PGP / SPD My story:

I still remember being screamed at on the ward "I've got cancer and I'm not going on like you!"  She meant she had something terminal and still wasn't in the excruciating agony I was in and was crying through whilst I was wishing I was in a coma. My pain management was often administered late and incorrect, lower doses than I should have had to keep me comfortable. So of course my pain would increase and torture me. They usually had me on a side ward because of my pain - but they left me on this ward to be targeted and to be made to suffer on top of what I was dealing with. A woman to the right of me was bragging about all the help she'd had from the NHS whilst I had to have a hospital bed donated from Germany as a desperate attempt at comfort and support, and was lucky that that was even a possibility. The staff were abusive all of the time - why wouldn't they be - they blamed me - assumed I was faking because medical notes meant nothing so my expression ...

All ready to go get my son - with Peter - and take him out for the day. ❤️ Got some writing done yesterday - ended up working on a different book - but all writing is important and as long as I keep chipping away at my books and getting more written - the closer I am to releasing them on my author account on Amazon. I started on a weird fictional piece based on my disabilities and experiences and it's reminiscent of Alice in Wonderland - but a woman with a walking stick that ends up in a fantasy world of self discovery. Let's see where it goes from here. Sarah. ❤️

 Just signed up today to see Meta Horizon Worlds and what it was all about to get avatar stickers - haven't done anything in the app or game but downloaded and installed it - and I'm not even allowed on it lmao. I don't have a VR headset to even break any rules.   The online world continues to make ZERO sense - unless you have money - then you can access what you want and break any rules.  But if you're me? You get banned before you even get started. Total waste of time creating an account and downloading - if they make things unusable. Sarah ❤️ #meta #metahorizonworlds #metahorizon #unusable #unplayable #glitch #ban #AccessDenied

I've got a lot going on behind the scenes right now. I always say it’s okay to not be okay—but I tend to hide away when I’m struggling, and that’s not being the advocate I want to be. So here I am, being honest: I’m heartbroken. My beloved fur baby is being put to sleep next Wednesday. Life’s been throwing some brutal punches lately, and on top of that, I’m dealing with my usual battles—chronic pain, fatigue, and other personal struggles I’ve been quietly chipping away at. Lately, it’s felt unbearable. I’ve been crying all day, feeling useless, and running on empty. I’m doing my best to stay strong, but right now, I’m struggling to cope. I’ll be staying at my partner’s for another week after today—to escape a bit and take a break from everything. I know I’ll get through this, but it’s going to take time. I need people to understand that I might be online less while I work through it all. Sometimes sharing memes and being around my social friends really helps—but it also leaves me v...

 I just got asked not to ask someone to educate themselves better on disability because they KNOW two disabled people... I absolutely will ask people to educate themselves because people need to educate themselves on how harmful these narratives are on disabled people as a whole. You can't assume they're faking - 0.1% fraud rates and 4.2 billion pounds annually in unclaimed benefits. Your personal struggles doesn't justify misguided hate built on false narratives that use an assumed few to fuel hate for the masses. I'm an independent disability advocate - I advocate FOR your disabled friends and relatives and with good reason - if you knew your words and assumptions harmed them would you change? Disability varies from person to person and hate solves nothing. Focusing on people who fake disabilities—or amplifying the fear that many are faking—creates a culture of suspicion that disproportionately harms genuinely disabled people. This scrutiny forces disabled people to c...

 I've seen people being easily brainwashed to hate disabled people today because of the way the media spins the help and accessibility that's put in place to even the playing field. People creating fake scenarios to justify hate for the disabled and others wishing they could 'sit at home all day'. Imagine you have cancer, but it's not terminal, it's just going to destroy every aspect of your life and instead of being able to die you have to adjust and adapt and learn to live in excruciating agony, low energy, low movements... That's Disability. Stop thinking you can SEE disability when you could never see cancer with your eyes. You're not someone who has X-ray super powers and people you accuse of not struggling aren't around you at their worst. You know nothing of the reality and the media helps fuel your misguided hate. Wish for a permanent illness and you may get one - but considering the people hating are the ones that only care about an issue or...