PGP / SPD My story:

 Today I Listened — And That’s a Win I did a lot of walking today. More than I’ve done in a while. My body ached, my joints screamed a little louder with each step… but I kept going — gently, mindfully, and with purpose. And then… I stopped. Because my body told me, that’s enough. And for once, I listened. Pacing isn’t weakness. It’s wisdom. When you live with chronic pain, it’s so easy to push past the warning signs — to chase the version of yourself you used to be or think you “should” be. But today I made a different choice. I walked. I rested. I honoured the signals. I prevented a flare — not perfectly, but enough to know that if I had pushed any further, I’d be suffering far more than I am now. And that makes me proud. Because listening to your body isn’t always easy. Slowing down when the world glorifies hustle and endurance takes strength. Real, raw, quiet strength. So yes, I’m sore tonight. But I’m also empowered. Because today, I didn’t betray my body — I worked with it. T...

  #ChronicPain #MedicalCannabisUK This is satire— But the stigma? Very real. The UK has a lot of catching up to do. People deserve the autonomy to choose how they manage their pain and administer their medication. For some, it’s life-saving. For others, it may not be the right fit. That’s why I’ll always advocate for education alongside legalisation— Just like we already do with alcohol and cigarettes. I hope one day we won’t be penalised for how we survive. Sarah Wingfield Independent Disability Advocate #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights

Covered in sand but so happy because there used to be a time I never thought I'd feel sand again or grass under my feet. 🥰 Sarah x #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights

Today is my birthday. I may not yet be where I want to be, but I am incredibly proud of how far I’ve come. After spending over a decade bedbound and housebound, I’ve changed my life — for the better. Through it all, I’ve never stopped trying to uplift and support others. Even from a hospital bed, I made it my mission to help women across the world avoid wheelchairs from SPD/PGP (symphysis pubis dysfunction) by sharing vital physio knowledge — knowledge that saved their mobility and dignity. I’ve become an author, blogger, producer, music artist and actress. I’ve contributed to films, performed in charity plays, and spoken up in council meetings. I fought for seating at local bus stops because I knew how important that small win could be for someone in pain. I’ve dedicated time to charities and supported organisations — even when I was mistreated, sidelined, or discarded. I’ve been relentless in my advocacy. I would’ve loved to be a local councillor, to represent those whose voices ofte...

I have dedicated my personal time and energy to supporting DurhamEnable, including attending funding forums and actively contributing to its mission. To be mistreated in this way, followed by an evasive and inadequate response to a serious complaint—with no clear or definitive social media policies provided—has left me unable, in good faith, to continue trusting your organisation. The decision to terminate the podcast, which was part of the employment-seeking support, based on vague and unsubstantiated accusations, amounts to direct discrimination against my community. It is both unprofessional and unacceptable. I can no longer continue engaging with an organisation that lacks transparency, integrity, and accountability—particularly when it fails to uphold the very principles of support and inclusion it claims to stand for. This is not support. This is a harmful and maladaptive response that undermines the very people you are supposed to empower. Sarah Wingfield  Independent Disabi...

Durham County Council  DurhamEnable  #formalcomplaint #evasive #discrimination #falsecareforwellbeing #noremorse #noaccountability #disabledvoices #DurhamEnable #EmploymentSupport #vague #unprofessional #durhamcountycouncil #dailymail #article #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights Subject: Formal Response to Podcast Termination and Lack of Transparency Dear Helen, This response is wholly inadequate. It fails to address any of my direct queries regarding your social media policy, and it is both unreasonable and evasive to cite "drug use on social media" without clarity, context, or a specific link to my conduct. No reasonable person could accept that as a justified or coherent explanation for terminating my podcast. At no point was any evidence presented that related directly to me. I welcome the recent press coverage that exposed this, as it is clear your actions lack both transparency and accountability. ...

https://www.dailymail.co.uk/news/article-14825319/Council-shut-disability-podcast-photo-cannabis.html #news #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights DurhamEnable Durham County Council #news #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights DurhamEnable  Durham County Council 

Disability Pride Month My disability is a part of me and there needs to be more education and awareness on invisible illnesses and dynamic disabilities. I'm not faking, I'm surviving. Sarah Wingfield  Independent Disability Advocate  #Disabledpride #DisabilityPride #Pride #DynamicDisabilities #InvisibleIllnesses #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights

I've done nothing wrong and I keep losing my Facebook profiles and I'm being unfairly sabotaged by Facebook. I'm now suspended from recommendations for sharing a picture of my face.  It's really crazy how unfairly Facebook is treating some of us. I am a beta tester for Facebook and this is still happening to me when all I try is to help! I can't even verify with meta verification because I get this warning ⚠️ notice or error notice (see last image). Sarah x #Facebook #Meta #Metapaysupport #MetaforDevelopers #Kawaii Doll Decora

