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Living With Dynamic Disabilities: The Reality Behind the Good Days:

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Living With Dynamic Disabilities: The Reality Behind the Good Days: One of the most frustrating things about living with a dynamic disability is that people often judge your entire life based on a single moment they happen to witness. If they see you smiling, attending an event, advocating, creating content, going shopping, walking a short distance, or enjoying yourself, they assume you're fine. What they don't see is what happened before that moment, or what happens afterwards. They don't see the chronic pain that keeps you awake at night. They don't see the fatigue that can leave you needing days to recover from a few hours of activity. They don't see the dizziness, brain fog, sensory overwhelm, anxiety, mobility struggles, joint instability, or the countless calculations disabled people make every day just to participate in society. As someone living with multiple disabilities and chronic health conditions, my abilities are not the same every day. Sometimes they...

Introduction to Sociability app:

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 Introduction to Sociability app: The Sociability app is a free mobile app that provides detailed accessibility information for businesses like restaurants and gyms, helping disabled people and others with accessibility needs find welcoming places to socialize and exercise. It uses crowd-sourced data, user reviews, and photos to give users detailed information on features such as entrances, interior spaces, toilets, and sensory accommodations. Founded by a wheelchair user, Sociability aims to make the world more inclusive by removing barriers and empowering people to make informed decisions about accessible venues.  I myself have downloaded this app, and encourage others in Newton Aycliffe and surrounding areas to install it too. We can upload pictures and information regarding accessibility issues and help inform our disabled and SEND communities as to what places are like and if they're autism-friendly, have steps or ramps and more! I've personally spoken to the creators of ...

HAPPY SPD AWARENESS DAY!

♥ HAPPY SPD AWARENESS DAY ♥ TO SPD SUFFERERS EVERYWHERE! -GO TO http://pgpandspd.blogspot.com/ ♥ THIS is currently happening on Facebook. 1st FEBRUARY is now officially SPD AWARENESS DAY for all associated with this blog and the support group i run and will also be affiliated and used on my charity officially as an important way to help other SPD sufferers that may not know about this site or the support group and will need help! 1 in 4 women get SPD do not forget that! 20% get it so severe and are likely to need wheelchairs! And there are people with underlying conditions like me who develop SPD during pregnancy and it disables them more for life, due to being caused by the underlying condition! Once you develop SPD you are so likely to get it again, not just in 2nd pregnancies! BUT also when you need smear tests, yup things like that, even during sex! Thats why i am here! And i would love to declare my charity up and running but someone is coming to discuss that with ...

Todays the Day! Still have stairlift issues though....months on...

Finally our council tax issues are resolved, may have taken over a year but thankfully all is sorted now. I am in absolute agony today, the front and back of my pelvis are just excruciatingly painful today :( Got a support cushion from the internet to hopefully help me when I am sleeping, help with my position and if I ever get the chance to restart breast feeding it will be really useful then too. Keep phoning the Dr.'s as they keep prescribing me only 2 days worth of Morphine and I constantly run out, which is why I am in absolute agony today, it's really hard to have a prescription written at my Dr.'s and I am still waiting for a Dr to call me back so I can explain to them what I have explained over and over again to the receptionist already, how much pain I am in and how desperately needed the Morphine is, you'd think they would give you a bigger bottle wouldn't you? I am on the slow release tablets too but they are not doing much on their own, the Oramorph and ...

Because DVT is high risk for those with PGP/SPD:

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" Deep vein thrombosis Deep vein thrombosis (DVT) is a serious condition where blood clots develop, often in the deep veins of the legs (occasionally it can develop in the pelvis). It can be fatal if the clot travels from the legs to the lungs. Pregnant women are 10 times more likely to develop thrombosis than non-pregnant women of the same age. A clot can form at any stage of pregnancy and up to six weeks after the birth. Other factors that put you at risk of thrombosis include: having had thrombosis before, being over 35, having thrombophilia (a condition that makes clots more likely), being overweight (with a BMI of more than 30), carrying twins or more, having just had a caesarean delivery, sitting still for long periods of time, including on flights of more than five hours, or being a smoker. What are the symptoms of DVT? The symptoms of DVT usually, but not always, occur in one leg only. Seek advice from your midwife or doctor immediately if you notice one or more of the fol...