PGP / SPD My story:

I have been hiding away and avoidant again for a while but now i need to speak up again... Xmas is over now and we had a nice xmas as we stayed at my parents and they had bought a sofa and a matching sofa bed for their living room just for us!! Can you believe it, changed their furniture just so i would be able to sleep over at xmas. I love them so much! We are still fighting for a stairlift, our son is 6 weeks old 1st january and I am still trying to get my 6 weeks check up. Whats happened about the stairlift? Well, my new consultant originally refused to send social a letter about me as he refuses all his patients since a check from the county council previously bounced therefore its been seriously held up. My SPD's getting much worse and a while ago now i was in hospital with the stomach pains, different to SPD pains and the consultant who saw me on the 10th the one who discharged me without telling me who i was reassigned to on the 10th Dec said that it would subsid...

You'd think things would get better from here... you would be wrong. I was in agony the same night I was discharged and my pelvis locked up when I laid flat on the bed preventing me from breastfeeding and I had to sleep on the sofa. My parents had to come out at 4:30am and help my husband lift me to the sofa. When it did this again the next day the urgent care dept out of hours suggested I phoned the ward I was on, the ward I was on did not want to know and as far as they were concerned as they stated "You have had the baby now..." and basically I am no longer their problem. So I phoned A and E and and my mam and dad came and took me and the Dr there gave me morphine but said I could breastfeed on it. Morphine made my baby vomit so I stopped it. Second time I was stuck on the sofa unable to move and scared incase I needed the toilet as I couldn't even nudge myself forward or sit up/back so I phoned urgent care at 23:00 and the lady came out at 02:00 and gave m...

Seriously considering swallowing whatever pride and dignity I have left if I have any left now, and go to the media... to let the media know what the system are doing to people. I can see myself seriously ending up in hospital as no one can help us. Because I have this disability that is SPD I need: A stairlift = cannot get help for one cannot rent one due to financial situation and due to L shaped stairs. The internet: Costing us £60.00 to move to our council property to avoid homelessness. (we have to do online shopping/banking/the only communication i have with the outside world etc) The phone line for emergencies and the internet: £122.50 cost from BT as the council house doesn't have any wiring or a phone socket/access. The key meter is no good as we cannot top it up due to my care so Npower were willing to change it for free as we have been customers for nearly 2 years but take 28 days from the date we move in, and they said the gas and electric are with powergen. The lady I ...

I have been stearing away from updating my blog as lot's more things have happened and I basically have not been able to deal with them right now. I have become more introverted and have never felt more alone. I keep venting on facebook and all I can imagine is that people will have gotten sick of me whinging by now, that lass who always feels sorry for herself etc..... well I don't feel sorry for myself I just don't have anyone to talk to and feel so alone right now. Never in my life have I been in a position where I cannot walk. I have been in positions before where I have been in constant pain for long periods of time but from those I had gaps in. i.e. endometriosis etc. This time I have had no gaps and it hurts everytime I move, even the slightest. What mam can I be now? My husband will have to help again so much and it really is not fair on him. I spend most of my life trying to cheer people up and help people and right now I feel like everyone is my enemy, but I have ...

On the 5th of August, a few things had happened since the enquiries. I am 23 weeks pregnant exactly today. My midwife was reluctant to make home visits in the first place and now I am seeing my consultant (who is now back from holiday) on Monday 10th August, my midwife has stated he will see to my ante-natal care. (Feel like her hands have been washed from me? ...yeah) So will I ever meet my midwife this pregnancy?? It is looking more and more unlikely. I still need to sort out a MatB1 form or something for SMP, get some stockings (as suggested by my Occupational Therapist 'E') and sort a few more things out like parentcraft/ante-natal classes. Luckily this time transport has been arranged via my GP for the 10th August. I will have to see what Consultant says in regards to referrals, as my midwife has said that PGP is more or less untreatable despite what page 77 of the NHS free book to all first time mothers states in black and white. So confused. I am anxious and scared as I...