 Today I found something unexpected. Tucked away between old notebooks and faded photos was one of my “happy books”—the kind I used to make when the world felt too loud and I needed a place to dream. I must’ve been around sixteen when I made it. Back then, life felt like a constant storm of “what ifs” and “will I ever?” but somehow, in the middle of it all, I wrote down a list. A list of what I wanted to become. The dreams. The goals. The things I quietly hoped would one day be mine. And reading it now, I couldn’t help but cry. Not sad tears—just this overwhelming surge of pride, awe, and disbelief. Because… I’ve done so many of them. Not perfectly. Not always the way I imagined. But with every ounce of energy I had—fighting through pain, exhaustion, grief, disability, and doubt—I did them. I became them. I think about that sixteen-year-old girl often. How she was hurting. How she had no idea what the next few years would bring. How people doubted her—how she doubted herself. How s...

If you don't like me, unfriend me off the internet 💯 We all know someone who stalks our pages, never likes anything, just keeps an eye on you for personal gain so they can criticise you behind the scenes and some have even sabotaged opportunities and caused discrimination and unfairness regarding my disability advocacy. Why they can't just unfriend or block - I don't know. My energy is reserved for uplifting others, not causing harm. Period. Do better. Be better. #StrongerTogether  #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights #fyp #unfriend #hate #haters #block 

It was a pleasure to visit the Knife Angel today - if you haven't yet you can see it until the 28th June!  Three more days it's in Newton Aycliffe! I'd like to see all of your knife angel images! Sarah Wingfield ❤️ Proud Newtonian  Independent Disability Advocate #Newtonian #NewtonAycliffe #KnifeAngel #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights

After all of this rebuilding my Facebooks are back lmao. www.facebook.com/Sarah.Lovehearts www.facebook.com/SarahWingfield13 www.facebook.com/SarahWingfieldOfficial   I'm back atleast! ❤️❤️❤️ Sarah xo

  https://www.flipsnack.com/A58FF588B7A/zine-nd-lgbtq/full-view.html My art piece 'FeministAngel24' is featured in this newsletter! ❤️ #neurodiversity #neurodivergent #pride #Pride2025 #PrideMonth2025 #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights Taken from a co- creator of the newsletter/magazine, Cat Con Tillo: "Our new digital zine Unapologetically Us: Disabled, Proud, and Resilient, Volume 1, is officially live! This project was born from the idea that disabled and neurodivergent voices deserve to be front and center; unfiltered, unapologetic, and powerful. Working on this alongside Larissa Minner and Nathan Chung and our amazing contributors has been emotional and empowering. This zine is for anyone who’s ever felt unseen or unheard, and I’m so proud of what we’ve built together. The debut issue features raw stories, original artwork, essays, poetry, and reflections from disabled creators; including an inc...

RIP Facebooks again, it won't let me chat with them, confirm my ID or anything and I've not broken any rules so I don't understand it. Hate is rife and always wins. I'll be back later with a new Facebook - let's hope they sort all of this out though because they're making me lose decades of disability advocacy. #meta #facebook #disabled #closed #cancelled  UPDATE: https://www.facebook.com/share/1EYsQ2bW3m/ This link will take you to my new Facebook ❤️ Hey everyone - I have lost my Facebook profiles so if I was doing charity or community work with you or helping you as an independent disability advocate, working on a movie or film or anything else - you can find me here on my new created profile. I've lost my acting profile and my disability Advocating one, so have to start from scratch with this one. I've also lost access to my author, music, artist and acting promotion pages so I can only share from those ones. Please get in touch ❤️ I'm still here ...

  IMDb.me/SarahWingfield ❤️  I'm pleased to announce Mike Davies himself, author of 'A Veil of Silence' gave a massive thank you to myself, Sarah Wingfield — regarding my support towards the movie 'A Veil of Silence' and now as I'm an Executive Producer for the movie 'The Fractured Veil'. I play Laura Whitmore in the movie 'A Veil of Silence' and I am awaiting casting for 'The Fractured Veil'. He said: "You’ve believed in these stories from the very beginning, and I’m so grateful to have you on this journey." 🙏🎬 I am proud to stand by fellow creatives as we bring their passions to life on screen!  #Movies #TheFracturedVeil #TheVeilOfSilence #Actor #Actress #Films #MikeDavies #IMDb #IMDbpro #Producer #ExecutiveProducer #Movie #film

  Image of Bambi French (DurhamEnable) and I at the podcast press shoot in Durham City, at cost to myself to attend. Disability Advocating is important! This isn't Megan Welton cropped out of the press shoot, it's me and my shoulder. My voice silenced, my podcast sabotaged. My advocacy, my voice, my employment support was CANCELLED by Durham County Council as they used my supposed employment support system to be the voice to express this injustice. I am still awaiting the alleged social media policies I'm alleged to have breached, even though I'm clearly independent and not affiliated to any specific organisation. How can I use DurhamEnable in good faith now? The podcast I did was meant to HELP ME find employment too! Where is MY right to support?! Where is MY justice? Opportunities sabotaged, clique-lead hate, ostracisation of disabled voices and anyone different is NOT okay. You're damn right I'm autistically hyper-fixating on this injustice - it should never ...

