PGP / SPD My story:

We have moved home to a new property that meets my medical needs and we couldn't be happier here. Our son is blossoming into a little boy and he will be starting nursery next year! *shocked face here* Where! Oh Where! Did the years go? Feeling the same? I know how you feel! We are making new friends, old friends are moving on, and we are just following the path that life is leading us right now, it is not all sunshine and rainbows, we do have obstacles surpassed and more obstacles to conquer, but we prefer to focus on the positives and we find the negatives usually get sorted out when we're face to face with them. So it is nice to focus on the positives and be cheery and chirpy and looking forward to many years to come, growing old together as man and wife, watching our son grow up to be a man and filling our parents shoes when we reach their age and our son has a life of his own.  We all grow, we all move forward, and life is quite short despite it being th...

Well, on a very much used Social Networking Site starting with 'face' and ending with 'book', we had yet another of our SPD AWARENESS DAYS! For those that are not aware: SPD AWARENESS DAY was set up by charity Support Pelvic Dysfunction and this blog, to be every FEBRUARY the 1st. (WHY THIS DAY? because that's the day we thought about this fantastic awareness idea that would help many SPD victims find us!) Every FEB 1st people on this networking site set their status to say something along the lines of: "Well it's another SPD awareness day started by Support Pelvic Dysfunction! Please REPOST this as 1 in 3 women develop SPD, approx 20% become disabled with SPD or develop long term SPD. Help is available at www.supportpelvicdysfunction.co.uk Let's raise some awareness today! HAPPY SPD AWARENESS DAY! ♥" Then people who WANT to help click SHARE and post it to their wall or set it as a status. This year it was also shared on anothe...

In response to the post i made previously in regards to how disabled people ARE NOT equal citizens unfortunately, i have taken action today and put my thoughts accross to my county council. ALL details and names have been removed to protect identities and to follow the rules of the blog that i established based on morals, but the opinions i have and how i have put them accross has been kept as i said it. Please read on and i will update you in regards to what reply i get, still following legal guidelines and protecting identities. REMEMBER: PLEASE SEE PREVIOUS BLOG POST AND SIGN THE E-PETITION TO NUMBER 10 DOWNING STREET TO CHANGE CARERS ALLOWANCE TO A HIGHER AND MORE DESERVING AMOUNT! TAKES NO TIME AT ALL TO SIGN IT! Complaint below: "HIGH PRIORITY: DISABILITY NEEDS COMPLAINT AND SUGGESTIONS PRIVATE AND CONFIDENTIAL To whom it may concern, I would like to put forward a formal complaint and suggestions regarding disabled tenants. At this moment in time, disabled...

PLEASE SUPPORT ALL SPD SUFFERERS PARTNERS THAT BECOME 24/7 CARERS! PLEASE TAKE 2 SECONDS TO SIGN THIS PETITION AND VERIFY YOUR SIGN UP BY CLICKING THE LINK THATS SENT TO YOUR EMAIL! PLEASE REPOST THIS ON YOUR YOUR SOCIAL NETWORKING SITES AND RAISE AWARENESS! AND DON'T FORGET TO SIGN THIS IMPORTANT PETITION , THIS WILL HELP FAMILIES LIKE MINE GET WHAT WE DESERVE!!! http:// epetitions.direct.gov.uk/ petitions/20542 The Government should increase Carers Allowance to reflect the amount that carers save the nation by not relying on the NHS CARERS ALLOWANCE IS CURRENTLY AROUND ONLY £55 A FORTNIGHT FOR A CARER WHO WORKS 24/7 WITHOUT ANY BREAKS BECAUSE THEY CARE F OR A RELATIVE LIKE MY HUSBAND DOES. CARERS THAT WORK 9-5 AND NIGHTSHIFTS FOR NON-RELATIVES GET £800-£1000 A MONTH!!! (ANNUAL SALARIES FROM £12K-£15K AND UP!) HUGE DIFFERENCE FROM £110 THE CARERS ALLOWANCE GIVES!!! P LEASE TAKE 2 SECONDS TO SIGN THIS WITH YOUR NAME, EMAIL AND ADDRESS!!!! AND REMEMBER TO LOGIN TO YO...

Applicants for volunteer and trustee positions: Please send the following questions filled out to: help@supportpelvicdysfunction.co.uk Please note: We have additional meetings with cavos but at this time they are not mandatory for trustees. (trustees may be welcome to come along to some of them, or all at a later date). Required information via email or post. POST: Please request corresponding postal address by calling 07721656764 on Mondays OR Fridays, 11am-4pm. Suggestive advice line open from 10am-5pm on same days. (The following information is mandatory whether the applicant is known by us or not.) *If question is starred, it is mandatory. (If you do not have a landline, please state in answer so question has been answered, however you must have atleast one mobile or telephone number you can put down so we can contact you.) *Full name: *Marital Status: *Date of birth: *Address and postcode incl town and county:  Phone numbers: *Landline: ...

WE ARE NOT EQUAL TO ABLE BODIED PEOPLE, WE ARE NOT WORTH IT: I AM MORE THAN UPSET. How many more rights do we have to lose as disabled individuals? COURSES AVAILABLE IN MY AREA: are FREE for people on JSA, and ESA (those worthy as they are capable to work) but NOT disabled individuals or disabled charity workers or volunteers. WE DISABLED HAVE TO PAY, FOR A COURSE THATS JUST MIXED CRAFTS! £3/hr, but when we are not receiving much in the form of benefits and are not able to work, how do we cope? This seems a small fee but it shortly adds up for those who cannot work, cannot improve their lives or financially progress. How do we meet other disabled people or MAKE NEW FRIENDS? In our area there are no DISABLED coach trips or meeting groups! (And especially not wheelchair accessible for any of the groups that do exist) I am working to set up the first SPD support group, if i ever get my own transport since there is no DISABLED TAXIS, and the only transport available ...

I know that living with SPD is difficult enough, but mix that with a joint condition and it is a whole new ball game. But, that does not mean that you cannot get the help you deserve.  http://www.hypermobility.org/   are a HMS Charity that has guided me through some of the tough times with HMS. If you become a member like i have, you receive lots of important and relevant information, and if your blessed to be in an area where they meet up, in which i am not, then you can discuss things with others who are in the same situation. I cannot update anything else as the Health Psychologist Department have not been in touch despite the fact that i was informed ONLY the Pain Psychologist Dept, have dismissed me. I am losing faith and losing patience and i am very grateful to be able to receive counselling yet again via my GP. But this counselling is not the psychology i need to be able to accept this disability to the full. Many women struggle accepting SPD, HMS and ev...