Lack of support will always be an issue:

-






America has started to refuse treatment for people with the same condition as I have, and the UK didn't really offer me anything other than opioids and things that I absolutely hated.


The physio's didn't really understand that it's a disability that requires pacing oneself and pushed too hard and caused seize ups and bad flare ups and I wasn't offered any mental health support or counseling or anything from becoming newly disabled in 2009.


I had to adapt and endure on my own.


I still do.


I was a early-teenager when my spleen was engorged on an x-ray but I was told to ignore that because that's not why I was there, had they investigated properly and taken bloods to show inflammation markers I'd have been diagnosed and would never have lost everything, my business I started from scratch, the private rented home we'd had nice, my mobility, education and everything.


I'm getting back into college now and I'm working towards all my goals and getting my life rebuilt.


We say we have a NHS but we've had a skeleton 🦴 NHS for far too long, barely any mental health or adaptation support and the bare minimum to nothing in regards to rehabilitation or anything.


They push pills that are more damaging than helpful onto you and because they can't see your disability they punish you when they think you're faking.


This needs to change.


-S. xx

Kawaii Doll Decora 🩷


#disabilitysupport #disabilityinclusion #ehlersdanlosawareness #ehlersdanlossyndrome #hypermobileehlersdanlossyndrome #hypermobility #disabilities #honesty #support #DisabledAdvocate #dynamicdisability 

Popular posts from this blog

I'm done with Bishop Auckland college:

-
Image
I got a very unprofessional email (linkedin message) today after promoting the college and resharing several courses I shared this: A colleague had been informed that due to numbers the policing course can't go ahead. (My formal complaint via email is at the bottom of this blog post) So I simply shared a list of their nutritional courses (also helpful) and added if anyone was interested in the level three policing course to enroll asap (based on the information provided we didn't want to lose the course) I received this: I still haven't heard anything official from the college yet and I'm not happy with being told I'm not allowed to share courses to enrol. But to be honest the accusations of misinformation irk me to my core especially without any official correction or context. So I've blocked Adam on LinkedIn and I'm done with Bishop Auckland College now. I am removing myself SO FAST from everyone and everywhere that chooses disrespect over thoughtfulness. ...
Read more

Ramside Hall and Northern Housing Consortium:

-
Image
I am excited to say that the event at Ramside Hall went spectacularly well, I attended with my best friend Corin and we had such a lovely time. I gave a wonderful speech as to how Northern Housing Consortium has helped me spectacularly with a bursary for my start up business www.magnoliaphotography.co.uk and I happily share the quoted speech I gave below:  " As a start-up business, I initially struggled to  meet the demands of contractual work. Creating art by finger painting on my phone screen was time-consuming, imprecise, and physically challenging. This made it difficult to meet my clients' expectations for detail and speed. Living with chronic pain and disabilities only added to these difficulties. When I learned through Livin Futures that Northern Housing Consortium was offering a start-up bursary, I immediately applied for a drawing tablet, hoping it could change the way I work. Receiving the bursary has been truly transformative. With my new drawing tablet, I can now ...
Read more

NEWTON PRESS review : Blacklisting:

-
Image
Newton Press  Newton Aycliffe Review By Sarah “Lovehearts” Local Guide·10 reviews·11 photos ⭐ One star: UPDATE: BECAUSE I WON'T TOLERATE NASTY SARCASM AND ABUSE I'M NOW BLACKLISTED FROM AYCLIFFE RADIO AND AROUND TOWN RADIO WITH PHILLIP HAWKINS AND ANDREW HILL. Cheers 😔 see: https://pgpandspd.blogspot.com/2024/06/hacked-stickers-betrayal-and-pride.html I got off the phone to Paul Howarth yesterday, whilst I'm with my son in public in a cafe, the ADM meet didn't go ahead, but we stayed anyway and my son encouraged me to merely enquire about the article and why my image was not printed, Paul stated it was a space issue but I explained he'd spliced images before and how much would it cost to get the photo in the paper so I can feel positively represented by my home town as a Newtonian since his only reason was the article was FREE, anyway he got rude and abruptly stated he does a LOT for ADM and it's ALL FREE and that he feels I'm being REALLY UNFAIR and hung u...
Read more