 "SILENCE WHEN IT PROTECTS HATE IS COMPLICITY" Systems need to STOP SILENCING DISABLED VOICES! Durham County Council by stopping my DurhamEnable podcast you also STOPPED ME FINDING NEW WORK OPPORTUNITIES and have basically OPPRESSED me. This needs to change. I filed a complaint so let's see if they realise how harmful they've been and how harmful using DurhamEnable as a messenger for podcast cancellation is.  Sarah Wingfield Independent Disability Advocate  #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights #takingthepip #StrongerTogether #WelfareNotWarfare #employmentsupport #NeurodivergentVoices  I action positive change - I'll never understand why people waste their time being a bully. 💋 Image description: A screenshot of Matt Stewart's LinkedIn page stating: "A leader recently asked me, how do we create psychologically safe spaces for our team when someone doesn't believe in equality for ...

Well after a week of appealing Meta and sending ID and doing videos for identity purposes - I finally got my Facebooks back. All but my acting page - so I changed one of my Facebooks to an acting profile - so that's sorted. I lost everyone I was following so I've started to follow important pages and people again and I created a new disability positive group! https://www.facebook.com/groups/719864097441067/?ref=share This is a new disability rights advocacy group where disabled individuals can meet and support one another on their journeys to accessibility and eradicating ableism. If you'd like to join our community of advocates, activists and disabled individuals please click the link to the group below! We'd love to have you! Sarah Wingfield  Independent Disability Advocate  #disabilityinclusion #strongertogether #disability #disabilityawareness #disabilitysupport #disabilityrights

John Hewitt is the CEO and I tagged him in this on LinkedIN. I speak with reporters today. 💪🏻❤️ I sent this to Durham County Council but they're ignoring me and sending me to their messenger from DurhamEnable instead which is becoming a conflict of interest because I don't feel like I can use Employment Support Services for myself as a disabled individual when they're using them to silence me as an advocate. This is ignorance not support. I requested the following: Dear Durham County Council, I am writing in response to the cancellation of my DurhamEnable podcast episode and your reference to a breach of social media policy. I have not received any prior copy or communication outlining this policy, nor was I made aware that certain content—particularly involving perceptions rather than factual evidence—would be grounds for disciplinary action or cancellation. Therefore, I am formally requesting: 1. A complete and up-to-date copy of your social media policy. 2. A clear exp...

  https://powerpopradio.player.radiostudio.app/ I am so happy to announce that Simon Lloyd played one of my tracks on Powerpop Radio this morning! Never have I ever. ❤️ I am known as the music artist K•Doll and my music is available on all streaming platforms - I am so grateful for all the support I've received in my music journey! Sarah Wingfield / K•Doll ❤️

Rest in Peace my 6.1k hard earned Facebook profile and pages... I will rebuild from scratch because I'm rebuilding from experience. http://www.facebook.com/SarahWingfield013 I hope I get access to my profiles back but if not, this is my socials for the moment and I send everyone lots of love and life is full of chaos and setbacks - how we handle these is all that counts! 💪🏻❤️ Together we are stronger! Sarah xoxo 

 AI significantly improves accessibility by removing barriers for disabled individuals across many aspects of daily life. Here's how: 🔊 1. Speech Recognition & Voice Assistants Who it helps: People with mobility impairments, visual impairments, or limited use of hands. How it works: AI-powered tools like Siri, Google Assistant, and Alexa let users control devices, send messages, and search the web using their voice. 👁️ 2. Computer Vision & Image Descriptions Who it helps: Blind or visually impaired people. How it works: AI can describe images aloud, read text in images (OCR), and even recognize objects or people. Example: Microsoft’s Seeing AI app. 👂 3. Automated Captions & Transcription Who it helps: Deaf and hard-of-hearing individuals. How it works: Real-time captioning in Zoom, YouTube, or Google Meet uses AI to convert speech to text. AI transcription apps (like Otter.ai) provide readable records of conversations. 🧠 4. Text Prediction & Readability Tools Wh...

