt myself, severely, and I am on sooo much meds already. My husband was taking a shower as I was on this laptop sat on the settee and the baby was fast asleep in his cotbed, and he wasn't going to be long. My mobile rang, I tried to do what I get help with, but due the lack of promised GRAB RAILS I fell over, knocked a stool over, nearly broke my plaster hand jewellery holder that I am painting and was a present from my husband, and I grabbed onto the bed (all this is short distances away from each other as we are forced to live in our living room still. I used the bed to pull myself up from the floor and grabbed my phone which was on charge on the other side of the bed where the sockets are. It was my grandma, my great. grandad whom i love sooo much and really care about is still really ill, having been in and out of hospital I don't know if he is out right now or not, she was trying to phone my Auntie instead, she a...

..I havent wrote in this for a long time as I have been struggling to come to terms with the fact I am now disabled for life. I have hypermobility syndrome and I keep seazing up and cannot move, we now have carelink. (this caused my severe SPD) Something traumatising happened to me at a local hospital to the extent i have to vent about it, i need to talk about it and i need to get over it! (update urgently, i have just heard an answerphone message from the dr stating her name askign if my husband can come to a and e as i am being violent and aggressive to members and staff and the public and can he come urgently please, i hope they have cctv please God let them have cctv!!!) Phoned the police and they said i need to complain directly to the hospital...so I am going to do that, I notified icas and p.a.l.s. already and just waiting for some help... How can she do this to me??? I was immobile left on the floor screaming for help...... i am shaking, i just want to be left al...