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Showing posts with the label Hypermobility

Foodvisor:

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Foodvisor: One month. One stone. 🎉💚 I'm so proud of myself! Living with AuDHD, EDhS, POTS and chronic pain means consistency can be incredibly difficult. Executive dysfunction, pain, fatigue and fluctuating energy levels can all make healthy habits much harder to maintain. That's why losing 1 stone in a month feels like such a huge achievement for me. 🥹👑 I've been using the Foodvisor app to help me track my food, stay accountable and make more mindful choices. It's really helped me build healthier routines without feeling overwhelmed. This isn't about perfection—it's about improving my health one step at a time and celebrating progress, however big or small. If you're on your own health journey, keep going. Every positive choice counts. 💚✨ Sarah Wingfield ❤️  Actor • Author • Advocate  KawaiiDollDecora.uk #WeightLossJourney #Foodvisor #HealthJourney #AuDHD #Autism #ADHD #ChronicIllness #ChronicPain #hEDS #POTS #DisabilityAwareness #Neurodivergent #SelfC...

Invisible illnesses: EDS:

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EDS, Hypermobility and hEDS/EDhS affect everyone differently—even when we share the same diagnosis. Many of us experience similar symptoms and familial patterns, but our day-to-day realities can vary hugely. This is just one version of how EDS can show up in someone’s life. For example, I don’t have flat feet—but I’m affected by nearly everything else on this list, and more. I'm proud to share this to raise awareness, because dynamic disabilities and invisible illnesses aren’t something you can see. You can't diagnose us with your eyes. So I ask you—look beyond the photo. Think outside the frame. See the whole picture. Thank you for taking the time to read. If you know someone with an invisible illness, why not share this with them? Let’s remind them: You are loved. You are seen. You are not alone. With love, Sarah Wingfield ❤️ Independent Disability Advocate #DisabilityInclusion #StrongerTogether #DisabilityAwareness #DisabilitySupport #DisabilityRights #ChronicIllnessWarrior ...

Another Condition...

PoTs: Well i have found out that i have another condition linked with Hypermobility Syndrome, via a Hypermobility Charity known as HMSA. Its part of Hypermobility in a way and I have often wondered why i get blurred vision, problems swallowing dry chips and food and having really low blood pressure at times, mainly after eating and after standing. Here is the condition and information posted on Wikipedia about it, its known as PoTs: (long information to come:) "Postural orthostatic tachycardia syndrome ( POTS , also postural tachycardia syndrome ) is a condition of dysautonomia , [ 1 ] more specifically orthostatic intolerance , in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia . Several studies show a decrease in cerebral blood flow with systolic and diastolic cerebral blood flow (CBF) velocity decreased 44% and 60%, respectively. [ 2 ] Patients with POTS have problems maintaining hom...

What is EDS? (My disability)

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Reference from: http://ghr.nlm.nih.gov/condition=ehlersdanlossyndrome Please note: Some links may have been disabled as it is a quoted extract which copyrights all belong to the reference link above and at the bottom, all rights reserved to original copyright proprietor. "Reviewed May 2006 What is Ehlers-Danlos syndrome? Ehlers-Danlos syndrome is a group of disorders that affect connective tissues, which are tissues that support the skin, bones, blood vessels, and other organs. Defects in connective tissues cause the signs and symptoms of Ehlers-Danlos syndrome, which vary from mildly loose joints to life-threatening complications. In the past, there were more than 10 recognized types of Ehlers-Danlos syndrome. In 1997, researchers proposed a simpler classification that reduced the number of major types to six and gave them descriptive names: the arthrochalasia...