I have some exciting news!  My art piece Feminist Angel '24 was accepted into publication by a disability positive neurodivergent organisation! I'll share the piece when it is published! Here's the art piece itself to enjoy meanwhile: Sarah Wingfield  Independent Disability Advocate  Artist/Blogger/Author/Actress+ #disabilitysupport #disabilityinclusion #publication #art

I got a ticket for the not dead yet event but incase I can't make it here's my contribution: I can share it on socials too. ----- Not Dead Yet by Sarah Wingfield Author, Independent Disability Advocate. Not dead yet — But I’ve wanted to die. Wished for comas. Whispered quiet goodbyes. I'm disabled, you see. In agony. Constantly. Pain — chronically. But my disability You can’t see. It's invisible to the naked eye, Hidden deep within me. Don’t mistake me. Don’t forsake me. Don’t throw me away. Don’t silence me. I'm an advocate. A warrior. A mother. A conjurer — Who actions positive change. Don’t abandon me. Don’t quit on me — Especially on the days I seem estranged. Not dead yet — Just trying to survive. Trying to change the world. Trying to thrive. Not dead yet — But told I should have been. A burden on society — The internal screams. I was hidden away. Bedridden decay. Abandoned by the system. But I fought my way Out of there. Not dead yet — But could’ve been convin...

She’s Been Sad for Too Long — Now She Fights ~There is still plenty to be done and plenty to appreciate, when you're naturally a powerful voice~ ❤️ She’s been sad for too long. Pushed to the sidelines. Talked over. Misunderstood. Silenced. Not because she was wrong. But because she was right in a world that would rather bury the truth than be accountable to it. She is disabled. She is autistic. She is tired. But not done. The systems failed her. The support services promised help, but quietly withdrew when it became politically inconvenient. The same people who said they stood for equality, backed off the minute her story became too “controversial” for comfort. She was ostracised, cast out of her own community, ridiculed by strangers who had never lived a day in her body. And worst of all, punished for being visible. They treated her like a threat when all she wanted was understanding. They treated her like a problem to solve, rather than a person to support. But she’s not here to ...

When You’re Disabled, You Feel… Worthless Being disabled in this society often means being made to feel worthless. Useless. Like your existence is a burden. It’s not a feeling that appears out of nowhere — it’s internalised ableism, built from years of being treated as “less than.” You’re taught that your disability is a personal failure rather than a systemic issue. I live with this every day. I have skills. I contribute constantly through unpaid advocacy and awareness work. But I still feel like a burden, because society doesn’t value that work unless it’s paid. And when you're disabled, finding paid work is made needlessly harder — not because we’re not capable, but because we’re judged differently. I recently recorded a podcast with an employment support organisation, using my lived experience to help others. It was meaningful. But because they’re funded by Durham County Council, the episode was removed after a complaint — not about anything I said, but about how I manage my ow...

  It’s been six days since I contacted Durham County Council about their decision to remove my disability awareness podcast — created in collaboration with an employment support organisation they fund. I’m still hoping for resolution, because I believe this action was unjust. The podcast was removed after individuals with malicious intent stole content from my platform and used it — illegally and manipulatively — to silence me. These same individuals continue to bully and harass me, and the Council’s response feels like a betrayal of the very inclusion they claim to support. Silencing disabled voices — especially those already targeted — is never acceptable. We deserve to be heard. We deserve to be safe. Sarah Wingfield 🌹 Independent Disability Advocate  (Independent already legally means not affiliated with anyone.) #DurhamCountyCouncil #DisabilityAwareness #DisabilityInclusion #Ableism #JusticeForDisabledVoices

 #chronicpain  "Sometimes you have no choice but to hit pause and rest - until your body lets you do things again. 💔" -Kawaii Doll Decora ❤️ Rest Is Not a Failure: Listening to My Body with Chronic Pain There’s this unspoken pressure in the world to keep going. To hustle. To push through. To override discomfort in the name of productivity, success, or even just appearing “normal.” But when you live with chronic pain, your body becomes your compass — and sometimes, your limit. I didn’t choose to have pain. I didn’t ask for it. But I’ve learned, slowly and sometimes unwillingly, to listen to it. Because ignoring it doesn’t make it go away — it just makes it worse. It steals more days from me, more moments, more joy. Rest isn’t laziness. Rest is survival. It’s sacred. It’s what my body needs — not what society says I should do. There are days I can’t move much. Days when brushing my hair feels like climbing a mountain. And then, there are days when I can do more, when the pain ...

  Survival Isn't Always Loud: People who don’t know your struggles will always have an opinion. They’ll offer commentary on your life with confidence — despite knowing nothing about the hell you’ve endured to keep going. Let them talk. You don’t owe them an explanation. Keep going — not to prove them wrong. You already do that by existing, by breathing, by standing back up every time life knocks you down. Keep going to prove to yourself that even in the darkest moments, you're still capable of building something better. This week, I started antidepressants. Not because I’m weak. But because I’ve had enough. Enough abuse. Enough judgement. Enough people twisting the truth and calling it justice. I’m trying to build a good life, despite it all — despite a world that seems to reward cruelty and punish survival. I don’t stay at home much anymore. Not because I don’t want to. Because I can’t. My street hasn’t been safe for a long time. The people around me — strangers, neighbours, e...