PGP / SPD My story:

Why do they make it such a stressful experience when you call G.P's? They don't take me seriously, do they really think I am crying for nothing and lazy as opposed to actually being housebound and in a serious amount of pain? I'm fed up of this treatment and I will no longer be putting up with it, I am struggling to cope with my pain without meds and I am sick of not being treat with respect or taken seriously by them, enough is enough! Even if it means I now have to write formal complaint after formal complaint and document everything , something seriously needs to be done; I am not prepared to be disabled for the rest of my life and I have the right to help and to not be made to suffer like this. I am crying as I need their help, so they should be helpful, instead of saying inappropriate opinionated remarks that there is no need for, are unjustifiable and unprovoked. Today I am proud to say that I finally cut myself off and stated that I do not have to justify my conditi...

Well right now I am on lot's of morphine. 2x 10mg of morphine slow release morphgesic tablets in AM and again in PM can be increased to 3 AM and 3 PM if needed and 4x 5ml of Oramorph allowed every 4 hours daily = 40mg Morphine. I have had to stop breastfeeding to do this when baby was 14 days old and it's really got to me, had plenty of tears and just gutted, miss it sooo much... BUT I am more use to baby like this as it allows me to be a little more mobile sometimes. Mainly I am completely immobile and my pelvis is constantly locking up but atleast morphine is helping. I cannot lie on flat surfaces and had to sleep on sofa for ages! I am only just in bed now by piling lots of pillows up and i mean 7 pillows in total and another one making it 8 cushions that goes under my knees. My pelvis still locks as I have not had my O.T visit yet and the pillows keep falling over etc... so i need something else to aid me with the bed height or I am stuck immobile completely and cannot even...

*OH SO ALL SEVERE SPD SUFFERERS ARE PSYCHOSOMATIC AND PUTTING THEIR CHILDREN AT RISK ARE THEY?* My baby has dropped now so I am really excited, in all this madness and mess he is so fantastic we were playing with Mr. lumpy as he is known now despite us already having given him a name, all night and he was so responsive, he is so beautiful already and I cannot wait to meet him. In all this chaos he is the best thing that is happening right now. Got a call from my G.P today, the call was so-so... I am disappointed as the NHS have failed to provide me with a medical professional experienced with SPD or even experienced in pelvic joints, so looks like I am going to have to go privately if I want to be taken seriously. As fine as I am to see a psychiatrist I do not understand how they are so keen as to suggest it is psychosomatic when failing to even be prepared to allow me the assessment of an experienced individual who can confirm my condition or as they seem to want at the moment confirm...